Myeloma Forum | annsharp | Activity https://forum.myeloma.org.uk/members/annsharp/activity/ Activity feed for annsharp. Sat, 11 Apr 2026 14:18:44 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 91557d5693b762b09a3962371ea84899 annsharp posted an update: My husband had to stop ixazomib in January 2019,after 23 […] https://forum.myeloma.org.uk/activity/p/136197/ Mon, 08 Jul 2019 16:53:13 +0100 My husband had to stop ixazomib in January 2019,after 23 sessions, when he had a fall and fractured his femur .He spent 8 weeks in total in hospital and it was decided not to continue with the ixazomib as he had suffered great pain in his hip and then the fracture whilst receiving it. The problem is he is diagnosed as IgG Kappa Oligosecretory…[Read more]

]]> 0 115a9527e0741cd51c5c49cdc96c2410 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/page/3/#post-137458 Fri, 23 Mar 2018 18:53:29 +0000 Hello

Good to hear latest news from both of you. My husbands news is that he completed 8 sessions of Ixa/Rev and Dex and is now on Ixa and Rev only to prolong remission. This month they have reduced the Ixa dose as he was having some side effects and it seems a bit better. He had complications last October and was very ill after the bone marrow…[Read more]

]]> 39d8acbe71c00fa75b66fed7ce6b4650 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/page/2/#post-135899 Sat, 11 Nov 2017 17:59:16 +0000 All We can say is that my husband has now had 8 sessions of this combination and has never had any side effects like yours.We go back next week for the results of a bone marrow biopsy (which has had other side effects but not related,I think) and will hear if he is to go onto a maintenance treatment. So fingers crossed for good results

Ann and Dave Sharp

]]> b78d0b71500d4cf17da71bebe7240037 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/page/2/#post-134476 Thu, 03 Aug 2017 08:25:47 +0100 Dear Teresa

Dave is now on his 7th cycle and has one more to go as far as we know. The consultant says it is going well but I think it could progress further so we will just have to wait and see

All the best

Ann

 

]]> 2efb21506a3eb6ceb54e20de5f0cbbcf annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/page/2/#post-134473 Wed, 02 Aug 2017 16:30:34 +0100 Dear Teresa

Sorry for the delay in replying but we have been at the hospital quite a lot of the day (Not haemotology but cardiology, another one of my husband ailments) He,(also Dave) takes the Ninlaro as soon as he wakes up, as there are strict instructions about not eating immediately. The first time he took it he was violently sick a couple of…[Read more]

]]> 414a81d061ec74c01b9365db719104f8 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/#post-134415 Thu, 27 Jul 2017 15:27:03 +0100 Dear Michael,

Sorry to hear you have been told this. We haven’t heard about it. In fact we went to the hospital this morning and have just been given the medication for my husbands 7th session of the triple treatment so hope you may be able to get the decision reversed

All best wishes

Ann

]]> 9dddbb3cb80d864e488b876fe53b93e3 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/#post-134396 Wed, 26 Jul 2017 15:49:14 +0100 Hello Teresa

Fortunately my husbands cough has mostly gone now, been better for about 2 months. So we are not really sure if it was caused by the treatment or not. The consultant agreed it was possibly a side effect but we know of other people with pertsistent coughs nothing to do with myeloma.

My husband will be starting his 7th session this…[Read more]

]]> 99b227fb4abd4c07c87ec436c880c1f0 annsharp replied to the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/#post-133656 Thu, 01 Jun 2017 16:09:51 +0100 Thanks for replies. My husband still has the cough and has just been given a second dose of antibiotics so we will see (and hope) Treatment otherwise doing well.

]]> 83cb4856ed71823ee4beb7539269a294 annsharp started the topic Side effects of Ninlaro(Ixazomib) in the forum Treatment https://www.myeloma.org.uk/forums/topic/side-effects-of-ninlaroixazomib/ Wed, 17 May 2017 15:41:54 +0100 My husband has been fortunate enough to go on the combination of Ninlaro/Revlimid and dexamethasone under the Compassionate Use Programme, which are all administered orally. Apart from being quite complicated to remember all the different combinations on so many different days so far he has had only one main problem and his myeloma is responding…[Read more]

]]> bc783a7baf807a3639e44e9c8247a6db annsharp became a registered member https://forum.myeloma.org.uk/activity/p/49669/ Sun, 14 May 2017 16:32:18 +0100 0