bandityoga replied to the topic MM & AL Amyloidosis…..Stem Cell Transplant info in the forum Related conditions 11 years, 7 months ago
Hi Clara
Do you live in Scotland?
Good luck with your dad's SCT
Maureen
bandityoga started the topic Treatment Delayed. in the forum Treatment 11 years, 7 months ago
Hi all
The consultants have delayed Ian's treatment to let the bed sore heal. He is now feeling a lot better and the infection seems to have gone. I was furious and complained to the Mcmillan nurse that Ian had not been moved in the night (should be every 3 hours) and that he was on his back where the bed sore is when I visited on Saturday.…[Read more]
bandityoga replied to the topic Velcade here I come in the forum Treatment 11 years, 7 months ago
Hi David
So sorry to hear that you have relapsed. Hope all goes well on the velcade.
Maureen
bandityoga replied to the topic Two and a half years in the forum General 11 years, 7 months ago
Hi Eve
Hope you and Slim are coping. It must be hard when the myeloma rears it's ugly head again. How long is it since Slim had his SCT? It is a good idea to keep a diary.How about going for councelling? I have to see the same councellor as Ian this month. I will pray for you both.
Ian has an infection in his bed sore and is on…[Read more]
bandityoga replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi Eve
Ian first went to the doctor in April last year with backache and in his records he said to the gp that he thought it was something sinister. The gp is quoted as trying to assure him it wasn't. Went back several times and was given pain killers each time. By June it wasn't getting any better and he asked to be referred to a specialist.…[Read more]
bandityoga replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi Nerys
My husband was daignosed with mm in late October. He had been suffering with backache since April and was sent to a specialist in June who sent him for physio. We had to go private for an mri scan and that was when a tumour on his spine was detected and mm was diagnosed. Like your mum, my husband's legs started to wobble and he had…[Read more]
bandityoga replied to the topic New directions in myeloma research in the forum General 11 years, 8 months ago
Good to know that a cure is being sought.
Donations are needed to keep up the good work.
Maureen
bandityoga replied to the topic At a low point in the forum Carers 11 years, 8 months ago
Hi Eva
Hope you are well and look forward to hearing from you when you return.
Ian has an infection in his bed sore. I am so frightened he will get sepsis again.
Maureen x
bandityoga replied to the topic At a low point in the forum Carers 11 years, 8 months ago
Hi
My husband Ian is still in hospital and we don't know if he will be able to walk or be in a wheelchair. He was 57 last week.I too feel like I have no life. I travel 20 miles back and forth to the hospital each day, and on at least 3 days, twice.
I do pilates on a Thursday morning which is a release for me and sometimes a go for a…[Read more]
bandityoga replied to the topic Light chains down in the forum Treatment 11 years, 8 months ago
Thanks Vicki and Colin
I am now nagging Ian to do more Physio so he can get back on his feet and then home.
Maureen x
bandityoga replied to the topic Three monthly check-up in the forum General 11 years, 8 months ago
Hi you have given us hope for a future. Hope your house move goes well.
Maureen
bandityoga replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Eva
Sorry to hear that Slim's myeloma has returned. I hope they will find a cure for it soon as lots of research is being done.
I will have to cut down on my visits to the hospital to once a day on some of the days as it is very exhausting but Ian doesn't understand.
I'll say a prayer for Slim
Maureen x
bandityoga replied to the topic Full Remission in the forum Treatment 11 years, 8 months ago
Well done Peter, you must feel a great relief. Have that glass of champagne when your taste buds get back to normal. You deserve it.
Maureen
bandityoga started the topic Light chains down. in the forum Treatment 11 years, 8 months ago
Ian had good news for a change. His light chains are now down to 147 and parprotiens are 5. Now on day 13 of cycle 3 and coping well.
Maureen
bandityoga replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Eva
Ian's mum and dad who are in their 80's visit twice a week in the afternoon and some of his workmates usually go in once a week. It gives me a break from afternoon vists and I have more energy to visit at night. My sisters ar eno help. One hasn't spoken to me in 8 years and the other only sends text messages. I have good friends who…[Read more]
bandityoga replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Tom
Ian had as good a birthday as possible. I baked him a cake and bought him the series of the wire. He got nice face creams and lots of cards, including one from his work. His nickname was soapy as in oor wullie as he had curly hair and they designed a card with his name and a monkey on the front. He did laugh.
Thanks for your…[Read more]
bandityoga replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Eva
Ian's birthday went as well as can be expected. I baked him a cake and bought him the series of the wire on dvd. He also got nice face creams and lots of cards.
We had good news that his light chains are now down to 147 and paraprotiens are now 5 but his myeloma his mostly light chains.
He used to like playing games but has lost…[Read more]
bandityoga started the topic Ian's birthday and MRSA. in the forum General 11 years, 8 months ago
It's Ian's birthday tomorrow and we found out today that he has MRSA in his bed wound. He is not on antibiotics as it is confined to this area and he has not temperature. I am afraid he will contact sepsis but nurse assures me he will be well looked after and ops taken twice a day. They have also taken his blood to test for infection and if it…[Read more]
bandityoga replied to the topic Tenterhooks in the forum General 11 years, 8 months ago
Hi Dai
Hope you have managed to escape the lurgy. I have 2 small grandchildren and I stay away when they have the sniffles as I seem to pick up everything from them, but I love them to bits.
Maureen
bandityoga replied to the topic 3rd Cycle of CTD in the forum Treatment 11 years, 8 months ago
Thanks Tom
Hope we get good news about Ian's light chains next week. Bed sore now starting to heal.
Maureen