https://forum.myeloma.org.uk/members/annlynn/activity/ Activity feed for annlynn. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 21ce48be0be101180233d03fa83fa7d7 https://www.myeloma.org.uk/forums/topic/recently-diagnosed-multiple-myeloma/#post-137114 Tue, 13 Feb 2018 13:50:30 +0000 hydrogen there last post is right you need to speak to myeloma help line it is no curable so better to realise that from the beginning but TREATABLE !!!! if mum can come to the UK and is a British citizen I would imagined would be seen in a British hospital. good luck  and it’s probably a stem cell transplant she might need xxx ann lynne

]]> 2711b29e697e376a8f2bb58ba9e56634 https://www.myeloma.org.uk/forums/topic/father-with-multiple-myeloma/#post-137100 Sun, 11 Feb 2018 18:09:22 +0000 Sorry love having a toxic relationship with your father must be very difficult  maybe just checking on him from time to time might have to be enough. it seems as if he brings you both down and th as not good for both of you  take care  my thoughts are with you and your sister xx

]]> 8e796f212e0db3049cde919d791bfa0a https://www.myeloma.org.uk/forums/topic/father-with-multiple-myeloma/#post-137096 Sun, 11 Feb 2018 10:44:10 +0000 In response to your post I feel what also must be said the people who post don’t tend to think about how our lives will end or our loved ones  we are a group of people all in someway affected by this awfully disease but we focus very much on how we live and that is our priority . think positive for your dad .As the.last post  said  treatment  mak…[Read more]

]]> a38e81812304841a9d6cdc330b312419 https://www.myeloma.org.uk/forums/topic/2nd-sct-how-long-did-everyone-stay-in-hospital/#post-136319 Sun, 03 Dec 2017 19:48:49 +0000 love to check in to myeloma uk  now and then missing a few faces how is helen  how is andy how is tom I haven’t got a clue about Facebook so I’m struggling  is Rebecca doing ok hope so  and when I first joined I  enjoyed Scotty hawkers posts please if anyone knows how these people are doing let me know xxx

]]> 43b3886cd007e245190d14f8776e4363 https://www.myeloma.org.uk/forums/topic/hair-thinning/#post-136314 Sun, 03 Dec 2017 14:58:07 +0000 ah sorry stem cell transplant were your cells are taken then frozen  your given high dose chemo then your cells get put back in xxx annlynne

]]> 73ea75640988336c50a43254a3005336 https://www.myeloma.org.uk/forums/topic/hair-thinning/#post-136312 Sun, 03 Dec 2017 12:17:05 +0000 morning yes I had thinning of hair after treatment   came back quickly  but still coloured it sect haven’t got much now after my second SCT but think it’ll be back in fully by Feb.  xxx annlynne

]]> 4fbb670f43a65fad1b5fbef4aae4df8a https://www.myeloma.org.uk/forums/topic/no-sense-of-smell/#post-135995 Fri, 17 Nov 2017 14:02:35 +0000 hy  yes my second transplant  was June and I have lost my sense of smell also  don’t think it happened with my first one   most annoying got lovely gift of perfume  can’t smell a thing  but to be fair if that’s what it takes   to kill these troublesome cells then so be it x. annlynne

]]> 10afe567730c0b8f4c07ba3aeb74ce57 https://www.myeloma.org.uk/forums/topic/news-about-wendy-duffield/#post-135594 Wed, 18 Oct 2017 19:48:59 +0100 hello jet I followed your posts  while I followed Deborah  I wAs transplant same time I hold on to you silly I know but I need to hope and you give me that  take care hang on in ,,

]]> 14ad5aff9595597d6e862a8abd3a02eb https://www.myeloma.org.uk/forums/topic/the-best-hospital-to-treat-myeloma/#post-135232 Wed, 27 Sep 2017 15:25:11 +0100 what exactly is wrong with his treatment ? does dad have a myeloma specialist or just heamotology consultant ? and were are you based ?? I live the north east  so my care is divided between my local hospital and my stem cell transplants were in the fantastic Freeman hospital  and professor jackson . annlynne

]]> dabd5226f1850f1a645bcbe6867f4787 https://www.myeloma.org.uk/forums/topic/hair-loss-2/#post-135124 Fri, 22 Sep 2017 13:07:49 +0100 denise  The harvest jabs are awful but worth the rotten feeling when you get a good harvest honestly . And as far as going to tenerife so soon  I had my transplant 6th June was in for 15long days newcastle freeman hospital  needed to get well quickly my daughter got married 1st September  and.  was determined to do her proud  !!! both her and m…[Read more]

]]> 4f0d8e630d0d89387361278b293e475a https://www.myeloma.org.uk/forums/topic/hair-loss-2/#post-135099 Thu, 21 Sep 2017 14:32:44 +0100 that was meant to say love my wigs now ha xx

]]> a9fb93c43289c7b2de295fffca27f809 https://www.myeloma.org.uk/forums/topic/hair-loss-2/#post-135098 Thu, 21 Sep 2017 14:31:14 +0100 well I’ve had two transplants first time august  hair was back in by end April and looked strong and great  y the time I went  to ascot in June   2014 this time my transplant was June  2017and its starting to grow now  I’m expecting a hair style and dye by Feb. hopefully.  love musings now though just been to tenerife for two weeks wore a Rachel…[Read more]

]]> fd4b479508d54a94bf08ef5d832640d4 https://www.myeloma.org.uk/forums/topic/husband-newly-diganosed/#post-133683 Mon, 05 Jun 2017 19:27:47 +0100 sounds good love anything that helps keep strong hang on in both of you kick cancer back xxxannlynn

]]> f1b9bf1c8d68ddcba462d9c095381cea https://www.myeloma.org.uk/forums/topic/husband-newly-diganosed/#post-133681 Mon, 05 Jun 2017 15:03:26 +0100 hy derbeyshirelass. i agree with your husband i feel like a hobbit too lol would love to be more uptight is the spinal brace removable ?? annlynn

]]> 6f844cefbf827d4a3270a84817b4df5e https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/6/#post-133680 Mon, 05 Jun 2017 14:59:45 +0100 sorry that was for rob annlynn

]]> e62863e44559fbfc8a948cd910f90f33 https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/6/#post-133679 Mon, 05 Jun 2017 14:57:31 +0100 hy adrian hope all goes well i have to ring in morning to confirm bed but ive got a cough so blood test first fingers crossed. annlynn

]]> 3c997ee68bf1e6ee3b2b3e6e8fd71eb1 https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/5/#post-133589 Sun, 28 May 2017 10:12:23 +0100 good luck rob. im having second sct on 6th june no harvest needed because i got a lit the first time awfull pain though with the gfs but told the same as you the more pain the more stem cells we would get good luck annlynne

]]> f02c570edece2e3da27cd39386d824d7 https://www.myeloma.org.uk/forums/topic/new-to-the-forum-2/#post-133316 Mon, 08 May 2017 17:43:04 +0100 hy. Teresa’yes you will go through stages. of drug free times hopefully which is great . my thoughts on going through another SCT. were varied like childbirth i suppose you know whats coming but your also more prepared remission is diffrent for everyone as is response to treatment. this is a very individual disease. i tell myself everyday i…[Read more]

]]> 7d9fa03b9a4371f7aa2d79a79098eb57 https://www.myeloma.org.uk/forums/topic/new-to-the-forum-2/#post-133311 Mon, 08 May 2017 10:21:50 +0100 morning theresa. hope it helps to know most of us have been were your husband is now i was diagnosed jan2014 had 6cycles cdt then SCT in the august got over 2year remission have just finished 6cycles of vdc velcade. going to probley have another SCT soon there right to tell you how much better treatments are now theres always something coming…[Read more]

]]> 5808eb25ef718e5d9554ffde954f821d https://www.myeloma.org.uk/forums/topic/fruit-and-veg-after-stem-cell-transplant/#post-133186 Thu, 27 Apr 2017 08:12:34 +0100 morning all. feeling nervous at minute after remission of two years myeloma returned six sesions of VDC and feeling great but now there saying have another SCT ive got stem cells stored but oh gosh the decision has to be made do i go for it !!!and what happens if i dont going on holiday tommoro so ill have to do some thinking .what do those…[Read more]

]]> afbb5c94cd3d823af2e5933bf495b166 https://www.myeloma.org.uk/forums/topic/holidays-while-having-treatment/#post-132248 Sun, 12 Mar 2017 13:33:53 +0000 hy if you can fit a holiday around your treatment then do so i always run it passed my consultants. and shes happy if i a m feeling well.i had gap in velcade treatment off a week and enjoyed some sun in tenerife did us both the world of good came back ready to fight the fight xx. annlynne

