Hi Gill
I did not know what a banshee was either,heard the saying!!!!:-)made me laugh

Gill I know I am over the top when it comes to Slims eating,years ago he ate like a horse,but he is down to 61.8 k my daughters are all going on diets to stay below his weight.LOL.
For every ounce he looses I gain,I eat to keep him company,because eating is…[Read more]

Hi Andy

That is why I asked were you are having treatment!!!,At the end of the day how do you feel about your treatment,There are Trials going on in all the major hospitals.
If you put Trials in the search engine on here it will come up with all trials plus were they are,If you ask Dai he will tell you his experience of not having the best of…[Read more]

Hi Andy
I noticed you joined the forum in Feb this year,but started treatment in Oct 2011,I have followed your different treatments,I am just surprised they do not seem to give them much time to work,I say this because Slim started treatment in January 2011 and was still having chemo up to the Christmas2011.
It took a long time to get that stage…[Read more]

Hi Vicky

I think it is a man thing,but without meaning too you do as a carer tend to take over most things, It is there body. I suppose it,s just instincts to want to help and make them get better.
So he becomes the stubborn grumpy old man,and I become the nagging,fussing old lady.[it,s a very fine line]
Slim has an ally in Tom,but I think…[Read more]

Hi Gill and Wendy

I think it,s not until you start looking back,that you begin to wonder if you remember it as it was.!!!!
When Slim was in ITU they offer you a dairy that they will right for you,because you cannot remember anything about it,so you loose so many days.

Some nurses think its a good thing,that you have no memory of it.If you…[Read more]

Yippee
Tom roll out the vodka what wonderful news
Big (((Hugs)):-) 😀 😎 😉
Love Jo x

Dear Tom and Elaine

Absolutely the best news! Have a great alcohol free weekend >:-( (kidding) enjoy
Love jean x

Tom and Elaine
That,s smashing new for both of you,you both must be over the moon,with big smiles on your faces.
I hope you are going to treat the old woman to more than a drink!!!!,(I mean a night out,with all the trimmings) I could almost see what you were thinking then:-P

At least your holiday will be care free,and no hospital for…[Read more]

Tom
We went very early,in and out in no time,they will phone this afternoon,if treatment needed,but I think we have turned the corner.8-) 😀 🙂

Slim is not trying to rush his recovery,enjoyed being out to day,but knows he is trying to run before he can walk:-P

So with a little bit of luck it will be bloods only.Love Eve

Hi Mari
Yes to all your questions,the rooms are a bit smaller than Davidson wards.
Good tv,Internet connections £15 for the month,small fridge,There is even a little view over the roof tops if you have a room on the left,many just have brick walls,I worked it out to over 100 steps plus,over 1 mile walking.It,s the steps at the train stations I…[Read more]

Hi Dai

Now you know what his hospital is like:-P :'-( >:-(
1 hr to get there and park!!!we are like a piece of the furniture in the waiting room lol,
I watch all these new people starting treatment,and they just do not have a clue how much time they will spend in waiting rooms.
Its not the nurses fault they are just so over whelmed,some of…[Read more]

Hi Jen

Did you ask if your Dad had any tumour,s or lesions!!! this could be the pain,but chemo drugs should stop it,you do not say what pain relief your dad is on!!!or how much weight he has lost.
Slim could not pick up a carry bag with a few items in,
Jen it all takes time,they know if things are working by the blood results,and kappa light…[Read more]

Hi
Well Friday bloods,Monday bloods Tuesday Platelets early hours took Slim to hospital temp39.Kept in Let out Wednesday evening.Good News Neuts 3.5 Platelets 57. Day off today,back Friday for bloods.:-P
Seems he was constipated !!!,thought i was keeping a good eye on that one!!!,I think part of problem is spending so much time at hospital,there…[Read more]

Hello Mari

good luck to you and stephen I am sure it will ago ok so glad stephen is very positive I am sure it helps
Love Jo x

Hi Mari

Go on the holiday,and enjoy it,out of the Myeloma Bubble,between different things Slim and I never managed a holiday,and i truthfully feel a holiday would have been good and relaxed us before it all started.hindsight is a wonderful thing.If we new the future decisions would be easier.8-)

Second SCT you thought you would not be able…[Read more]

Lucky Elaine 🙂
Jean

Hi allison

You also have had a very rough time and hope that things can only get better. Welcome to our "family" (I'm sure you don't want to be here but they are a great bunch of people). If my hubby gets through CDT he will be having SCT.

My very best wishes to you
Jean x

Tom you do make me laugh. 😛 thanks. It must be bad as he's in bed and not watching football!

Ta love Jean x

Thanks Dai and David. Franks has been good getting through his water (or at least he tells me) he has also been able to have G & T's

Thanks again
Jean x

Hi Dai
No I don't have significant bone damage. In fact I have no back pain to speak of since my SCT. I don't remember all the questions I was asked but I don't recall that being specified, unless it was in the radiotherapy or operations section?
Love Helen