Hello Chris
sorry you have had to join us here it must be a very difficult time for you and your husband dont be upset if your husband gets really grumpy and depressed this is the DEX talking I found it very difficult to handle I took mine in the mornig with yogurt which made it easier to swallow I took the last dose of Thalidomide before I went…[Read more]

Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Thanks for your reply Vicki. We were at hospital today and told all about CDT. The side affects scared the life uut of me. Have to pick up the medication tomorrow and start this journey. Then radio therapy consultant on Wednesday. Didn't realise that it is up to that consultant as to wether Frank gets te radio therapy. I just want the pain to go.…[Read more]

Hi Vicki

I found your post recradio therapy very infotmative. My hubby Frank, after smouldering for neary 6 years is starting CDT tomorrow for 6 cycles. I am so scared! They also found 2 lesions on the ribs and has appointment for radio therapy consultant next Wednesday but consultant says he would only need 2 blasts max. Frank has very…[Read more]

Hi Deborah
Welcome to the site,I think Dai has summed Velcade up.
My husband had 6 cycles and found it better than having CTD but he had a few problems with the first line treatment.It does depend on your mothers age how many injection she has in one week,the older patients (80) seem to have one injection.My husband is 67 and he had 2 injections…[Read more]

Dear Carol
I am so sorry for your loss,you do not mention if you have children,if you have they will give you the strength you need at this time.

I think you have to ask yourself would you wish him back in such pain,do not grieve for him,but grieve for yourself,he is at peace and now you have to find your own peace.You have not had much time…[Read more]

Hi Dai
you can lead a horse to water but you cannot make it drink!!!!you name it I have tried it,he understands how important it is,the least mention of a drink,and I am badgering the kitchen or off to the shop.he said he feels like knocking back a pint,but cannot do it,small cold sips is his limit.
All the thing he is lacking are on drips,plus…[Read more]

Hi Eva and Sue

As you know slim is in the middle of his SCT.
He went in on a Sunday, only 50% of chemo given on Monday,the next day was a rest day,them harvest fed back.he is not recovering very quickly a bit at a time,he has had his own platelets plus some more plus injections of growth factor.His platelets stood at 7.5 last time I…[Read more]

hello Sue

I get my husband to have me time I think its important so if i have an appointment that may take a couple of hours he drops me off he also goes fishing once a week this is important so do not feel guilty if you do he will feel guilty for taking up all your time
love jo x

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Hi Paul

Fingers and everything else will be crossed that treatment will work. Have a brilliant weekend – enjoy the sunshine

Jean

Hello Paul

sorry your treatment has not worked i dont know about DT PACE a lot of treatments are not available to me becauce of renal failure
good luck with it fingers crossed it works
love jo x

best of luck keith

i am sure you will get on holiday we have just got back from Skiathos had a good time you have go to for it,it will do you good good luck
love jo x

Hi Paul

Sorry to hear Velcade did not work,I think Andy G had the same treatment,may be it is an age thing as you produce more cels the younger you are ???

You must be feeling a bit down,it,s easy to tell you there is something round the corner but your options are getting reduced,I know some people have had SCT with a higher count might be…[Read more]

Hi everyone

Well Dai Slims mind set is never again,told him it,s a bit like having a baby will forget the bad bits,(no sympathy).

In Kings they keep them in for a month no matter what,so he has been warned as to drips,I can count three at this present moment plus pump,they do not do ice and do not encourage any food other than hospital food…[Read more]

hello Eve

good to hear slim is not doing too badly fingers crossed all keeps going that way and he gets the remission you both deserve. i hope you can get to mettys memorial and you dont get too upset this is a bit like teaching you to suck eggs as i am the worlds worst weeper i get emotional at the drop of a hat kind regards to Slim
Love Jo x

Hi jacque

My husband is in Kings having hit SCT at this moment,just getting his platelets, dong fine but is having problems eating,has come out with a rash on his legs but it does not seem as bad as I expected.

I think he has his low points in the morning,build up of throat over night plus feeling sick and rushing to toilet,expects to be…[Read more]