]]> 023f5c381a41e76ad720114e251de0e4 https://www.myeloma.org.uk/forums/topic/relapse-what-next/#post-131946 Fri, 17 Feb 2017 19:37:29 +0000 hya mickack i also like you had transplant in 2014 but relapsed 2016 after two year remmision talk of me having second sct was nervous about doung it again but well well see i was freeman also i know i got through it but its hard so ill have to make a decision my daughter getts married in september so it wont be before that take care. annlynne

]]> 557be7e89799c02499192c7ddb208732 https://www.myeloma.org.uk/forums/topic/pps-going-up/#post-131762 Fri, 03 Feb 2017 08:29:31 +0000 yea spoke to consultant yesterday shes happy with me going she acually said. it would set me. up nicely for the next two !!! mind she also asked if id consider a second sct. now thats somethig ill have to think long and hard about xxxx annlynne

]]> 9862e39eb5394100fe3345df086cf9e4 https://www.myeloma.org.uk/forums/topic/pps-going-up/#post-131757 Thu, 02 Feb 2017 16:34:15 +0000 4 cycles down having a sun holiday sunday to tenerife then 2 more to do its been ok sleepless nights on steriod. days little bit nauseous but on the whole not bad. proteins. down from 25 to 6 already so all positive xxx ann lynne

]]> 21cc322e700217bf0c1b92a1c62f4084 https://www.myeloma.org.uk/forums/topic/pps-going-up/#post-131744 Wed, 01 Feb 2017 17:43:01 +0000 stay strong susie mine jumped up in october had four cycles of velcade two more to go give yourself a few days to be angry and upset then lookahead you will find your inerstrengh. good luck. annlynnexxx

]]> 151ce0e07261377c2690587e51ff7ad7 https://www.myeloma.org.uk/forums/topic/generic-drugs/#post-130973 Thu, 24 Nov 2016 15:11:02 +0000 wel here we go again 2nd line treatment started velcalade dex and chemo the steriods are the worse the ups the downs the tears but got to be done moving house at the same time would like to run c away till next week keep teling myself this will get me back in remmision soon so its worth it good luck to all on treatment and all starting new.…[Read more]

]]> 6980d16cd5497bc143badd4741d40f0b https://www.myeloma.org.uk/forums/topic/im-still-here/#post-130398 Wed, 09 Nov 2016 15:55:53 +0000 so lovely to hear your still up and running fighting the fight !! moving house and sepsis .BRAVE were downsizing to so much stuff ive just had 5days hospital to calcium to high blood to low home and sorted started 2line treatment yesterday VCD cause the beasts raising its head again . never mind lets get back on the. us xxxx annlynne best…[Read more]

]]> d2e7ab208bd3fd651d8ecc6e1c7cdf71 https://www.myeloma.org.uk/forums/topic/the-good-bits-and-the-bad-bits/#post-130068 Sat, 15 Oct 2016 20:29:43 +0100 on reflection rebecca belly dancing. i think night be my new think xx

]]> 76b693116a898ce7e6a5b74d2d12c32f https://www.myeloma.org.uk/forums/topic/the-good-bits-and-the-bad-bits/#post-130067 Sat, 15 Oct 2016 16:00:29 +0100 as always a lovely reasuring post thanks rebecca had a night in hospitall two pints blood feel much better xxthanks

]]> 1d710feb0836f0cf007bb5cc4c82ee73 https://www.myeloma.org.uk/forums/topic/the-good-bits-and-the-bad-bits/ Thu, 13 Oct 2016 15:41:17 +0100 Why oh Why is it that we get one thing sorted then something else rears its ugly head ..Had to have the dreaded camera yesterday because red bloods keep dipping luckily after working myself in to a frenzy all is well healthy happy bowel !!!!! glad something is lol. still breathless and back pain so what:) now ????? well thats my little moan…[Read more]

]]> 39a7447a6de131487d519a60234fe33f https://www.myeloma.org.uk/forums/topic/velcade-decision-time/#post-129638 Tue, 20 Sep 2016 18:38:52 +0100 so sorry for theway things have progressed for you i have had six months cdt treatment then stem cell transplant twoo year ago so in remmission at the minute i havent had half the treatment that you have had i hope rebbeca from this forum picks up your post she is a insperation to me and very knowledgeable about. mm. good luck . annlynne

