Hello Kay
so sorry about your PP levels lets hope its just a blip good luck with your scan on friday I will be thinking about you with fingers crossed
Lots of love and (((hugs)) Jo

Hi Kay
Sorry to hear you think its,back again,just wishing you good luck for tomorrow,Slims in the same boat except he has never had remission,tomorrow we find out if the second lot of chemo Velcade has worked,I try not to think to far ahead,as we have been here before.
Hope all goes well Kay,best wishers Eve

Hi Nicola
I know its hard but may be your dad is better off at home,you do need that home visit to asses how much help is needed,you do not say if he has a carer who can provide a good level of care.

I know what hospitals are like,the nurses just do not have the time,My husband spent 22 days in hospital 9 in itu,I spent 12 hours a day there…[Read more]

Hello Pilgrim

I think you have done the right thing finding out as much as you can,Myeloma is sometimes very hard to diagnose,and often gets over looked as a cause for some ones illness,at least you have a good GP who has taken note of what you have said and acted on it.Many people get over looked until there bones start breaking then the…[Read more]

Hi Nicola
Sorry you had to join this site,as for help no one would be able to help with so little information,may i suggest you ring Ellen first thing tomorrow.

Why have they sent you father out with out.with out some form of back up,How an earth are you coping ,what medication is your dad on,lots of questions,please ring Ellen, Eve

Hello Kay
I can't help here but hope all goes well on Friday
Love Helen

Dear Ed
I too am on the patient side of this select group. It is a hard road for you carers to travel with us but I can only reiterate what others have said, here is a place where you find support even if you only read about others experiences.

When I first found myself coming to terms with the disease I visualised myself in a small boat in a…[Read more]

Hello Heather
It's a funny place to meet people, I too am a nurse and am now 4 months post sct and thinking about the return to work, it's not an easy prospect I may say but I know I have to go back, I'm not really one of natures housewives and the ironing pile looks more intimidating than the boss. I know the emotional draw to work is strong…[Read more]

Hi Ed

Hope you had a nice new year and that 2012 wil lbe better for your wife, you and your family. If you are interested in seeing a counsellor ask at the clinic or the Macmillan nurses. As I said may not be for everyone but with the help of people on the forum and the counsellor -I was pulled out of a dark place, and it is reassuring to know…[Read more]

Dear Mari
Glad to hear your Christmas was good,Slim slept through most of Christmas,but it was still better than last year,wish I could get back into reading,to be able to stop thinking about this myeloma.

No Slim did not have sub cut,when I asked about it,was told it was effecting some people,also has not come to our hospital yet!!!!!
Its…[Read more]

Dear Ed

I am so sorry that you have had to join our exclusive club but you are very welcome. You will meet terrific people here who are a mind of information. My hubby has MM he was diagnosed Sept 2006 and like your wife they are monitoring him. the only treatment that he has had is Someta. he has good days and bad days – and I will be honest…[Read more]

Hello Chris
Upbeat and flippant is good, sad, mad and angry bit is normal, I'm still moving between all of those things and have spent the last year on the roller coaster that is myeloma. I'm now 4 months post stem cell transplant and doing ok. Ask any question on here, you will get lots of support – even at those funny times of the day or night…[Read more]

Hi Min

You are so right about the grand kids. I love them to bits but they are hard work. We have only Robert wife and wee Maddy here. They have gone out and it is soooo quiet – lovely!!

I hope the new year brings you nothing but good things
Love Jean xx

Hi Dai
Well you seem to be doing well getting out and about,happy belated birthday wishers,are you one of these people who only get one present instead of two because your birthday is close to christmas?????

Slims sleep patten was all over the place awake in the early hours and tired and cat napping in the day,doctor gave him a very mild…[Read more]

Thanks Bridget and Jo. The first of the boys are leaving in about 30 minutes. Robert and family go home tomorrow and then back to peace and silence. Will miss them

Hope you both and your families have the best of new years

Love Jean xx

Hi Lynda

I too wold like to welcome you to the site that you would rather not be a member. I am a carer (hate that word) for my hubby and I have received tremendous support, advice and comfort from the wonderful people on the forum.

My very best to you and Pete
Love Jean xx

Hi Eve

glad you had a good christmas and Slim managed to enjoy it as you lets hope next year is a good year for us all:-)
Happy nand a healthy new year to you and SLIM
lOVE Jo x8-)

Hello Shirls

glad you had a super christmas its nice to be spoiled isnt it we had the family over two girls and thier husband and our grandson who doent srop talking my husband cooked a lovely dinner we had a quiet boxing day but we are going out new years eve hope I can stand the pace!
I would like to wish you both a Happy and Healthy New…[Read more]

Hello Jean

what a lovely picture I am glad you had a happy day it must have been a lovely time glad Frank was ok now its the summer to look forward to and some sunshine Happy New year to you and frank
Love Jo x