Dear Siobhan
I talked to your mum mostly in the early hours of the night, I'd just had my transplant and felt very dreadful and down. She was in a lot of pain I think but gave me that cosy feeling of not being alone, not being a burden. You are a lucky woman to have grown up in a home with such an altruistic, generous and kind mother. While I am…[Read more]

Siobhan

I am so sad about Bridget she was a great friend to me so brave and kind
one of the best may she rest in peace with the angels
Love Jo x

Hi Siobhan

My name is Eve,I left a massage for you on your mums facebook page,I kept looking out for your mum posting,because no matter how ill she felt she would always take time to reply to new posting.

She was a special lady and will be missed,as you say she is now out of so much pain,I am so glad her passing was peaceful,and hope all the…[Read more]

Hello Siobhan

I read onFB of the passing of your lovely mum. I was completely devastated as I was "talking" to her a few weeks ado. Like the others have said, I never had the pleasure of meeting your mum, but she was my friend and so vey helpful and supporting tome and us all even in her bad times. She had a great sense of humour and she wil…[Read more]

hello Roy
Ann sounds as if she is a very determined lady and very brave you must be so very proud of her
Jo x

I am so sorry to hear about Bridget, she was such a support to me in the dark hours
Helen

Hi Rachael

Its such a shock to the system, In many way,s your just glad you no what it is,we have all been there,if you keep reading the back post I am sure you will find lots of answers to you questions.

Only advice I can give you write you questions down before you see consultant,They see this thing every day and are so used to it,they…[Read more]

Rachael

Sorry that you have joined us but you are very welcome. You have come to the best place for support and information. I am new to the treatment aspect of this awful disease as my husband has just started first cycle of CDT, but if you have questions or worries there will be someone that can help.

I hope your mum does well on the…[Read more]

Devastated to hear the news of the passing of Bridget. Such a lovely lady who will be truly missed. Deepest sympathy to her family

Jean x

Hi Roy

Thank you for you post. It is so good to read something positive. My very wishes to you, your wife and daughters

Love Jean x

Hi Jane

You will have to go out and buy yourself a big floppy hat and factor 50 sun cream,lol. My brother who lives on the Wirral told me you actually had some sunshine the other,but you know what these scousers are like,all talk.:-)

Slims eating better,so he has a little bit more energy,its hard work for him as he has no taste buds left,so…[Read more]

Hi Stephen
Slim had his SCT and came home on the 1st of June,since then its 2 trips to local hospital each week to check on bloods plus any extra trips for platelets,he also spent 3 days in local for fluids,plus blood and platelets,have been back to Kings who are happy with him,and want to see him in 2 months.
My own opinion is this is were the…[Read more]

Hi Jen

We all felt like that at the very start,medical jargon test results and wondering what is going on.

Some people get confused like your dad,my husband is the same,there is no way i could let him go for treatment on his own,after 18 months of chemo and treatment,he is not the person who started this treatment,it does not happen to every…[Read more]

Well i have to say Stephen,they sounded if they did a good job on you,Slims was very different.

We travelled 86 mile went to chemo out patients were he was given his chemo to help generate BMC out into blood and sent home with a five day course of injections.Travelling 86 mile back. Total 172 mile round trip to Kings London from the south…[Read more]

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jennah

Haven't experienced Chemo in hospital with Frank (on tablet form) but when my brother was having it his wife used to txt me to tell me he was snoring his head off!!

Take care and best wishes to your dad 😀

Jean x

Hello Dear Tom
what have you been doing I hope the pain in your shoulder has been caused by lifting all those pints or kids you take care and let me know how you get on
Big big hug
Jo

Hello Ian

I am sorry your allo didnt work glad they are letting you go back on velcade as it worked well before good luck with the new treatmenr
lOve Jo x

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve