Just sent this email to Myeloma UK …….
Ref : Bone Marrow Group ( BMT Group )

Dear Sir / Madam,

Please could you tell me if it would be possible to add another group to the forum ???

I have posted in the Under 50’s group which is GREAT but I feel the need for another group for the small minority of people who have had a BMT.
There are so…[Read more]

Just send this email to Myeloma UK …….
Ref : Bone Marrow Group ( BMT Group )

Dear Sir / Madam,

Please could you tell me if it would be possible to add another group to the forum ???

I have posted in the Under 50’s group which is GREAT but I feel the need for another group for the small minority of people who have had a BMT.
There are so…[Read more]

How are you doing so far ???

Did you read some of my old posts !!!

Very good to hear from you ….. I think I will try and ask Myeloma UK if they will allow us our own BMT Group on the forum

All the Best,
Richard

Hi Charlie,

I did not have a auto first ……. What made me go for an Allo was that my sister was a 6 x 6 match for my bone marrow …… so just DUM LUCK really . The other factors were that I was YOUNG and well enough for the procedure and I had a great team of Doc’s at UCHL …… so it was then a matter risk assessment.

I figured that if I…[Read more]

Thank you all for your response’s

1) Oct 3rd GRANT ….. In answer to ” how are my levels ” …… this is not easy form me to answer !!! ….. I get tested twice a year and have basic bloods and a FREE LIGHT CHAIN TEST which for my MM the main deal. This test looks for a protein spike, no spike is good meaning there is no detectable MM …… so…[Read more]

Hi Majic30.

Firstly my advice is to talk with your Doctor / Specialist and ask these questions to get the professional side of things.

The basic Transplant options are:

A) Autologous stem cell transplants (autografts) refer to stem cells that are collected from an individual and given back to that same individual. Most stem cell transplants in…[Read more]

Firstly ….. Julie, thank you for your good wishes ….. the same back to you, good luck and yes it is good to be off drugs.

Hi Pepita ….. Please do not be too “terrified” , it really is not that bad either for the Central Line or your transplant. I absolutely realize it is all new and distressing but be assured that you have youth on your…[Read more]