Hi Gary
Forgot to mention,have you looked in related conditions,there is a few younger people on there who have gone through the same thing as your sister,
Eve

Hi Craig
This is were you have to be strong,when Slim was in ITU,he was saying and seeing all sought of things,does not remember anything,In fact a lot of his short term memory has gone,but that,s not important,he is still here,and although not his old self,I am grateful.
Low blood pressure is my first marker with Slim,even before other symptoms…[Read more]

Hi All
Well if there is a link Slims must be from his Slavakien side,and we have no history there.
I do not know if I am bitter,but Slims mum died last year age 84,she was not a very nice person,so it does seem a little unfair,but that sums up life sometimes.
I know we worry about our partners David, managing, worrying about what the future…[Read more]

Hi Terry
Yes they are the same thing,I use that reference,as to me it is a biopsy because it looks at cells in the bone marrow,and it is the one test they can confirm myeloma and the only way of telling what is going on inside the bones.
I agree failure is not an option,it,s important to be positive.Eve

Hi David
I think everyone judges there own life span on there parents,Slim and I were talking about it today,I said after the initial shock of being told you have Cancer,you become more acceptant,Slim answer was,he was the one with Cancer not me,and he never looked at it as a shock,his father was a soldier who died in the 2WW age 28,and Slim was…[Read more]

Hi Gary
Welcome to the site,as a carer i and others,have been standing,just were your standing and feeling the same as you,no matter what we say you are going to worry,but welcome to the roller coaster.Do not feel embarrassed,just feel glad you are not alone,and everyone on here knows how you feel.:-)

Please get your sister to join the under…[Read more]

Hi Terry
Come on just to tell you what BMB is,it,s Bone Marrow Biopsy.
Slim has to have them as other results do not show true readings and the only way to tell if Chemo is effective is by BMB,and general health.
Slims on a three week cycle of Velcade 2 weeks on one week off a combination of VCD on different days,just finished 6 cycle waiting…[Read more]

Hi Min
I read that article too.
I think it has long been accepted that we all hold the ingredients within our bodies that can be cancer related,how it multiplies to full blown cancer related illness is not known,otherwise we would have an answer to Cancer.

I would like to see more research relating to the individual person,considering how…[Read more]

Well done Debs
were did you find the energy!!I want some.I agree you should take it a bit easier,you must have worked very hard.have a good Christmas Deb.Eve

Hi Sarah
She is lovely Eve

Hi Eve

We got in touch with Franks consultant when he was having the tooth problem and she pushed the whole thing through for him. Hope Slim hears soon.

Best to you
Love jean x

Hi Jean Tom and Min
Thank you for the advice about the tooth,Slim went to the dentist the other day,was called in and sent out to fill in forms on previous illnesses and medication.in that time 4 other patients went in as slim was filling in forms.LOL.
Went in needed tooth extracting,sent to hospital for xray ,these days they give you your own…[Read more]

ALWAYS

Leaving AYS

Jean x

Hi Eve

You are so right – family is everything. We are so excited about having all the boys and their families together, including brothers and sister. We are going mad cleaning and preparing the house. I am exhausted already but will be rested before the first one arrives on 20th.

Love to you both
Jean x

Hi Eve

Tom is right. Frank finished Zometa 4 years ago and had to have a tooth removed a couple of monyhs ago He had to go to the dental hospital at the Royal Voctoria and was given high dose of anti biotics and had to wait a couple of hours and then a Professor took the tooth out. He did have a problem – it kept bleeding. But did not take…[Read more]

Hi Everyone
I have a word,that I think is a good thing on this site the word is

OPENNESS Leaving ESS
on looking at the word it looks if it is spelt wrong,may be it,s because its a word not used very often.Love Eve

Hi Sue
Do not give up,you said your self you both have been in this position before not just once,so I would agree with Bridget,Ask for second opinion.
I know it is Michael and your decision,but he would not be here today if he was not a fighter.
I wish you well what ever you both decide Love Eve

Thank you everyone for your good wishers.
had last Velcade today,so BMB next blood test and Zometa all before Christmas,and one tooth to be removed along the way,sounds a lot but it,s less than we have been doing.
No marathons yet Dai,sleeping for England in the day awake all night,normality will be a bonus,what,s normal:-P I think I have…[Read more]

Hi mari
So sorry to hear Steve, back on the roller coaster it is funny when you hit it again when Slim had his CTD and we went to see consultant,and he told us it had not worked in fact got worse we were both very calm,strange feeling,may be you get past the tears and anger first time you are told.

Velcade!!! its worked for Slim from 80% in…[Read more]