annlynn

  • annlynn started the topic ferreting levels in the forum General 9 years, 3 months ago

    can anyone on the forum tell me. have they ever had low levels of ferriten .now got to have colonoscopy feeling. fed up

  • annlynn replied to the topic Just Starting… in the forum Newcomers 9 years, 3 months ago

    hy peter. sorry you had to join the forum in the first place but you will find lots of usefull bits on it . i like yourself. had cdt which is similare just not the velcade all these treatments are similar for side effects. fatique. shakey feeling. breathlessness i didnt drive while on the treatment because of them. but it gets better i hadd…[Read more]

  • annlynn replied to the topic Stem Cell treatment in the forum Treatment 9 years, 3 months ago

    hy karen. i had my transplant last year harvested on 31 july transplant 12 august. A hard 17 days but worth it. ive been in remmision since and like lots of us on this forum im enjoying life again and enjoying the simple pleasures life brings family. good friends nice wine. ha ha .keep strong during the process take a notebook with you and on…[Read more]

  • morning richard i so agree im a year in remmision enjoying all the good things in life sometimes the simple things like you say our family values are so reasessed i olso. cant worry. about next monyh or next. year. im. livving. verry much in the here and now simple things like a walk along the beach at south shields or a lunch in the boathouse…[Read more]

  • annlynn replied to the topic Hi in the forum Newcomers 9 years, 4 months ago

    hy bijou. i like yourself. waited a while going through the whole process of misdiagnosis till 2brokeb vertebra showed up and the inevitable myeloma diagnoses . That was jan 2014 since then. cdt and a stem cell transplant in august 2014 in the freeman newcastle im in remmision and like most people on this forum. live my life to the full.…[Read more]

  • annlynn replied to the topic GRAVIOLA (Soursop) in the forum Treatment 9 years, 4 months ago

    i read your post with intrest but. please be aware of so called wonder drugs as there arnt any. we would all be buying. ebay miracles

  • Thanks for that at least I know it’s not just me it’s the tears that’s the worst I cry for England at the minute never mind just want to get to were you are hopefully. I watch your posts with interest thank you x

  • Steriod come down please tell me everyone feels this rubbish 2day after steroids everything seems wrong could fight with a fly  and feel week as a kitten sure it passes but of the best way to feel on a sat hanging on to the fact 9treatments down 9to go  love to all

  • That was supposed to say Vickie also  and sect and doable sorry. It is early no sleep on dex ann x

  • Morning  very interested in this thread  but couldn’t. follow it yesterday bad day!!! I’m happy with my treatment 7weeks of CDT which I think is the normal start all was well till a couple of days ago and back pain started up again so I’m in panic mode  is it just a little bone pain or something more ? I wish we could all sit around and talk pr…[Read more]

  • annlynn posted a new activity comment 10 years, 8 months ago

    People like you are giving me so much inspiration at this time thought Is as doing w e ‘ll 6weeks in to chemo but back pain and a bit of a flu bug knocking me b back a bit today forgot how bad the back was ha x x

  • annlynn posted a new activity comment 10 years, 8 months ago

    Sorry love this is a scary road were all on and no it’s not vain it’s the first thing I thought how bad is that!! Unfortunately you will but get yourself on to hot hair treat yo u self to two lovely wigs there’s some lovely ones it will give you the confidence to face the world I’m gonna get a racing h electric Welsh one for a new look and a…[Read more]

  • annlynn posted a new activity comment 10 years, 8 months ago

    Sorry love this is a scary road were all on and no it’s not vain it’s the first thing I thought how bad is that!! Unfortunately you will but get yourself on to hot hair treat yo u self to two lovely wigs there’s some lovely ones it will give you the confidence to face the world I’m gonna get a racing h electric Welsh one for a new look and a…[Read more]

  • Thank you john I got it wrong  hope this works  diagnosed Jan now on the scary CDT coping I think ha proteins down from 16 to8 in the first six weeks so keeping positive. Love to read the lovely pops posts from the longer  term members of this  lovely group. All though non of us want to be in it  bit distressed yesterday at a couple of posts so h…[Read more]

  • Hello everyone new to this. So here with me  Just on week 7 CDT like all newcomers bit scared but feeling positive due to so many of you so thanks for that  not so keen on the talk of ending life and no future thread  always had the attitude that life is a gift so cherished it and I have a husband and children  so giving in isn’t an option  so…[Read more]

  • annlynn posted an update 10 years, 8 months ago

    Good morning