Hello Kerry
So sorry to hear about Melvin it must have been such a shock as it is for us all I have been lucky not had bone damage but my kidneys have been badly damaged. This is such a good site for support help and advise and the myeloma help line can be invaluable they are so kind and informed
love to Melvin
Rgards Jo x

Hi Bridget
Sorry to hear your news,lets hope they can treat the area with Radiotherapy again,lets hope you can go on one of the new trials coming out.

Hope you are enjoying your new computer,and enjoying your days .Eve

Hi Tina
As Mavis says there are lots of trials and treatments.
my husband is on MX1 trial,but trial or no trial some were along the treatment you will get the offer of SCT if you are fit,but that is usually way down the line.

You need to find out all the information about the trial offered and if you need some answers from the patient or…[Read more]

Hi Kerry
Welcome to this site,i will not even try to tell you not to worry,but advise you to learn all you can and things will not seem so scary,ask for booklets at the hospital or phone Ellen who will send you some.

Blood clots not very nice but once treated and on going treatment for them during Chemo solves the problem.they can be part of…[Read more]

Hello Dia

glad you can stay positive although it must be hard. The rev and dex can be a regime its only low dex as i understand it there is a lady in my support group who has been on this regime for over four year and is still in plateau she could not take other meds thalidomide or velcade,fingers crossed for the 5%
Love and (((hugs)):-)
Jo x

Hi Geri

we all try to be brave on the surface but inside I dont always feel it, we have to fight this thing all the way never give in. I have had MM for three yearss went into hospital with pnuemonia and renal failure and as it turned out MM what a shock!! my kidneys are still only 20/25% so I chose not to have a Stem cell as it could of killed…[Read more]

I agree totally Bridget – brilliant. The first episode – wasn't sure – but as it progressed- brought back memories. The mid wife that my mum had was called Madge and she was a huge lady. My mum was in labour and the baby was breech – Madge needed a rest (!!!!) and plonked herself on the bed, the bed collapsed, my poor mum, told us later that she…[Read more]

Oh Bridget I am so sorry to hear your news. You are such an inspiration to many on this forum and if anyone can get over this hurdle you can!! I wish you well and my prayers are with you.

Love Jean xx

Dear Bridget
This must be such a blow for you, I hope they can sort it for you soon, keep going, you really are a tower of strength you know.
Love Helen

Hi Penny
It's really hard to describe this procedure, no one wants to put you off, but as it is still the best hope for longer remission especially for the younger age group, i felt i just had to get on with it. I'm sure you have read some of our stories and know how different it is for everyone.
It is unpleasant to go through, terrible…[Read more]

Hi Glenn

great news your tumour has gone what a relief you can now look forward to your SCT good luck with that I hope all goes well with your op Love Jo x 🙂

hi Tina and Geraldine
welcome to this site so sorry you have to join but this is the best place ever for help and support and a shoulder to cry on if you need one
Love Jo x

Aw Tom, it's a goodie but I think 'thank you' from LZ2 is my choice. Bit smooth but what does that matter to ageing rocker. Love Helen

Hi Dia
glad you are feeling not too bad after your cold I will be thinking of you on monday for a really good result so you can start the new treatment it must be a worring time for you
love Jo x

Hi Carol
I'm nearly 6 months post sct now, I was really well for a few days before the stem cell collection gcsf drugs started so had my hair styled short and went away walking, after the collection ( it took me about 3 weeks to recover from it, I was particularly slow!) I was again very well for about 10 days before sct so we went on holiday to…[Read more]

Hi Peter
You do not mention Diana,s age or back ground of MM,and this is important because the symptoms could be connected to her general health,I think when you come off Chemo you think you will feel better,and it comes as a surprise to find you have all these symptoms,you start thinking,are you in remission.

CTD the dreaded DEX also gives…[Read more]

Amazing! I'm truly impressed with the skill. On a different note, I'd like a bit of Led Zeppelin
Love Helen

Hi David
I think it,s great,it does get rid of the elephant too,must ask you??? is that a garden with a lovely lake at the bottom?????

Slim and I talk very openly about his illness,with grandchildren around,so if they have any questions,it can be talked about as a family.
Lets see some more pictures as you go on,must say you look if your many…[Read more]

hello Mal and Bruce

so glad everything has gone well for you its good news you can have the dialysis at home you will soon be rocking down the pub:-) 😀
Love Jo

Hello David

it is something todo with the filtration of the kidneys so I expect they were checking to make sure yours were not being affected
Keep well:-)
love jo