hydrogen there last post is right you need to speak to myeloma help line it is no curable so better to realise that from the beginning but TREATABLE !!!! if mum can come to the UK and is a British citizen I would imagined would be seen in a British hospital. good luck and it’s probably a stem cell transplant she might need xxx ann lynne
Sorry love having a toxic relationship with your father must be very difficult maybe just checking on him from time to time might have to be enough. it seems as if he brings you both down and th as not good for both of you take care my thoughts are with you and your sister xx
In response to your post I feel what also must be said the people who post don’t tend to think about how our lives will end or our loved ones we are a group of people all in someway affected by this awfully disease but we focus very much on how we live and that is our priority . think positive for your dad .As the.last post said treatment makes a big difference to us all so onward and upward .going luck to him xx
love to check in to myeloma uk now and then missing a few faces how is helen how is andy how is tom I haven’t got a clue about Facebook so I’m struggling is Rebecca doing ok hope so and when I first joined I enjoyed Scotty hawkers posts please if anyone knows how these people are doing let me know xxx
morning yes I had thinning of hair after treatment came back quickly but still coloured it sect haven’t got much now after my second SCT but think it’ll be back in fully by Feb. xxx annlynne
hy yes my second transplant was June and I have lost my sense of smell also don’t think it happened with my first one most annoying got lovely gift of perfume can’t smell a thing but to be fair if that’s what it takes to kill these troublesome cells then so be it x. annlynne
hello jet I followed your posts while I followed Deborah I wAs transplant same time I hold on to you silly I know but I need to hope and you give me that take care hang on in ,,
what exactly is wrong with his treatment ? does dad have a myeloma specialist or just heamotology consultant ? and were are you based ?? I live the north east so my care is divided between my local hospital and my stem cell transplants were in the fantastic Freeman hospital and professor jackson . annlynne
denise The harvest jabs are awful but worth the rotten feeling when you get a good harvest honestly . And as far as going to tenerife so soon I had my transplant 6th June was in for 15long days newcastle freeman hospital needed to get well quickly my daughter got married 1st September and. was determined to do her proud !!! both her and my son and of course my husband have been my rock during my myeloma journey.. I try to get away as long as I feel well only because this illness is so unpredictable and it can knock us when we least expect it keep your chin up you’ll get there !!! best wishes annlynne
well I’ve had two transplants first time august hair was back in by end April and looked strong and great y the time I went to ascot in June 2014 this time my transplant was June 2017and its starting to grow now I’m expecting a hair style and dye by Feb. hopefully. love musings now though just been to tenerife for two weeks wore a Rachel Welch one of one would ever know. good luck. xxx annlynne
