Myeloma Forum | annkhoward | Activity https://forum.myeloma.org.uk/members/annkhoward/activity/ Activity feed for annkhoward. Mon, 20 Apr 2026 20:04:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 8d064b8c47b9c20bf7aa22a46992324d annkhoward replied to the topic Curcumin in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-5/#post-137120 Thu, 15 Feb 2018 12:04:30 +0000 After treatment with vel/dex in 2015 following initial diagnosis, I had 7/1/2 months before relapse, at which point I had a course of CDT.  Shortly after that finished I tried curcumin .  Although it had a very good effect initially, after a while I had persistent diarrhoea so changed the type of  pill.  The diarrhoea stopped but next blood tes…[Read more]

]]> 374070529ced57acd54d0240cd33a1e9 annkhoward replied to the topic Curcumin case report in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-case-report/page/2/#post-135738 Mon, 30 Oct 2017 17:46:38 +0000 Hi all: October update on progress:

Improvement continues and my digestion sorted, I’m now back on 1 Thisylin a day; FLCs are down again and my kidney function is best yet.  My wellbeing is still being helped by the women’s cancer support group at a local hospice, and I’m also getting a great boost from physiotherapy.  The only down side is t…[Read more]

]]> 515dbb9a6b5a040d1d62c5e4de97291c annkhoward replied to the topic Curcumin case report in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-case-report/page/2/#post-135159 Tue, 26 Sep 2017 08:48:19 +0100 Thanks for your response, Mike.  Sorry to hear about the hep c, something I’m ill-informed about.  I’ll read your post more carefully later on, as I’m just off to Bart’s for my regular pre-clinic blood tests. Not optimistic about results this month as I’m still recovering from chest infection/antibiotics, but expect to be back on track shortly a…[Read more]

]]> da9906307f429bee6c1d433728ec97d8 annkhoward replied to the topic Curcumin case report in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-case-report/#post-134830 Wed, 06 Sep 2017 11:46:15 +0100 Update on progress with curcumin: my last blood tests showed that I’m on a stable remission, so the consultant extended the gap between appointments to 7 weeks (previously monthly).  However, after trying a different source of curcumin (‘Curcusorb’), which claims to improve the rate of absorption, I started to suffer severe diarrhoea.  I’ve been l…[Read more]

]]> 89930412c8f9684bbb0dc94f0ab1da38 annkhoward replied to the topic Curcumin case report in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-case-report/#post-134610 Sun, 13 Aug 2017 09:53:44 +0100 I’ve read lots of your posts with great interest.  Who was worried about how to get her husband to take his meds?  The results I mentioned were in response to a very low dose of curcumin (1 50mg pill daily) in the form of Thisylin as sold by Holland and Barrett, and I haven’t noticed any side effects; I am currently on NO treatment other than t…[Read more]

]]> 98cfcdc672f157ed248ad2feb8b66974 annkhoward replied to the topic Curcumin case report in the forum Treatment https://www.myeloma.org.uk/forums/topic/curcumin-case-report/#post-134516 Mon, 07 Aug 2017 11:42:41 +0100 Hi Mike – I thought you might like to know that after 8 cycles  Velcade/dex in 2015, followed by 7 1/2 months break from treatment, then CDT I was not feeling too good, so the ‘T’ was dropped and a I had a couple of cycles of just the C&D.  It was at this point I heard the Food Programme and mentioned it to my consultant.  We agreed that a da…[Read more]

]]> be63e3b438d1116b455bba9d5c85d76a annkhoward became a registered member https://forum.myeloma.org.uk/activity/p/47875/ Thu, 15 Dec 2016 11:40:18 +0000 0