]]> 83d47731578cd6aa52156b6a854365ff https://www.myeloma.org.uk/forums/topic/started-cycle-34-of-pom-dex/#post-129412 Mon, 12 Sep 2016 09:54:29 +0100 nothing to do with myeloma andy but is the weather in greece still good end of september do you know .Never been to Greece just Rhodes a long time ago but fancy it instead of tenerife x. annlynne

]]> 331ad37f4ae07a961cd4416c0985c0c7 https://www.myeloma.org.uk/forums/topic/started-cycle-34-of-pom-dex/#post-129406 Sun, 11 Sep 2016 15:54:06 +0100 Hope you got. to. greece andy and enjoyed every minute of it. im looking. for something for. early october. hopefully get. my. back. problem sorted. f irst best wishes annlynne

]]> 0c7d0e3b9d55231f945c2b155051bd13 https://www.myeloma.org.uk/forums/topic/started-cycle-34-of-pom-dex/#post-129405 Sun, 11 Sep 2016 15:51:33 +0100 hy mavis and andy long time since i saw a post from either of you ! pleased your still holidaying andy . just picked up on your post mavis about zometa and back pain. i was tolld last month protiens rising abet slowley. but still rising then this last two weeks. my. back pain is. back with a vengence right. hip and left upper back especialy if…[Read more]

]]> d1600fbaa8a14e59c2be5c77833e072a https://www.myeloma.org.uk/forums/topic/sct-not-good-started-new-trial-drug-ixazomib/#post-128852 Tue, 19 Jul 2016 20:57:22 +0100 we must stay optimistic only way im. Aware its not curable but treatable treatemts changing weekly. hang on in everybody. xx

]]> 7c65f51d58899cd51210ad335abb6e9f https://www.myeloma.org.uk/forums/topic/fought-until-the-very-end/#post-128848 Tue, 19 Jul 2016 09:56:45 +0100 so very very sorry for your loss we hear of lots of people who have long remmisions but we sometimes forget the people with myeloma who dont get the luxury of time. my thoughts are with you xx ann lynne

]]> 12506598022e3fe06f120883883b1c4f https://www.myeloma.org.uk/forums/topic/holidays-2/#post-128608 Tue, 28 Jun 2016 09:57:07 +0100 hy susie. ive. had many. holidays. during. my journey but usually planned them to coincide. with the end of. treatment i do know people who have had there medication. with them. and. conti ued with it. it will probably depend. on. were your. traveling. to and how well you ceel on. treatment. good.luck. annlynne

]]> 81f03a453a0ccaa4105b319c4d5d8d09 https://www.myeloma.org.uk/forums/topic/symptom-free-for-14-years-after-donor-allo-transplant/#post-128589 Mon, 27 Jun 2016 16:41:23 +0100 what a brave lady you are to have lived with all of this for so long but also very lucky that your husband has survived so much !!!! There is no preventive drug. justdrugs to keep our awfull cancer at bay. for as long. as we can most people on this. site have had SCT. but a. few. have had. donner transplants i dont know much about. those ones…[Read more]

]]> ff3828d0ced071db613a3ab0e7eaa034 https://www.myeloma.org.uk/forums/topic/stem-cell-transplant-share-your-experience/#post-128513 Sat, 25 Jun 2016 20:05:57 +0100 hello love. im like most people on this site si x months chemo. then sct in the freeman seventeen days. awful in some ways but well worth it. imnow. nearly. two year remmision a d. so happyto be here and still doing ok. ye. i. had to retire work and i miss it ii was a court usher for many years but. i. coud t be on my feet all day. i have.…[Read more]

]]> 7498b5c67dbdf5c3bc0f88354a82cb2d https://www.myeloma.org.uk/forums/topic/last-nights-t-v/ Thu, 02 Jun 2016 14:31:46 +0100 Did anyone watch last nights programe about cancer. im still not sure if i wished i haddened watch it. or not cryed my eyes out for that poor womens children makes it all to real ann

