[angeParticipant]

Hi Paul and Gayle, so sorry to hear about your latest results. I have sent you a private message. Take care Andrea xx

Hi Wendy, good luck with your tests. Hope you manage the triathlon! I am a newbie here so find all of you very inspirational. All the best Andrea xx

[angeParticipant]

Hi Sarah Jane

You seem to be in very good hands and coping really well. Good luck with the rest of the treatment and stem cell harvest. My pp are stable at just under 40 and I am still under close observation. I have read in depth about myeloma so feel prepared! Also knowing that everone here is so friendly and supportive is very reasuuring. Take care Andrea xx

[angeParticipant]

Hi Tom

Thank you for posting this information, I would be very interested to read these articles and would be grateful if you could send me a copy. I will send you my email address.

With best wishes

Ange

[angeParticipant]

Hi Sarah Jane

Great news, all sounds good. I hope you continue through your treatment as best as can be expected. Wishing you all the very best, Ange xx

[angeParticipant]

Hi Andy

Just thought how nice your welcoming message was. I joined the forum in August and have attended the Cardiff info day. I am asymptomatic but followed closely at clinic. After reading these posts and meeting people I feel in a much better position to deal with whatever happens in the future knowing there is always someone here who can help. I hope that you keep as well and strong as possible.

Best wishes Ange

[angeParticipant]

Hi Maria

Welcome to the forum, you are in the right place here to get support and advice from lovely people. I too was recently diagnosed and am 51 years old with 4 children, my youngest daughter is 13. I used to work as a medical secretary in biochemistry and I am now a patient in that hospital. At present I work in Medical Genetics at a hospital up the road so feel the same as you knowing the people who are looking after you! I have not started treatment yet but it is round the corner. Good luck with your treatment.

Take care Andrea x

[angeParticipant]

We were very impressed by the Cardiff Infoday we attended yesterday. Very well organised by the friendly and helpful Myeloma UK team. The presentations were very informative.I now have a clearer understanding of how the treatment works, the clinical studies etc. Lovely to meet other patients and carers. As a newly diagnosed patient who has not required treatment yet I came away feeling very positive and grateful to everyone involved for their support and encouragement. Look forward to keeping in touch. Andrea, Phil & Tim.

[angeParticipant]

Hi Paul and Gayle, sorry to hear about your back pain Paul but if you are able to make it I look forward to meeting you. Jenny, that's great, I will look out for you! Best wishes Andrea

[angeParticipant]

Hi Jacquie, great to know that you found the Birmingham one helpful. David – Happy Anniversary for the 24th! I will make the most of the day and report back! Best wishes Andrea

[angeParticipant]

Hi Sarah Jane

Hope you are still coping with your treatment. I sent you a little private message, so hope I did that properly! Take care

Andrea xx

[angeParticipant]

Hi Sarah Jane

So sorry to hear your news. I will be thinking of you and your family and wish you all the very best with your treatment. I am sure there will be lots of support, help and advice here for you. I am still under 'watch and wait' and am attending the Cardiff info day with my husband and son soon.

Take care

Andrea
xx

[angeParticipant]

Hi Sarah Jane

It seems like we are pretty much at the same stage so would be lovely to keep in contact. I hope your MRI scan is clear and that you have a long time smouldering. I try not to get stressed and put it to the back of my mind as there is absolutely nothing I can about it! Easier said than done!

Take care
Andrea xx

[angeParticipant]

Yes I agree! It is all very complicated but I think I know quite a lot now and know which scary websites to avoid!

[angeParticipant]

Hi All

I was quite surprised today at clinic that my pp has fallen from 37.1 to 34.5. Is it common to fluctuate like this? The downside was that my hb is falling each time and is now 10.3. I am still being kept on 4 weekly follow up.

Andrea x

[angeParticipant]

Hi Jennifer

I understand completely how you feel. I am also 51 and just been diagnosed with SMM and will have 4 weekly blood tests to monitor the paraprotein. Mine is around 37 now but luckily I have no symptoms yet. If you are unsure about whether the monotoring is enough I would ask the consultant or nurse at the clinic.

I wish you both all the best.

Andrea

[Author]

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