Hi Jan and Andy
Well the bruises are reducing a bit and the aching leg is subsiding now!
Jan, I was hoping to have followed your lead here and sort of dropped back to ‘smouldering’ for a while, you have been quite lucky I think to have been so stable for such a while.
My neuts have been around 1.1 for the last few months but dropped to 0.6 last…[Read more]

Hi Helen

A painful BMB is not pleasant, even the bruise afterwards can make you wince with pain when you turn in bed or sit back on a cushion. I hope your house survey goes well. I don’t think I could face the effort and energy required to move house again, especially with the large quantity of junk we have managed to accumulate over the years.…[Read more]

Hi Jan
Thank you, it’s been a bit tough the last few weeks indeed. We haven’t moved yet, just got survey booked.
How are you doing? Are your light chains stabilised? I had BMB today,(very painful :-() as mine have jumped suddenly to the same level I was at at diagnosis. I’m starting on Pomalidomide next week.
Love Helen

Hi Jeff,

I hope your operation on Monday goes OK and offers you some relief in your pain. I’m so sorry to read about your arthritis. Last year, my elderly father suddenly started to lose his mobility. Eventually after nearly nine months of investigations, scans, tests/MRI, he was diagnosed with arthritis in his lower spine which appears to…[Read more]

Vikki last of my post went missing. Rabbiting on too much. Hope things go week for Colin and Maureen hope thing also go well for Ian. I always thi k of Colin, Ian and Frank as SCT buddies

Keep in touch
Love Jean x

Hi Vikki

Has Colin started the treatment yet? Frank got lots of cells but consultant put them all back as she said that he’s too old to have a second transplant. I still think that consultant went ahead with transplant – PP’s had been dropping for months and as his next birthday would be 70 – the cut off point – she went ahead.

Vikki Frank…[Read more]

Hi Vicki

Like yourself I’m not often on the forum. Looked in a few weeks ago and saw Maureen’s post and also wondered how Colin was doing. I’m sorry to hear that he’s having a hard time. Those bloody shingles are awful. Frank had them a few months ago and Dr put him on pregablim. Has Colin been taking them. Frank can’t get off them as he has…[Read more]

Hi Fuzz

Well you are showing some signs,that could be a number of diseases,a simple blood and urine test should show the possibility of Myeloma.

Doctors only come across Myeloma once in a life time as there are only 3000 cases a year in GB.

I would make a note of your weight and height,plus how many times you feel sick,your kidney functions…[Read more]

Hi Vicki

Nice to hear from you, I think you are doing the best thing not coming on here to much when you are in remission ,best to lock the Myeloma away in a cupboard mentally ,and enjoy life as much as you can,because we all know it finds you in the end,so enjoy today.

I have good and bad days,try to keep myself busy and out of the house,after…[Read more]

Hi,

Going through the process of a stem cell transplant is quite different for every patient. Some individuals sail through the recovery period feeling a little weak or fatigued, where as other people find the recovery period to be quite slow before their energy returns. However, you are normally only released from hospital following a stem…[Read more]

Hi Fuzz,

How was your appointment with your GP? Did you push for blood results? Your immunity must be low at present for you to have another chest infection, sores on your tongue and kidney infection. Hopefully all of your aches, pains and infections might be nothing serious. But you need to press for further tests to try to determine the…[Read more]

Hi Helen

Your life has certainly been quite eventful over the past few months. I should think you are exhausted after moving house and need the spare time which your retirement offers to recover, relax and spend some more time with your family. Did you enjoy your time at the film festival – it must have been a memorable and completely different…[Read more]

Hi Sue

I email the nurses – Ellen or Maggie. Email address for both is askthenurse@myeloma.org.uk. I email as then I have a written response that I can refer back to. They are excellent and reply quite quickly

Jean

Hi Maijic 30

Reading your husbands history,he has had thalidomide ,then Velcade then pomilidomyde has had his STem cells harvested,then Polidimide and because he has an agressive Cancer they are recommending he has DT pace,and in between this he has had pneumonia!!!!! Plus he has had compression on his spine,hence radiotherapy.

He has age on…[Read more]

That’s great news, Maureen. I’m so pleased you’ve both got something positive to focus on now.

I’ve been quiet but I’ve been lurking to see how people are getting on.

Sarah x

Hi Newbies

As a very oldie on here may I suggest instead of joining on some ones post,you start your own post,telling people who you are,what hospital you go to and what treatment you are having,plus of course any problems. This will help people to help you in person!!!!

When I first came on here,some one posted. WHO THE HELL ARE YOU!!!!,I…[Read more]

Jan

That’s the way to go!!! No regrets enjoy what you have and never give up hope.

The fact is no one knows what lies in the future,just enjoy and never give up hope,it will take people a long way,and every day is a bonus. Love to you all.

Hi Kaye

It was my husband who died,and it was a long slow death,so when you are not expecting it,it’s harder,grieve hits you very quickly and brings out all sought of emotions.

It is very hard for anyone to speculate what went wrong concerning your mum,if you write or ask to see her consultant I am sure he would explain why it was not picked up…[Read more]