BADGER replied to the topic another newcomer! in the forum Newcomers 13 years, 9 months ago
hello Caz
glad you had a good christmas so sorry you have not been well cellulitis
is a horrid thing and can be so painfull i wish you every success for the SCT may it all go well
Love Jo x
eve replied to the topic Starting a discussion… in the forum Newcomers 13 years, 9 months ago
Hi Cinzia from Australia
I found you post in the middle of old post,so people might miss it.If I was you I would post on related illnesses more people will see it,start your own posting:-)
Any way welcome to the site,every one on here will help you all they can,there are people from different countries,so do not feel like an outsider.
BADGER started the topic JET ARE YOU OK. in the forum General 13 years, 9 months ago
Hi Jet
I have been reading your news on the blog I hope you are coping well please let us know how you are thinking of you, you have my utmost support please get in touch
Love and a ((hug))
jO
BADGER replied to the topic Patient power in the forum General 13 years, 9 months ago
Hello Jean
many thanks for the link
love Jo x
eve replied to the topic Laptops in the forum Off topic 13 years, 9 months ago
Hi Everyone
I know what your talking about Bridget with computers,hated them when I was at work now I could not survive with out one.my daughters use to give me there old ones,bit slow but worked last year got my own lap top,this year I Pad,Slim uses that more because it,s not heavy and good for games.
I am decorating the bedroom at the…[Read more]
Helen replied to the topic Stem cells collected in the forum Treatment 13 years, 9 months ago
Hi Sarah
All in one go is good, it took me 2 days but only for an hour on the second day, and the feeling of 'kicked by a horse' lasted for about 3 weeks afterwards, so enjoy the time now before the sct.
My daughter did the great north run last year for blood cancer research and raised a couple of thousand, people do post the links, we didn't as…[Read more]
jmsmyth started the topic Patient power. in the forum General 13 years, 10 months ago
Hi all
Just watched this video on The Patient Power web site. A patient who has has myeloma for 17 years talks about his experiences, trials and new drug combinations. Although Frank hasn't started treatment, it gave me a bit of a lift. Thought someone might be interested. Link is (hope link…[Read more]
Helen replied to the topic Newcomer on trial in the forum Under 50s 13 years, 10 months ago
Dear Chris
I'm a few months post transplant now and looking to go back to work in the next few months. I worked up to stem cell collection point (I'm a nurse) since transplant in august I've been slowly recovering, we are all very different in our recovery speeds. I think the reason no one talks much about finance on here is that it is such a…[Read more]
eve replied to the topic Good News Good News in the forum Treatment 13 years, 10 months ago
Hi Gill
Such good news you both must be very pleased,Stephen should be a little bit better on the lower dose of Dex,and this might be the time to have those conversations :-)I believe the kidneys can regenerate,so any damage can repair.One day at a time Gill and you will soon be in France again.8-)
Slim was trying to reduce his dose of pain…[Read more]
jmsmyth replied to the topic Good News Good News in the forum Treatment 13 years, 10 months ago
Hi Gill
Your wonderful news made me cry – with happiness. Stephen and you have both been throug so much and it was brilliant to read. I echo Jo = hope things get even better. You know yourself what posts like this do for us all.
My love and best wishes to you both.
Lov Jean xx
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Good to hear from you and have fingers crossed that you get the all clear in April. I am recovering from the dreaded tummy bug and staying away from Frank – don't want him to get it. Frank has his good and bad days. Still not on treatment. Mind you – on the Myeloma Beacon, their is reseach going on in Spain that suggests that patients…[Read more]
BADGER replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hello Jean
I am so surprised that some of these good shows dont come to Belfast its a nice city and now the troubles are over I am sure they would be well attended some one should but in a suggestion .I hope you and Frank are keeping well
Love JO X
BADGER replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
hello Eve
nice to hear from you we have a few days away this week in the New Forest I hope it stays dry.
I love the theatre but not in love with musicals but Geoff is so I treated him he does so much for me he deserved a treat, then I scratched the car and he didnt moan so another treat is due!!
I am still in Plateau only 5% mm cell in my…[Read more]
BADGER replied to the topic Good News Good News in the forum Treatment 13 years, 10 months ago
Gill
what wonderful news I cannot express how pleased I am for you and Stephen long may it last or even get better something to cheer us all up:-D
Big ((hugs))
Jo
eve replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .
One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]
eve replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]
eve replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.
I am finding this remission is Like a new ball…[Read more]
eve replied to the topic Barry White Vs Lee Marvin in the forum Off topic 13 years, 10 months ago
Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Sounds brilliant. Always wanted to see Phantom of Opera but don't think it will ever come to Belfast. Enjoy your brekkie and hope the rest o the weekend is great. Keep well.
Love Jean xx
BADGER started the topic A LITTLE LIGHT RELIEF. in the forum Off topic 13 years, 10 months ago
Hello Everyone
we have been to a couple of shows in the last two weeks after my app at UCH which was only 1/2 hour delayed we got the but to leicester Sq bought
some cheap tickets for a matinee and saw Phantom of the opera really enjoyed that then on friday night we went to Paul Carrick gig in St Albans Geoff is a big fan, we had aa great…[Read more]