bajabell changed their profile picture 5 years, 5 months ago
bajabell replied to the topic Bone Marrow Transplant ( BMT ) Group in the forum Under 50s 7 years, 10 months ago
Just sent this email to Myeloma UK …….
Ref : Bone Marrow Group ( BMT Group )
Dear Sir / Madam,
Please could you tell me if it would be possible to add another group to the forum ???
I have posted in the Under 50’s group which is GREAT but I feel the need for another group for the small minority of people who have had a BMT.
There are so…[Read more]
bajabell replied to the topic Bone Marrow Transplant ( BMT ) Group in the forum Under 50s 7 years, 10 months ago
Just send this email to Myeloma UK …….
Ref : Bone Marrow Group ( BMT Group )
Dear Sir / Madam,
Please could you tell me if it would be possible to add another group to the forum ???
I have posted in the Under 50’s group which is GREAT but I feel the need for another group for the small minority of people who have had a BMT.
There are so…[Read more]
bajabell replied to the topic Bone Marrow Transplant ( BMT ) Group in the forum Under 50s 7 years, 10 months ago
How are you doing so far ???
Did you read some of my old posts !!!
Very good to hear from you ….. I think I will try and ask Myeloma UK if they will allow us our own BMT Group on the forum
All the Best,
Richard
bajabell started the topic Bone Marrow Transplant ( BMT ) Group in the forum Under 50s 7 years, 10 months ago
Hello under 50’s
Having had an BMT back in 2005 at the age of 45 I was recently reminded by the way of an article in the Telegraph that there are not many of us who go through this procedure.
I was wondering if it would be helpful to start a new GROUP for people who have had a BMT ???
If you have had a BMT and think that this type of…[Read more]
bajabell changed their profile picture 8 years, 11 months ago
bajabell replied to the topic 10 Years this Tuesday in the forum Under 50s 9 years, 5 months ago
Hi Charlie,
I did not have a auto first ……. What made me go for an Allo was that my sister was a 6 x 6 match for my bone marrow …… so just DUM LUCK really . The other factors were that I was YOUNG and well enough for the procedure and I had a great team of Doc’s at UCHL …… so it was then a matter risk assessment.
I figured that if I…[Read more]
bajabell started the topic 10 Years this Tuesday in the forum Under 50s 9 years, 6 months ago
Hi to all,
Tomorrow May the 19th will be 10 years to the day from my Allo transplant ….. As mentioned before I was super lucky to have an older sister who was a 6 x 6 match for my bone marrow. She was able to provide two bags of her marrow over two days and effectively help me get 10 years further down the road.
To everyone out there in the…[Read more]
bajabell replied to the topic 10 years and Counting …… Nearly !!! in the forum Under 50s 10 years ago
Thank you all for your response’s
1) Oct 3rd GRANT ….. In answer to ” how are my levels ” …… this is not easy form me to answer !!! ….. I get tested twice a year and have basic bloods and a FREE LIGHT CHAIN TEST which for my MM the main deal. This test looks for a protein spike, no spike is good meaning there is no detectable MM …… so…[Read more]
bajabell replied to the topic 10 years and Counting …… Nearly !!! in the forum Under 50s 10 years, 5 months ago
Hi Majic30.
Firstly my advice is to talk with your Doctor / Specialist and ask these questions to get the professional side of things.
The basic Transplant options are:
A) Autologous stem cell transplants (autografts) refer to stem cells that are collected from an individual and given back to that same individual. Most stem cell transplants in…[Read more]
bajabell replied to the topic 10 years and Counting …… Nearly !!! in the forum Under 50s 10 years, 6 months ago
Firstly ….. Julie, thank you for your good wishes ….. the same back to you, good luck and yes it is good to be off drugs.
Hi Pepita ….. Please do not be too “terrified” , it really is not that bad either for the Central Line or your transplant. I absolutely realize it is all new and distressing but be assured that you have youth on your…[Read more]
bajabell started the topic 10 years and Counting …… Nearly !!! in the forum Under 50s 10 years, 6 months ago
Hello to All under 50’s ……
My name is Richard Bell age 54. I just wanted to give some good news and hope to any younger MM patients ……. a very brief description below.
I was diagnosed 10 years ago this coming September at the age of 44 and like most people had not heard of MM. I had a tumor in my spine which after several months of pain…[Read more]
