Dear Nicola
How tremendously sad for you all, after so short a time. Remember he will be with you every time you think of him and how much he was loved. Chin up and live your life well in his memory.
Love Helen

Hello Dia keep being chirpy:-) 😀 😎

so glad the rev and dex seem to be working perhaps this will be the ones for you:-) so many people for who Velcade didnt work seem to get on well with this regime I do hope your readings stay good and you shoulder stops hurting you are in my prayers
Love Jo x

Hi Debs
I'm delighted to hear you are doing well and take my hat off to you organising such a splendid event.
Where do we post stuff to if we want to send you raffle prizes?
And how is your hair doing? Shall you have a delightful coiffure in time for the event – very clever of you to pick the date for when you would have chic short hair.:-)…[Read more]

Hi Mavis, I'm sorry that you have jhad to join us, but welcome. You will find support, advice and comfort from cyber friends here. This is the best place to rant and rave, and no one will say anything My hubby was diagnosed 2006. He is still "smouldering" , no treatment. The hardest thing we have ever had to do was to tell our 4 grown up sons.…[Read more]

Hi Theresa
Thanks for explaining about the trial, I understand a little bit about how some of these proteins work and the race to find a drug which switches off the malignant plasma cell production is important for all of us. I hope it works well for Peter and that he is recovered from the work up.
You are allowed to be negative, it's a very…[Read more]

Hi David
Very nice , good all year round by the look of it, it's not one I've tried growing. I just bought some snakes head fritillaries and some alliums to brighten up the pots on the terrace. I'm going to have flowers out side the window all the time now! Even if it's expensive, it makes me smile. Even when the blackbirds uproot the…[Read more]

Hi Viv

Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.

You have had Cancer yourself so you know the problems,We live in this world of…[Read more]

Dear Joe
It's such a hard time, you feel as though your heart is going to burst with the pain, but you have done the right thing, even though it is so vey difficult.
Keep phoning your mum, she will understand, if I were in her place I'd be feeling so sad, but also very proud of you and your sister for trying to get on with things.
Your dad…[Read more]

Well David …… that gave me a bit of food for thought ……. I even had to go and look it up!
I hope you are getting better from your recent illness. How is the hedge getting on? I've cleared the back yard, will tackle the front garden this week
And Theresa do let us know how you get on ……what is the AKT trial about?
Bridget, how much…[Read more]

Hi Stuart again! They are not following on either, I've tried to send this to you but I think I might just be cluttering up Mavis' s in box now
Sorry Mavis
Helen

Hello Stuart
The posts are in the wrong order too
🙂
Helen

Thank you everyone for your good wishes,

Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!

Next appointment next…[Read more]

HI DAVID
Sorry to hear you have not been well just to say quite a few people I know have had this 24/48 hour bug perhaps thats what you have had
Regards Jo x

Hi Bridget
My docs are good and we have a great specialist nurse, I trust them and they seem to take aches and pains and bruises and infection seriously. Oligo just means little or scanty. I'm an orthopaedic and trauma nurse by training, and was a ward sister for 15 years followed by a move to research. I've been a clinical research nurse for the…[Read more]

Hi Bridget you just ramble away …..i like it…. And i don't do face book, promised the kids i wouldn't interfere with their domain a few years ago it's a bit limiting now though… Maybe i should try tweeting…. Anyway i'm rambling now…… Its catching…!
…too much knowledge…. Well it's a double edged sword isn't it? It means you…[Read more]

Hi Bridget how are you now?
Love helen

Hi ?
You are not burdening us with anything. Just spreading out the load to make it easier to carry.
It must be hard to bear after all this time on the revlimid, and families are not easy to share the anxiety with either, we don't want to hurt them or make extra demands, that's why I like this site too. Just have to keep plodding on and…[Read more]

Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

Hello Terry and Fadia
As I said in my first post these are serious questions for the experts. The way to second and specialist opinion is via the primary consultant or GP.
Helen

Dear Nicola

I am so sorry to hear the news about your dad. I hope that you get him home. My thoughts and prayers are with you and your family at this terrible time
Love Jean xx