Hello Mavis
Hope you are a bit better today and not getting breathless again, if you are and your ankles are still swollen it might be an idea to to speak to the 24/7 haematology ward about this as it could get worse, the dexamethasone and other drugs have powerful properties and you might need careful watching in case of cumulative effect.…[Read more]

Thank you very much Wendy, you wouldn't believe the amount stuff and time it takes to make it stick up like that!!
probably why my scalp is still so itchy, but hey got to give it a go, am back to work in 8 weeks and need to look convincing:-)
am now going to try to attach knitwear photo

Hello Teresa
New photo, very nice. How is Peter? And what will you do at the pub (other than drink:-) ) while you are away?
I don't know if chit chat is allowed or not! It says you can talk about anything – so i do, after all sometimes a normal sort of conversation is a welcome one when the going gets tough, sometimes too it is easier to…[Read more]

Hi Ann
I suggest you ring haematology ward and ask for a talk through for each medicine from one of the nurses or on call doctors. The doses can be started at different levels and then increased as time goes on in some places, so we might all have had different starting doses. For example I took 40 mg dex daily on days 1-4 and12-15 of 28 days…[Read more]

Dear Bridget
These infections are a constant nuisance and soooo draining, I'm hoping your next clinic visit goes ok and you get some quality time back soon. How are the family doing? Running round after you I hope? Keep your chin up lady.
Love Helen 🙂

Hi Tina and Dai
He said it all:-) I totally agree, it seems daunting at the moment but don't let it get you down, avoid the people who only give you sad eyes, do something nice, for yourself or your nearest and dearest every day, make it worthwhile. I have found the people here quite uplifting when I've felt 'off it', which has helped me deal…[Read more]

Hi Bridget I, like the rest am so glad to hear from you. You have certainly been through the wars. Pray you go from strength to strength. Hugs xx
Jean

Oh Bridget
so glad to hear from you, you had me so worried it sounds like you are on the mend a bit now so keep it up
Love and a big big ((((hug)))):-) 😀 🙂 😛
fROM jO XXXXX

Ha ha Teresa , not likely, this jumper is the passport to the baby! Niece has said we all have to knit something before we're allowed to see it. She was joking but we all have taken her seriously and I and all my sisters are competing! 😀 I'll try and attach a photo but I can't do it on the iPad for some reason
Love Helen

Hi All

Thank you all for your kindness it has helped over the last few days,as we have found it difficult even to mention it.So this did help.

We are going to have a celebration of Matty,s life on the 8th of May My daughter from NZ has come home,so although it is a time of sadness,there is a great deal of love and happiness around us as…[Read more]

Hi Lexi

I am up at this terrible hour,so i thought I would reply to your posting.

First may I welcome you,we are usually a happy bunch on here,who have either got Myeloma or are carers.

May i say,Smouldering Myeloma may never go into Myeloma,also some people have it for many many years,Ted on here is in his eighties and although his…[Read more]

Hello Bridget
I'm wondering how you are at the minute and if you feel like catching up. I've missed your posts.
Love Helen

Hi Andy
I do hope that Friday is positive for you, keep us posted.
Love Helen

Hello Jacqui
Good luck with the transplant, It's over 8 months since I had mine and I'm off to New Zealand next week – something I thought would never be possible a year ago.
Love Helen

Hi Teresa
It's good to hear that Peter is dictating the treatment plan, I'm all for autonomy, but it must be so so difficult for those of you who watch and wonder. I can't imagine how I'd feel, if the boot were on the other foot. I think the secret is to try not to worry and enjoy the time as much as possible, my husband is beginning to realise…[Read more]

Hi Tina
I swear by peppermint tea but it's not always enough, I need plenty of fibre with the tablets:-P and it's difficult when you don't always feel like eating.
Love Helen

Hi Pete
Good luck with all the tablets, there is lots on here about the tablets, spreadsheets, yoghurt to mix them with, and of course when you are wide awake at 3am because of the dexamethasone, there is often someone here to talk to. 🙂
Love
Helen

Hi Andy

sorry you have been unwell glad you are back now good luck with the rev /dex Keep well:-D
Regards Jo

hi welcome to the forum not something you would want to do but welcome have you started chemo yet or are they just monitoring you. You will get so much help and support here and a solution to a lot of your questions dont forget Myeloma uk help line they are so good and will give you good advice
Keep well:-)
Regards Jo x

Dear Andy
Hope the revlimid works for you. I'm just finishing my 6th maintenance cycle of it and am still in remission with a good blood picture.:-D Love Helen