cohenanne

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  • #96493

    anne
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    Re melphalan – i have read about people having this before SCT but is there anybody, who like my husband, is having it as a last resort treatment (we have been told he will never be able to have SCT as he never got a remission from CTD, velcade or revlimid – and there are no healthy stem cells to harvest. The consultant said the huge dose of intravenous melphalan will kill of all his bone marrow as well as the cancer. He is hoping this can buy some time until a new drug on the horizon is available. Is there anyone else in this position? My huisband is 62 and was diagnosed in july last year. The first two treatments gave a short initial response but only for a month or two. He developed an extensive bright red rash with the revlimid and had to stop taking it. Anne

    #103678

    anne
    Participant

    Thank you Keith and Min for your replies, its always good to know you're not alone, anne

    #103676

    anne
    Participant

    Hi my name is anne, my husband was diagnosed last july. Since then he has been on CDT and velcade, both of which worked initially then failed. He was given revlimid, which gave him a bad rash which he had to stop. We were devastated that all these had not given remission. He has now been given an infusion of melthalon (slegehammer approach), but has been really sick since and is now in hospital on a drip. Does anyone else have any experience of melthalan in high dose infusion and have bad sickness?

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