aurora

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  • #132342

    aurora
    Member

    I developed tinnitus when Thaladomide dose was increased. It stopped when I’d completed 4 cycles. Didn’t have any problems immediately post SCT but it’s come back again in the last 2-3 weeks. As I’m not on any treatment at the moment I am slightly confused with what’s caused it.

    I also developed  a numb lip during VDT treatment, but this also went when treatment stopped.

     

    #128398

    aurora
    Member

    Thanks Kempy for getting back. Chat rooms new to me as well.

    MM wasnt on my game plan when I retired in April! Have had radiotherapy to plasmacytoma on back which finished today! Have spent the last 5 weeks in hospital on bed rest as tumour close to spine. Finally going home in spinal brace Saturday.  It was all such a shock at the time. Life turned upside down , urgent  hospital  admission loads of tests then news I had MM. Then all that went with that in terms of a whole load of tablets and clexane injections. Paracetamol is usually my limit. Can’t wait to stop dexamethasone but sadly not for a while. Really helped with the pain though just hate being hyper all the time.

    Just waiting to see haematologist to discuss chemotherapy options.

    Good to know things balanced down the line

     

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