Hi Jo

Sounds like you had a good time' glad you enjoyed it. When the kids are happy makes the weather ok. Did you come home to good weather? I'm thinkinng of immigrating to England!!
Take care
Jean xx

Dai
Slims writing home about his HL,4 hour job,veins thinning as HL progressed,then getting it round a bend,head honcho called twice,Slim coming up looking like death warmed up,saying he will never never have that done again.( may be that,s why his HL is still in).
I think it does vary from patient to patient,but as Stephen has had one before…[Read more]

Tom
You do not need luck,I can see you standing there with a big red box in front of you.Got to give them an angle,EG terminal cancer,want to take the wife on holiday of a lifetime will donate some money to Myeloma uk for all the good work they do.Can I fill your CV in for you LOL:-P 😉 🙂
I forgot the best bit,good looking guy with a cheeky…[Read more]

Hi Helen
Just to save any mixup its not Kings I am talking about when I talk about 1 designated nurse.I am talking about the south east England corner,Margate,Canterbury and Ashford if the information I was given is correct they only now have ONE designated Myeloma Nurse,use to be 4 and because of cuts it,s down to one. Eve

Hi Eve
It is hard to believe that a place like kings does not have a designated trials nurse or liaison person to answer all your questions. You said I was in a privileged position here because I work in the hospital, but actually, I work in the university so whilst I understand the system I didn't know anyone in it until I got here, and I didn't…[Read more]

Hi Tina

A holiday is what you need away from the Myeloma Bubble,Lets hope for 10 days of sunshine and you coming back in the right frame of mind to tackle the next stage.love Eve

Hi Everyone
Amilea in UK first line treatment for people not on trials use to be CTD then SCT or not,then no maintenance!!!!,do not know if its changed but trial people had a lot more options this is why trials are best.

Helen it is finding out information that is my problem,I do try to do as much research as possible,as nice as the nurses are…[Read more]

Hi Vicki
I hope all goes well for Colin next week, the GCSF made me fell as though I'd been kicked in the chest by a horse sometimes, especially when rising from the sofa, 😛 But harvest was straight forward, then I took three weeks to feel well again. I had my transplant 15th- 17th August last year.
Stephen, you seem to have done remarkably…[Read more]

Hello Tom
I wish you all the luck in the world I am sure you will make it
love and ((hugs))
Jo x

dear Liz and Kev

what wonderful news a new granddaughter she will bring more light into your lives
Love Jo x

Hi Tina
Good to know things are progressing nicely, where are you off to on holiday? I hope the weather is good.
Love Helen

Hi All
I'm not sure there is anything else I can add to this debate, as Eve has said, I am in a different group to Dai in that I have had Revlimid as a newly diagnosed patient.
Much of the research into these drugs is new, ongoing and not yet quantified, some people relapse quickly and there is no way of knowing yet who those people are. There…[Read more]

Dear Mari
That is good news and the holiday is a lovely bonus, have a good rest and enjoy it.
Love Helen

Hi Andy

So glad to see thing are going looking up,I would go for all three big time, I know even without MM back problems in the low spine,cause a lot of problems so I hope this treatment does the job,and gives you some of your life back.

Hi Mari
Yes they do not hang round at Kings,Slim was due the same ,Hickman line day 1,then other events took over and he came out of hospital.

So glad you are managing that holiday,it will be the best thing in the world to build Stephen up ready for his SCT,and give you a well earned break before you start the next round.

A few months ago…[Read more]

Mari really good news – well done Steve. Have a brilliant break you both deserve it. Enjoy

Love jean xx

Hi Dai
Have a nice weekend,summer is suppose to be on it,s way;-)Eve

Hi Mike
Just a welcome to a exclusive club,be it that you are a patient carer family or friend.It is mind blowing when you are first told even if you are expecting it,I could tell you not to worry,but you will,your mind will still be awake in the early hours of the morning,but you will over come all this,and find out it,s not the end of the…[Read more]