hi Kay

Wow you are a wonder woman I am so glad you can go to work it must be a real milestone for you Steriod are good for pain killing but can play havac with you in other ways I havnt had joint pain but take predisilone for my chronic renal trouble I am diabetic and it puts my sugars up a lot which is a real problem but its better than DEX. I…[Read more]

Hi Nicola
Thank you for your kind words on the passing of my brother. I am so sorry that your dad has passed away. It sounds as if he was a very well loved and respected man. You will have great memories of him and it is good to know how much he was loved by others. I wish you the very best of luck with your find raising. My best wishes to…[Read more]

Hi Sarah
Good to hear Henry doing well, now lots of food and sleep and mending
Love Helen

Hi Neelie
What an awful experience, your poor dad. I think a letter to the practice asking how this decision was made is in order. I had my blood taken a year before diagnosis because I was anaemic and was told the results were ok and stop worrying about them! Turns out 12 months later when they were repeated, the telltale signs had always been…[Read more]

Hi Andy
Always been a night bird, descended from a long line of owls I think, and never used to need more than 6 hours sleep. Now I need about10! Dex time is weird, I could never switch my brain off, so even when I think I was asleep I felt awake, – dreaming was vivid reruns of the day and little plans for the next.

Hi Susie
A few days pain…[Read more]

HI Neelie
What terrible time your dad has had but it does not surprise me I went to my docter because I could barely stand up and could not breath she said just a virus take two paracetamols my husband took me into A&E NEXT MORNING WITH DOUBLE PNUEMONIA AND KIDNEY FAILURE I nearly died while in hospital I had 7 units of blood and after test…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]

Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

How are you now Andy ? Can't sleep I guess!!
Helen

Hi Mavis
How are you now? Have you got the pain under control yet?
Love Helen

Hi Susie
Welcome
A very worrying time for you but Kay seems to have covered it well. I have a different, low secretory myeloma so my pp was only 5 at its highest, though the anaemia I had meant immediate treatment. Each of us has their own 'level' and the pp is only one of the measurements used, when all the tests are done then they will decide…[Read more]

Good on you Andy. Mine was a disaster. Not sure what I did wrong!

Jean

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

Hi Jo
So glad that thIngs are good for you. Frank these past couple of days has been in brilliant form. He caught me a cracker this morning for "April fool". We are still expecting snow. Can't go anywhere as Franks appointment is on 19th April and I don't like to be too far from home. Jo it is so great to hear that things are going well for…[Read more]

Hi Elizabeth
I only use my iPad and can't work out how to cut and paste anything but see how it will work on the pc, very clever
Love Helen

Hi all
Yes I was told alcohol was permitted but not stonking drunk! Since being on the revlimid though I can't bear the taste, it feels like its laced with chile and burns, but I'm keeping on trying, on a weekly basis….. The taste has to come back….:-(
Helen with cup of mint tea in hand…….

Well done Becky, don't they make you proud to be their parents, Dai and Janet.
Helen