Myeloma Forum | angelinaevangelou | Activity https://forum.myeloma.org.uk/members/angieevangelou/activity/ Activity feed for angelinaevangelou. Sat, 11 Apr 2026 21:50:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 59b9a94345badc97c78aae9d9081d9e2 angelinaevangelou replied to the topic Multiple conditions in the forum Newcomers https://www.myeloma.org.uk/forums/topic/multiple-conditions/#post-132852 Sat, 08 Apr 2017 11:31:41 +0100 Hi

I got diagnosed with MS and MGUS (not active myeloma yet although high risk) both diagnosed six years ago then Chronic Pancreatitis and a blood clotting problem (had 3 arterial embolisms removed from arm 3 years ago) tachycardia plus psoriatic arthritis and raynauds disease most of my life.

Angelina

]]> bd7c90137aa170ee990eacef8e674e74 angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/page/2/#post-121711 Sat, 11 Apr 2015 09:25:34 +0100 Yvonnese
I get my blood test results from my GP surgery as i get them done there with the blood request slip heamatology give me at my 3 monthly appointment. I have had to fight to get them due to unhelpful and obstructive doctors receptionists so i complained to my gp and now i have to call to get gp to call me then see what the results are then…[Read more]

]]> d2fd29b43368af0932c113dc34dc9c3a angelinaevangelou replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-121317 Wed, 18 Mar 2015 07:53:53 +0000 Good Luck Mike

Thinking of you as you start some treatment…

Angelina.

]]> 183ac18c1f2c5e949531d43e4d18c254 angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-121284 Sun, 15 Mar 2015 11:28:01 +0000 Thanks Graham my next appointment is on 23rd march and im going to ask more questions then 🙂

]]> d4d3b296a37136c196ee5da93ae248fa angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-120315 Fri, 16 Jan 2015 10:53:47 +0000 Hi Graham
Thanks for the reply its really helpful to hear other peoples opinons/info. My sflc ratio is abnormal too but not sure what it is…Ive been being treated for anaemia since last august… my calcium and renal function has been fine but one of my other worries is that i am Iga MGUS and i believe that is harder to measure correctly so just…[Read more]

]]> 4bad575db846a7e554c3068a0f04b157 angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-120315 Fri, 16 Jan 2015 10:53:47 +0000 Hi Graham
Thanks for the reply its really helpful to hear other peoples opinons/info. My sflc ratio is abnormal too but not sure what it is…Ive been being treated for anaemia since last august… my calcium and renal function has been fine but one of my other worries is that i am Iga MGUS and i believe that is harder to measure correctly so just…[Read more]

]]> cae3d8373f9c859ad6f159c6a4613b35 angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-120269 Tue, 13 Jan 2015 10:11:16 +0000 Hi Mike
Thank you so much for your reply….it is really useful to me as i didn’t know about the different types of MRI and i am worried that I haven’t had any more imaging since 2011 despite having had bone pain (ribs and hips and lower back) since then (that’s why i first went to doctors in 2010 and led to my MS and MGUS diagnosis) It took a…[Read more]

]]> 4ad4104be67025ee722b5f2f6d30c17f angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-120269 Tue, 13 Jan 2015 10:11:16 +0000 Hi Mike
Thank you so much for your reply….it is really useful to me as i didn’t know about the different types of MRI and i am worried that I haven’t had any more imaging since 2011 despite having had bone pain (ribs and hips and lower back) since then (that’s why i first went to doctors in 2010 and led to my MS and MGUS diagnosis) It took a…[Read more]

]]> 666e58d6b8b5ec070e06bebddb479fca angelinaevangelou replied to the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/#post-120269 Tue, 13 Jan 2015 10:11:16 +0000 Hi Mike
Thank you so much for your reply….it is really useful to me as i didn’t know about the different types of MRI and i am worried that I haven’t had any more imaging since 2011 despite having had bone pain (ribs and hips and lower back) since then (that’s why i first went to doctors in 2010 and led to my MS and MGUS diagnosis) It took a…[Read more]

]]> 30e0778491d126ad5b0751a90769be34 angelinaevangelou started the topic Lytic Lesion still MGUS ? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/lytic-lesion-still-mgus/ Mon, 12 Jan 2015 18:12:49 +0000 Hi

I’ve posted here before but not been on for a while. I was just wondering if anyone had a solitary lytic lesion found on skeletal survey (i had one survey in 2011 which showed a lytic lesion on my skull)and is still classied as MGUS ? My docs say they are just keeping a close eye on me when ive asked about it… I have appointments every three…[Read more]

]]> 8e61370beba2f178d8f291e94fcebcf4 angieevangelou posted an update: @kp Glad you are ok....good luck for this week...its the […] https://forum.myeloma.org.uk/activity/p/28034/ Tue, 09 Sep 2014 10:22:48 +0100 @kp Glad you are ok….good luck for this week…its the uncertainty that is so hard to deal with i know x

]]> 0 283f3a7507f6c412f759cb1fd4215b21 angieevangelou posted an update: @kp I havent been on here for a while and was just […] https://forum.myeloma.org.uk/activity/p/27958/ Fri, 05 Sep 2014 18:30:18 +0100 @kp I havent been on here for a while and was just wondering how you are doing ? im still no nearer an answer just on 2 monthly appts and anaemic now…. Hope you are doing ok and have a good weekend…..Angelina 🙂

]]> 0 ab50cbb28d84b00091fdda1afa48fb82 angelinaevangelou replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/5/#post-116363 Wed, 02 Jul 2014 07:33:46 +0100 Susie, Ive had a couple of brain thoracic and lumbar mri’s as i have Multiple Sclerosis too…. always go in head first and just zone out and almost fall asleep…is quite warm on the table ! I do often wonder is my mris could show anything to do with Myeloma….I know there is not much communication between different departments at the hospital…[Read more]

