anita started the topic ALAmyloidosis in the forum Newcomers 10 years, 8 months ago
Hi. I’m newly diagnosed ( 1 week ) and already being prepared for stem cell transplant. This is like a bad dream happening to someone else. I would like to chat with anyone else with similar. I’m only 46 which is apparently young.
I can’t believe how well I look and feel, and yet this thing is destroying my organs. I believe sct will be done…[Read more]
anita posted an update 10 years, 8 months ago
Hi my name’s Anita, I’m 46 and I was diagnosed with AL symbiosis last week. Have already been to NAC in London. Scan showed its kidneys spleen a nd heart affected and docs want me to have stem cell transplant with high dose chemo. I feel pretty scared at moment and feel numb. It’s like it’s happening to someone else. Does anyone know if I will…[Read more]
Sorry love this is a scary road were all on and no it’s not vain it’s the first thing I thought how bad is that!! Unfortunately you will but get yourself on to hot hair treat yo u self to two lovely wigs there’s some lovely ones it will give you the confidence to face the world I’m gonna get a racing h electric Welsh one for a new look and a…[Read more]
Sorry love this is a scary road were all on and no it’s not vain it’s the first thing I thought how bad is that!! Unfortunately you will but get yourself on to hot hair treat yo u self to two lovely wigs there’s some lovely ones it will give you the confidence to face the world I’m gonna get a racing h electric Welsh one for a new look and a…[Read more]