After treatment with vel/dex in 2015 following initial diagnosis, I had 7/1/2 months before relapse, at which point I had a course of CDT.  Shortly after that finished I tried curcumin .  Although it had a very good effect initially, after a while I had persistent diarrhoea so changed the type of  pill.  The diarrhoea stopped but next blood tes…[Read more]

Hi all: October update on progress:

Improvement continues and my digestion sorted, I’m now back on 1 Thisylin a day; FLCs are down again and my kidney function is best yet.  My wellbeing is still being helped by the women’s cancer support group at a local hospice, and I’m also getting a great boost from physiotherapy.  The only down side is t…[Read more]

Thanks for your response, Mike.  Sorry to hear about the hep c, something I’m ill-informed about.  I’ll read your post more carefully later on, as I’m just off to Bart’s for my regular pre-clinic blood tests. Not optimistic about results this month as I’m still recovering from chest infection/antibiotics, but expect to be back on track shortly a…[Read more]

Update on progress with curcumin: my last blood tests showed that I’m on a stable remission, so the consultant extended the gap between appointments to 7 weeks (previously monthly).  However, after trying a different source of curcumin (‘Curcusorb’), which claims to improve the rate of absorption, I started to suffer severe diarrhoea.  I’ve been l…[Read more]

I’ve read lots of your posts with great interest.  Who was worried about how to get her husband to take his meds?  The results I mentioned were in response to a very low dose of curcumin (1 50mg pill daily) in the form of Thisylin as sold by Holland and Barrett, and I haven’t noticed any side effects; I am currently on NO treatment other than t…[Read more]

Hi Mike – I thought you might like to know that after 8 cycles  Velcade/dex in 2015, followed by 7 1/2 months break from treatment, then CDT I was not feeling too good, so the ‘T’ was dropped and a I had a couple of cycles of just the C&D.  It was at this point I heard the Food Programme and mentioned it to my consultant.  We agreed that a da…[Read more]