Hi,
I am new here; I’m 41 yrs with two kids aged 15 and 11 and was diagnosed last September on my birthday. My treatment hasn’t been straight forward due to other complications. Was initially on Cyclo,dex and Velcade but due to a reduced response was changed to thalidomide around Christmas. Due to increase in Light chains, thalidomide has now been stopped.
Due to funding issues, I have now been moved to the Macmillan Centre at UCL where hopefully I will be able to commence on Lenalomide with Dex. I will be having yet another muscle biopsy tomorrow….. and then following on from there proceed with the new treatment.
It has and is still difficult for me to come to terms with it; but I’m trying to take it on a daily basis.
