How did you do that Tom,? Thqnk you And that was an early pint!
Love Helen

Hi Stephen

Found another song that is fitting,WE got to get out of this place,by the Animals,takes me back to my youth.Eve

Dear Dai
Hmm yes I read the email replies and was about to respond, but I too can only see them idividually, anyway, thanks for your very amusing reply;-) I'll hunt out the whoopee cushion, nice new photo by the way.
Vicki, Teresa, Tom, Ali, Jean and Eve, thanks for your kind words, I hope tomorrow is as straightforward!
I've only booked the…[Read more]

Hi Sue
I think you have to ask yourself if it had been your own consultant would you feel the same.If the answer is yes,then ask for a second opinion this is your right.!!!!
The consultant is not yours and may be did not feel comfortable having to tell you,it is a decision that is usually made after consulting other people,You need to talk to…[Read more]

Hi Keith
I think I have come out in sympathy,think there is a bug going round,thought i was getting better then went down again,doing my best to keep away from Slim
With both of us being ill,I feel quite vunerable,as not use to this,we are both walking round like two old codgers,moaning every step of the way,dehydration makes your bones ache…[Read more]

Hi Jen
if I am correct your Dad is on Velcade,There is a long list of side effects,so don,t worry to much,when he goes into clinic they usually real off a lot of questions,anything that is abnormal is looked at.
The Dose of Velcade can vary its usually decided by blood test,its a good thing as they check the bloods each time.If any of his levels…[Read more]

Hi Tina

Frank is on 2nd cycle Of CDT. He is worse on Mondays when he takes the Chemo and the Dex together. The Frank we know disappears and a short tempered Frank appears. I know what you mean About the burps he is plagued with them. We are now in the 12th day of 2nd cycle and we have a tired Frank back – with burps and all that it brings.…[Read more]

Hi Helen
Well done ! You had a productive day. I loved
the Bit "booked a holiday " where and when? Good on you!

Love Jean x

Hi Tina
Well i would agree with helen, if you are managing a Motor Home, thats good,Slim cannot manage ours.
As for the burping or hiccups,just keep explaining its because of the drugs people will understand,18 months and SCT Slim still hiccups like a gooden!!:-
P
You are an eager beaver!!!!,just look at it as part and parcel of the course.
Love Eve

Hi Pennie

I have to say I never fail to be amazed.
First as your brother has the knowledge let him help you,,he will be able to tick all the boxers,plus apply for disability blue badge.

It will be nothing like your wages,but you might be able to work from home,plus it will pay for some one to clean,and you can earn more money.
You and your…[Read more]

Helen

You did it.Eve

Hello Jen

good news about your dad lets hope this is the start of a better time for him give him my regards
Love JO X

Ta Da
🙂
I made it, back to work, tidied my desk, sharpened the pencils, had a coffee, told HR I was back, dished out the ink, rang ESA to say I was back to work, booked a holiday, met a few new people, got given a car parking space…. 😉
……. Then got sent home again!
I'm totally, completely and utterly whacked now, …..with a…[Read more]

Hi Tina
I was on revlimid, dex and cyclophos and took 4 – 5 weeks after it finished for all the effects to wear off, but I was pretty well back to normal then with much better energy levels even than I have now. They never wore off while I was on it. I'm on revlimid now, only as maintenance and some have come back again:-( Hope you are soon…[Read more]

Hi Dai
Well one time I would have just done as I have been told,I have had Slim in to hospital twice since he came out on the first on June,both times raised temp,plus visit to DVT clinic,his nuets and plates are still below normal ,so I think best save than be sorry.:-P
I was told if he is ever sick bring him in:-S ,well if i took him in every…[Read more]

Good one Min. Made me laugh but makes
Me think that someone has been in my house making notes!!!

Love Jean x

Good news on your dad Jen hope he goes from strength to strength. Hope boys start to feel better soon.

Take care
Jean x

Hi Teresa
Thanks for the message, yes tomorrow I go back, I'm looking forward to it, for the moment…….
It is still raining, we have had a family meal out tonight, normally this time of year we celebrate the summer birthdays outside a pub, tonight we were indoors with a roaring log fire! I've put the heating on for an hour when we got…[Read more]

Eve so glad your daughter enjoyed Wimbledom and winning a trip to the Bahamas – fantastic. Well done her. When will she be going ? She deserves a good break

Live Jean x