]]> 582fe3d82bdcb073a2f4fc7729cbe02e angelinaevangelou replied to the topic Smouldering Myeloma or MGUS with Multiple Sclerosis andThrombosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-or-mgus-with-multiple-sclerosis-andthrombosis/#post-115904 Tue, 10 Jun 2014 17:33:40 +0100 I’ve managed to put the MGUS to the back of my mind for a few years really whilst concentrating on MS diagnosis and tests and pain relief. What’s very difficult for me is that Myeloma Symptoms and MS symptoms are very similar… Bone Pain i have in various areas but i also have Psoriatic Arthritis and the rib pain could also be MS or even…[Read more]

]]> 8e718bd47ff56b7fb8e035debca04504 angelinaevangelou replied to the topic Smouldering Myeloma or MGUS with Multiple Sclerosis andThrombosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-or-mgus-with-multiple-sclerosis-andthrombosis/#post-115901 Tue, 10 Jun 2014 16:43:31 +0100 Hi Karen
Thanks for replying was wondering why i hadn’t had any !
Heamatology appointment was ok although my notes were missing again… 3rd appointment in a row at my hospital with no notes…different departments each time…
My paraprotein is stable but have had more bloods to see why my platelets are still so high….have never had any real…[Read more]

]]> 72ab2060404eb5b6e14e7f643f025fce angelinaevangelou replied to the topic Newcomer: Should I ask to be screened for MGUS/myeloma? in the forum General http://www.myeloma.org.uk/forums/topic/newcomer-should-i-ask-to-be-screened-for-mgusmyeloma/page/2/#post-115862 Mon, 09 Jun 2014 10:03:02 +0100 All the burning pains and tingling etc are symptoms of MS…your MRI results may shed some light on your symptoms….my thoracic spine MRI was the thing that prompted other tests for MS…Hope it’s clear and the Light Chain Test is too as that should help put your mind at rest regarding MM … 🙂

]]> 2c019582f23c877db6db98cce6ad2a6f angelinaevangelou replied to the topic Newcomer: Should I ask to be screened for MGUS/myeloma? in the forum General http://www.myeloma.org.uk/forums/topic/newcomer-should-i-ask-to-be-screened-for-mgusmyeloma/page/2/#post-115858 Mon, 09 Jun 2014 08:00:27 +0100 Hi Sara
My rib pain was constant all around my rib cage like a tight burning feeling with occasional stabbing pains in different areas…since my MS diagnosis i have learned from MS sites on internet that Rib Pain is often a symptom…its called the MS hug ! However all the symptoms of MS and Myeloma are very similar so its difficult for me to…[Read more]

]]> 4962ecdd0d1c466985224e323c6346ec angelinaevangelou replied to the topic Newcomer: Should I ask to be screened for MGUS/myeloma? in the forum General http://www.myeloma.org.uk/forums/topic/newcomer-should-i-ask-to-be-screened-for-mgusmyeloma/page/2/#post-115847 Sun, 08 Jun 2014 14:34:11 +0100 Hi
Im 46 and my biggest problem has always been Rib Pain Front and Back…this eventually led to tests which diagnosed Multiple Sclerosis and MGUS…no medic seems
to really know which disease causes my Rib Pain which is ongoing but controlled with pain relief… MRI’S/Lumbar puncture and bloods diagnosed the MS.

Angelina

]]> 48af486c2862053fe0215c73c329f832 angelinaevangelou started the topic Smouldering Myeloma or MGUS with Multiple Sclerosis andThrombosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-or-mgus-with-multiple-sclerosis-andthrombosis/ Sun, 08 Jun 2014 14:25:07 +0100 Hi
Im 46 and have been struggling to get any clear answers as to whether i have MGUS or Smouldering Myeloma since the MGUS showed up in blood tests 3 YEARS AGO…. i was suffering from extreme rib pain for 6 months then was finally diagnosed with Multiple Sclerosis after paying for a private MRI.At this time the MGUS was found but it took a year…[Read more]

]]> f141da7ffce95bd3d3e14106e59fb6d8 angelinaevangelou replied to the topic Possible Myeloma ? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/possible-myeloma-#post-107038 Wed, 24 Oct 2012 08:32:52 +0100 Dear Kerry
Thanks for replying it's good to be in contact with someone who understands… Am waiting for results of Biopsy which hopefully will be back by Friday…Have been in a lot of pain in hip and back after procedure but went to doc yesterday and he said it's probably bruising deep down which hurts when i move my muscles…When was your…[Read more]

]]> 2573fb5f324efa381f7fb8a2a7c6d1f3 angelinaevangelou started the topic Possible Myeloma ?. in the forum Under 50s http://www.myeloma.org.uk/forums/topic/possible-myeloma- Fri, 19 Oct 2012 12:10:00 +0100 Hi, My name is Angelina i'm 45 and a single parent to a 15 yr old girl with identical twin daughters of 21 and MGUS was diagnosed last year whilst having blood tests after 6 MONTHS of Rib Pain… eventually i paid for an mri of my thoracic spine after an orthapedic consultant suggested it ( i didnt want to wait for months as i was in a lot of…[Read more]

]]> 9d0920b4783728200e8430e2da0b7037 angelinaevangelou started the topic Myeloma Maybe ?. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-maybe- Fri, 19 Oct 2012 12:07:51 +0100 Hi, My name is Angelina i'm 45 and a single parent to a 15 yr old girl with identical twin daughters of 21 and MGUS was diagnosed last year whilst having blood tests after 6 MONTHS of Rib Pain… eventually i paid for an mri of my thoracic spine after an orthapedic consultant suggested it ( i didnt want to wait for months as i was in a lot of…[Read more]

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