]]> 4e309bc3cd79eef95258a327ea79e802 https://www.myeloma.org.uk/forums/topic/treatment-4/#post-128293 Tue, 31 May 2016 10:17:56 +0100 just read your post david i will definitely be watching that. thanks. ann

]]> aa0e580ef2e726150a7c7f42137cb179 https://www.myeloma.org.uk/forums/topic/i-need-to-know-about-the-end/#post-128182 Mon, 30 May 2016 13:46:06 +0100 ah bless you this is a difficult one i think you really should speak to one of the great nurses on this site they will be able to answer your questions and maybe help with your fears i am told that quite often it is the inability to fight of infection that is how people often loose their fight. but speak to the trained nurses for proper sound…[Read more]

]]> bddaddb9d85951ed5a60bf8f4a8125cd https://www.myeloma.org.uk/forums/topic/treatment-4/#post-128158 Mon, 30 May 2016 11:18:37 +0100 morning jan …My experience was similar to David s. i didnt have a hickman line if your veins are fairly good tgey dont always use one . A district nurse poped in for five days with injections to boost stem cells day five was the worste but when my husband rang to tell consultant how bad my pain was she replied with t h ats good tel ann to hang…[Read more]

]]> d52cf57eeb4616ef130ae72db77144ed https://www.myeloma.org.uk/forums/topic/multiple-myeloma-taking-long-time-time-for-treatment/#post-128134 Fri, 27 May 2016 15:33:24 +0100 sorry. ;;;Strong Brave Women ;;; beter get it right .x ann

]]> da4e77b9590d7f0de547e06b300e8527 https://www.myeloma.org.uk/forums/topic/multiple-myeloma-taking-long-time-time-for-treatment/#post-128133 Fri, 27 May 2016 15:28:09 +0100 hello chrissie. .welcome to the group none of us want to be part of. but in lots of ways this group can restore your sanity when no one else understands your fears and worrys .so alwYs glad of it . Iwas lucky even though i had been back and forth with bad back pain for months when the penny started to drop i was dealt with in the two week rule.…[Read more]

]]> 3295a4b6eb650cb7dd87c6b5daf3103b https://www.myeloma.org.uk/forums/topic/need-to-know-but-scared-to-know/#post-128128 Fri, 27 May 2016 08:42:27 +0100 well. i went to see consultant with. ;; i am a strong brave woman ;; ringing in my ears thank you Rebecca’s daughter ha ha. it really helped i realised again that what ever gets thrown at me i will cope and for as long as i can to quote the wonderfull gloria. I WILL SURVIVE. anyway the upshot was the xrays id had done werent back so much for…[Read more]

]]> 5c072c9eec46fccf5e6814c7a481dbe0 https://www.myeloma.org.uk/forums/topic/need-to-know-but-scared-to-know/ Wed, 25 May 2016 15:01:42 +0100 affternoon all .. ive been doing so well been in remmision since august 2014. even three weeks ago consultant happy with bloods protiens. minimal all well. but pains in rib cage are started. three four weeks ago got a lot worse a week ago so xrayed on monday and seeing. consultant on thursday. hoping and praying its a fractured rib or…[Read more]

]]> 795095b2ef2ae2aa1e967ad942d09bd2 https://www.myeloma.org.uk/forums/topic/cycle-31-but-will-there-be-many-more/#post-128045 Mon, 23 May 2016 10:50:02 +0100 you have a brilliant time enjoy the sun and the odd cheeky beverage and deal with proteins rising or not as the case may be . silly though it sounds your my inspiration and im sure im not the only one who thinks that so enjoy best wishes. annlynne x

]]> ea840794734231b24c14740b69b2a661 https://www.myeloma.org.uk/forums/topic/new-member-3/#post-127928 Sun, 15 May 2016 18:11:06 +0100 sorry to join your thread here but im not sure if you realize that Myeloma is difficult to diagnose we are nearly all in a position were nback pain was a major problem before we were officialy diagnosed . it is no ones fault and tgere iz no point talking about sueing anyone. you will find during this journey you will be very gratefull to the NHS…[Read more]

]]> 9f1eb22f6387e4d08399c78af6e8bf8c https://www.myeloma.org.uk/forums/topic/unwanted-posts/ Thu, 12 May 2016 07:19:08 +0100 please can someone get rid off these posts selling illiagle drugs ect they were a little troublesome at one time now they are totally out of hand. x ann

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