Myeloma Forum | AnnDavies | Activity https://forum.myeloma.org.uk/members/annd/activity/ Activity feed for AnnDavies. Sat, 11 Apr 2026 05:49:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b96e9efd5a904ddbbe8fec7fa286a75d AnnDavies replied to the topic Swollen right Leg in the forum General http://www.myeloma.org.uk/forums/topic/swollen-right-leg/#post-112208 Sat, 25 Jan 2014 14:13:53 +0000 Hi David

When I was on my CTD treatment I noticed a sudden swollen calf muscle. I had a hospital appt the next day and was sent for a scan. This showed a lower leg deep vein thrombosis which was treated with Warfarin for 6 months.
Obviously yours may be a different problem and I hope you can get a definite explanation soon.

Best wished Ann

]]> d9bd1500cdfd89c7e83ef98f73ec34bd AnnDavies replied to the topic Kidney question plus SCT question in the forum Newcomers http://www.myeloma.org.uk/forums/topic/kidney-question-plus-sct-question#post-87391 Tue, 19 Mar 2013 22:41:22 +0000 Hi Rebecca
I was taken into hospital with kidney failure in july 2007 and light chain myeloms was diagnosed during my stay in the renal unit.My creatinine level was 800 and I was prepared for dialysis including the low potassium diet.
I had CTD treatment for 4 months then had to have a major bowel operation.
when I recovered from the surgery I…[Read more]

]]> c832ab2a708b571aa892f5b7532adf94 AnnDavies started the topic Has anyone heard from Dai?. in the forum General http://www.myeloma.org.uk/forums/topic/has-anyone-heard-from-dai Fri, 12 Oct 2012 09:09:11 +0100 Just wondering if anyone has heard from Dai, I have missed him.
Ann

]]> bcd6099fe62ebb8d750bbacbabfe58a9 AnnDavies replied to the topic Has any one been on EPO in the forum Treatment http://www.myeloma.org.uk/forums/topic/has-any-one-been-on-epo#post-100127 Fri, 17 Aug 2012 17:05:45 +0100 Hi Jo
I was diagnosed 5 years ago via kidney failure and was on an Aranesp injection every week for three years then once a fortnight for a year.
My haemoglobin became 12.5 so the renal consultant stopped the injections.

I managed the injection myself and there was an excellent delivery service,
the stuff is kept in the fridge and brought…[Read more]

]]> 5046440e2139e0e1ca201c6d6f690e4c AnnDavies replied to the topic Newbie in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newbie1336315233/page/2/#post-86022 Wed, 09 May 2012 16:23:03 +0100 Hi Gail
I too attend Blackpool Victoria Hospital every 3 months to see Dr Macheta.
I was diagnosed in July 2007 through kidney failure. After CTD treatment
I had a stem cell transplant in July 2008.
I am well at the moment and am happy being looked after in Blackpool next appointment 11th June!

If you want to have a chat on the phone please…[Read more]

]]> 9287fcfa53f83e59eb54535d51677871 AnnDavies replied to the topic Newly diagnosed and unable to swallow Thalidamide Capsules in the forum Treatment http://www.myeloma.org.uk/forums/topic/newly-diagnosed-and-unable-to-swallow-thalidamide-capsules#post-98694 Sat, 14 Jan 2012 13:59:01 +0000 Hello Mandy
I have just asked my daughter who has had 30 years of swallowing capsules
for epilepsy. She suggested emptying the capsule onto a teaspoonful of honey and swallowing that.
I do think you should seek professional advice to check of this is OK with Thalidomide, perhaps Ellen on the Myeloma Infoline could advise you.
Kind regards Ann

]]> d8b9aacb2a79bd56a4579fe8677ad8c4 AnnDavies replied to the topic Advice Please Bl**dy Bank Again in the forum Off topic http://www.myeloma.org.uk/forums/topic/advice-please-bldy-bank-again#post-108503 Wed, 05 Oct 2011 17:56:04 +0100 Hi Gill
Sorry to read you are having hassle over the pension.There is a site http://www.pensions-ombudsman.org.uk that might be worth looking at, you can complain to them.
Thinking of you both Annx

]]> e1cdd3e449436ccafb625e7b4c5bf895 AnnDavies replied to the topic Shingles advice please! in the forum General http://www.myeloma.org.uk/forums/topic/shingles-advice-please#post-88465 Mon, 21 Mar 2011 19:28:21 +0000 Hi Jill
I developed shingles about 4 weeks ago and the rash has improved considerably but there are still times when I get stabbing pains -a bit like a wasp sting and I do still feel tired.I did take Acyclovir for 7 days and have used 2 bottles of calamine lotion.
Cold patches were very soothing including a wheat bag that we usually heat up
but…[Read more]

]]> c07782e77c230c980f6a93405c4602cf AnnDavies replied to the topic Disability in the forum Off topic http://www.myeloma.org.uk/forums/topic/disability#post-108709 Tue, 11 Jan 2011 12:31:40 +0000 Hi Sean
It is a good idea to gather as much information so you are prepared if you become unwell in the future. The http://www.directgov.co.uk website has a lot of information on disability including benefits and there is a Benefit Enquiry Line
0800 882200 which may be helpful.

Kind RegardsAnn

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