Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve

Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Best of luck Helen lets hope you find your way though all this paper work and it will all go smoothly for you I cannot advise you about benefits as I am retired and on a pension
Regards Jo x

Good luck Helen. I have no experience of OT but hope things go well.

Love Jean x

Dear David, Eve, Dai, Paul, Debs, Scott and Tom
I'm really sorry not to have replied to this post earlier, I am sooooo grateful for your very sensible advice and suggestions and it is good to see that others have had different experiences to me.
I have an interview with my manager next week and am getting just a little anxious about it, so am…[Read more]

Hi Teresa
Yes Slim goes 23 of this month,after a year on treatment,and septic pneumonia in the middle,been a hard slog to get here.|They say he is fit enough,and he can not be any worst than when he was in ITU for 9 Days and 11 days in general ward,with months after recovering while on treatment.

They will keep him in for at least4 weeks,and…[Read more]

Hi Helen
🙁 I do envy you I know its wrong but it will be at least 7 months from now before we can go out,to the land of the long white cloud,It will be 3 years I have not seen 2 of my grandchildren and when there young they grow up so fast
We talk on Skype,and have kisses and hugs,my computer has never had such affection before.:-)

Helen…[Read more]

Hello Susie
It's a terribly difficult time and I do sympathise, I remember it clearly, it was Christmas 2010 for me. You hardly dare think about it, but it wakes you up at 4 in the morning as you wonder what the result is going to be. Be brave, whateve happens you will cope with it. In the mean time do nice things and enjoy the weekend as much…[Read more]

Hi Eve
You are right, head is now back out of sand, down day is over, (I think it's the zometa effect) and I'm sorting out the packing, toothbrush, sunnies and knickers. ( i like travelling light ;-)) will borrow all my sister and nieces in law stuff when I get there8-) However the medicines bag is quite large:-( only 4 weeks to go:-D 😎 :-)…[Read more]

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

Hi Helen

My mind is just trying to get round the fact that your Dad must have been a older Dad with a young heart,if your the eldest 🙂

I can see were you are coming from ,specially when you finish chemo and you do not have to go to the hospital as much,you become normal and no one wishes to go backward,but if you were the carer!!!.
Think…[Read more]

Hi Teresa
I'm sorry Peter is misbehaving, I don't think it is just a boy thing, I think it's a bit about having some choice and control over a life which is going headlong in a direction you don't want to go! I'm really fed up with all the poking and prodding, I've had a lot of bother with my guts since the transplant and subsequent addition of…[Read more]

Thanks Jet
have been reading up on this for a few weeks sounds very promising,talking about world trials.

Slims managed to get to SCT stage after CTD then Velcade so fingers crossed.
Going to Kings 23 April told 4 to 6 weeks in hospital.

Good luck for the future with your Allo SCT.Eve

Hi Jet

how are you not heard from you for a while, thanks for the link

Regards Jo x

Hi Jet
Sorry cannot get the link,are you talking about this new one just coming out of Israel!!!
Cannot get the Dailmail link.
How is life treating you !! Eve

Hi Dai
I agree with Janet,none of us knows what is round the corner,on a practical basis,we have tried to sought out our lives so that no one has that burden,but must admit it is now with the knowledge that Slim has MM,.

As for loving someone,I feel love can be painful,but would we be without it,I do feel everything has been worth the last 30…[Read more]

Hi Stephen

I could not reply to you E mail as you do not have an email address on your profile,but thank you for sending me a reply .

Stephen you will not get any quick relieve,everyday you will wake up,and be aware that Dawn is not there.
Min who lost her husband,found by making her world a bit bigger the pain was the same,but easier to…[Read more]

Hi Teresa

Well like Dai, Peter,s pain has been resolved,and as usual the carers have to stand watch and worry,it,s a place we have all been in,you have to ask yourself who you are angry with,the hospital or the hubby.Mine was both,for not taking on board my view.You are the one that shares this burden,sleepless nights,worring that they do too…[Read more]

Hi Dai
Thanks for your reply. Photo was taken at my brothers house and knowing my sister in law it would be an Angel. Joan is mad abou Angels. Dai how is the shoulder pain? Has it eased any. I hope you are feeling better.

Love Jean x
Thanks