ann replied to the topic Alternative to Aredia? in the forum Treatment 13 years, 7 months ago
Hi my husband has monthly zometa injections which started when he started chemo 6 months agao. This will continue now after chemo. We requested a change to zometa injections on the advise of a myeloma specialist a Christies where they had done research on it and showed the advantages of zometa in fighting mm.
ann replied to the topic Dad just diagnosed with MM in the forum Newcomers 13 years, 8 months ago
We seem to share a number of things! In my case it is my husband who is the patient. He was diagnosed with SMM in '09 which eventually became active myeloma in March '11 he then started treatment and finished 6 months of CDT. He coped really well most of the time just 2 lots of infection earlier on. After we got our heads round the enormous number…[Read more]
ann replied to the topic thalidomide in the forum Side-effects 13 years, 10 months ago
Hello Jane your mum and my husband (age 72) seem to be going through the same thing. David had smouldering MM for over a year but in March was told it was active and started chemo. He started cdt in March and is just completing his 4th cycle but we will probably go on to 6 cycles.
I cant seem to manage to start a discussion on this site and…[Read more]
ann replied to the topic Registration guide… in the forum Newcomers 13 years, 10 months ago
So would I! Tried several times to give details but told that my email already exists! Help! Ann
ann replied to the topic mum diagnosed yesterday! in the forum Newcomers 13 years, 10 months ago
Hello Renee and Chrissie.
Renee the shock of diagnosis is so hard you just cant believe that it is true. It does sink in eventually as you are probably finding. Everyone deals with it differently. I wanted to find out everything I could about mm till it became almost obsessive!My husband (71) started CDT in March so hes on his 4th cycle. He has…[Read more]
ann replied to the topic News on treatment from USA in the forum Treatment 13 years, 10 months ago
What an uplifting video Jet. Cheered us both up and gave us hope. Thanks for finding it from us! Shows that there is room for optimism for the future. Ann
ann replied to the topic Dad diagnosed with Myeloma last week – Starting chemo this week in the forum Newcomers 13 years, 10 months ago
Hi Vicky. Sorry you have been through such a difficult time and hope your Dad is feeling more hopeful now. I support my husband who started cdt in March and is now on his 4th cycle of 6. Things are going fine apart from 2 lots of infections needing antibiotics. This seems to effect the paraprotein level. They had gone from 35 to 4.5 the 1st time…[Read more]
ann replied to the topic My father just got the news… in the forum Newcomers 13 years, 10 months ago
Hello Marian we are in such a similar position! In fact I have been trying to post on this site but when I try to register it says there is already my email address on the site! I'll contact muk in the morning. Anyway my husband is nearly 72 diagnosed with smouldering mm in Dec.09 but active mm in March.11 We weren't given the chance of the trial…[Read more]
