[annakParticipant]

hello! how nice to get reply.I think the problem is that we are just a very rare group. If you would like to connect I can send you my contact details and we could perhaps speak on zoom

[annakParticipant]

hello, I too have Al cardiac amyloidosis and myeloma, diagnosed in January 24. I attend the myeloma support group that meets once every 3 months in Hampshire, but there is no-one there with Cardiac Amyloidosis.In fact I have never met anyone else with the disease. it would be good to connect with others. Where are you based?

[Author]

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