ann666

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  • #120594

    ann666
    Participant

    Hi Noel

    I appear to be in a similar situation to you. I had an auto transplant in August 14 but unfortunately it didn’t give me any remission at all, by the time I had my 100 day bone marrow biopsy it had returned.

    I have just started on a course of its vtd with a view hopefully of an allogeneic transplant when and if the levels have gone down.

    It was very disappointing when the auto didn’t give me any remission but onwards and upwards. I understand what you say about the risks of the allocation transplant but personally I don’t think there is much of an option if its a high risk type of myeloma, if you stay on treatment how long before that no longer works.

    I wish you all the best with you transplant keep in touch

    Regards Ann

     

     

     

    #120257

    ann666
    Participant

    Dear Linda

     

    Thank you for your reply.

    I saw my consultant on friday to discuss my choices, I had decided to to go for the velcade instead of the trail, but in the end my blood were not great so the consultant said he wouldnt have been able to recommend me for the trail anyway as i needed to start treatment right away.

    I am off this afternoon to my local hospital for my treatment to start. I must say the care I have received has been second to none.

    How are you, are you coping well with your treatment?

    Best wishes Ann

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