Hello Jean

How are you and Frank coping is it getting any better for him and you has it stopped raining in NI we have a fine day today for a change went for a little walk today got the kidney clinic tomorrow always a worry. Hoping to go to the IOW in a couple of weeks if all ok.
Love Jo x

Dear Judd
Welcome to this site
what an horrendous time you had I know the chemo will be difficult but neccessary can they do anything for your back I think when you feel a bit better there are certain operations you can have thank the Lord someone recognised your symptoms good luck with your treatment
Regards Jo x

i'm trying to post some photos and failing miserably:-(

I think you would be better putting your posting Off Topic as People on here are living with Cancer,not dying with it!!!!!!:-P

Hi Teresa

How are you coping ,this must be a very hard time for you,are you managing a little free time for yourself!!!!!
I take it you have told all the family the position now,and you and your girls are coming to terms with what is going to happen,but still looking forward,to the birth of your Grandchild.Also the walk down to the botton of…[Read more]

Hi Teresa,
Tomorrow! I will try and put new pic on, have to use mother ship computer as I don't know how to do it on very convenient iPad. Hope you are well.
Love Helen

Hi again Judd, in the patient services link on this page, in the bottom left corner is the section on current Myeloma trials, which talks about what is available to patients. There are a few people who have done this trial, I am on myeloma xi trial so haven't experienced this one myself
Take care
Helen

Dear Judd
What a terrible experience! This disease creeps up on people so silently and with little to show until things are going horribly wrong.
Welcome?? to the site. There are many here who will be able to hold your virtual hand and offer help and advice if you need it. Read the back posts and learn as much as possible about the disease and…[Read more]

Hi Judd
This is just a welcome to the site,I have read your posting and cannot help you much,Its my husband with Myeloma and he had the usual treatment of CTD then Velcade with DC which is part of Myeloma X1 trials.

May I suggest you get in touch with Ellen the nurse and she might be able to put you in touch with someone who goes to the same…[Read more]

Judd
What a terrible time you have been through and so young. I'm sorry to have to welcome you to the site but you are in the right place so WELCOME. Although I have been a member of the forum for many years -6 to be exact – hubby diaganosed early – he has just started treatment past two weeks CDT. So I'm not experienced to give a lot of advice…[Read more]

Thank you all
You have eased my mind,and my daughter tells me they will be able to take it out in Canterbury,so no long journey back to Kings.

I was worried about it coming out,as Slim had such a bad time of it going in,he said no way were they going to replace this one if it became infected,:-( It seems his vein thinned out and they had to…[Read more]

Hi Wendy

Well this has got me thinking,!!!
Slims was put in on the 24 April,then my |Grandson passed away,so he came out of hospital and was readmitted on the 13 may,and came out on the 1 of June.

Officially he is under Kings for 100 days but having bloods and platelets at local hospital.
We have been back to kings to see consultant,but…[Read more]

Hi Helen
For your husband it must be great,waking up to a different woman beside him every week:-)Eve
Bald dark grey then blonde LOL
I usually have my hair very short,because I do not like sitting in hair dresses,last time they just were too scared to cut enough off,so now with this wind i look if i have been dragged through a hedge…[Read more]

Ha ha Eve! You'll have to get your clippers at him in a few months then. >:-(
While i was away my hair was ok then seemed to suddenly grow lots.! I was looking like a poodle last week, the fine curls were just too grey and unmanageable, so a bit of bleach and toner yesterday, and a short choppy cut and here I am, a blonde:-) its strange to see,…[Read more]

Hi Helen
Are you going to post a picture,I think you will look good as a blond!!

Slim has lost his Denis Healy eye brows,and still has no hair to shave with,he says it,s coming back as bum fluff!!(I think that,s what he said:-P )

I must admit,looking forward to Slims hair coming back,he has always had a good head of straight hair,but I…[Read more]

Hi Well Friday was an easy day,bloods in the morning then waiting for the call to go back in for platelets.It never came,so rang up,Slims platelets have gone up to 26,still boarder line,but they decided platelets not needed.

Have another appointment on Monday,same again bloods,so we will see what results,that brings.

Can anyone tell me when…[Read more]

Hi Onlyme

As Tom said cat nap it does work,It is hard,and your Dad does not sound if he is coping well,The house can wait,i think you need to take your Dad on that walk with you,he is trying to be brave for all of you,you cannot help your mum much but you can help your Dad,come to terms with what is going on.

It is exhausting,but you will be…[Read more]

Dear Angie
This is the very hardest part of loving someone isn't it? As Tom has said, you who watch have to try to keep things together. I shall be thinking about you, hope your mum improves as the day wears on.
Love Helen

Well, I've been to the hairdresser again. First proper cut in a year, almost to the day. All poodle like curls consigned to the salon floor and very short 'do' again. Quite liberating. Only difference this time is that it's blonde:-) I've never been a blonde before so that's a bit of a novelty to get used to.
Still got horrible dry skin and lots…[Read more]