Hi Its only me,

What can I say,You new it was coming and I hope you were ready to let go.
It still comes with lots of emotions,relief you mum is no longer suffering but you have lost you mum,who was an important person in your life.

My condolences to your Dad sister and yourself,I wish you all well on the next stage of your journey,Love Eve

Thank you Elizabeth
Love Helen

Hi Sarah

It is a different ball game when its your choice,if chemo is refused then palliative care is next step,then it comes to hospice which has a certain policy concerning care.
IT sounds if Howard has chosen his path.
It must be awful for Gail,I can look at both sides and see merit in both.Eve

Hi Elizabeth
That is great news for you, carry on like that.
Love Helen

HeIlo Dia
I am not doing to badly but have a consultant app on monday so we will see I didnt really want to post after hearing about Bridget because her death upset me so much I had been in touch with her on E mail these last couple of years and felt I knew her quite well but she would not want us to give up so I will carry one:-(
Love Jo x

Dear Jean
I don't know about right hand or left hand here, but you do not seem to be getting the same sort of information that I do.
I'm a low secretor ( oligo secretory) but I had an IgA pp (paraprotein) level of 6 and a Lambda light chain reading of 700, Bmb showed 60% marrow involvement on day of diagnosis. After a month of therapy I had pp…[Read more]

Hi Keith
I've had a few mouth ulcers but not many, I can't use mouthwashes at all because they sting too much, so I just clean my teeth and rinse with cold water, extra strong minty toothpaste is unpleasant. My mouth feels as though I've just burnt it with too hot tea, so I have to be careful not to burn it if you get my meaning. I still find…[Read more]

Dia LOL still laughing,oops got to go the loo.Eve

Hi All
Can i put my two pence worth in!!!
I can not comment on the treatment because Slim has not had it, but and its a big whopping but.Slim had an anti sickness tablet that caused constipation.So much so .I ended up walking out of the hospital with the biggest carry bag of bowel stuff i have ever seen.
Movicol twice a day Lactulose three 5ml…[Read more]

Well boys as we've 'got down and dirty' and totally personal………;-) . I have noticed that there is a pattern, and here is where the diary comes in handy again to make notes! The first week is normal to diarrhoea, the second normal to bunged up and the third is daily fibre, prunes, figs, movecol, dynamite, calls to the CSN for extra…[Read more]

Dear Angie
It is so sad for you, I hope you were all there with her. My thoughts are with you
Love Helen

Hi Alethea
Welcome? Myeloma is a tough disease isn't it? It really messes with your head, but you do get there. It's all so intense at the beginning with the diagnosis and the treatment bombarded at you when you are still reeling with shock, especially mum as well.
Do get help, it is there and there are many here who will help if they can
Love…

Hi Tina
I'm still not back to work and it is over 10 months since my SCT, I was going back in February but got pneumonia, then last week I got gastroenteritis, now I'm aiming for next week on a phased return, if it doesn't work out I'll have to rethink. Whatever you decide, don't go back too soon, all the people at work soon forget what you've…[Read more]

Hi Dai
Mmmm yes never quite know what to expect until you get there, most unpleasant and unpredictable , almost disabling sometimes
Love Helen

Hello Dia
This is good news for me if this drug is in the velcade family it will be prccessed through the liver which is good for me as my kidneys will not take all kinds of other drugs:-)
Hope you are feeling well;-)
Love Jo

Hi Andy

Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]

Dai
I would do it now,but my dead mother in law use to tell people i started the G&T at 10am,but you have no excuse enjoy one then have a snooze,Bridget would be laughing at that, Eve

Hi Dai
Bridget amazed me,as I know from the amount of pain relieve she was on and still in pain,how hard it must have been for her,they gave her another hurdle to jump and she put her self forward.
She had the will to live,thinking always about her daughters and her mum,always there for them,Grandchildren as well,she has left her own goodness…[Read more]

Dear Dai

What a lovely thought for Bridget. I never thought I would cry over someone I never 'met'. Bridget was an inspiration to me through her posts not just in answering queries that I had but her posts to other people. Her family must be so proud of her as she was a truly wonderful person. She will be missed. Rest in peace dear…[Read more]