Hi Amelie

Frank was diagnosed September 2006. I asked when he would start treatment and consultant said not yet and she has being saying that every two months since. She explained about the other tests and how they were stable and that MRI showed no abnormalities. I'm the one who asks the questions as Frank doesn't want to know. I now take a…[Read more]

Hi Chrissie
I stand by what I said last time involve your daughter-in law,she just might turn out to be the daughter you never had,you will not know unless you give it a try,no one can manage on there own,take my word for it,I am very much an independent b—-r,but my son-in-laws came up trumps.
Get SKYPE I talk to my daughter in nz all the…[Read more]

Dear Gina

I am so sorry to hear of the passing of your mum. My sincere condoloncencws to all your family. It is a blessing that she passed peasefully and got to see you get married I willl be thinking of you and send my love and prayers.

Love Jeanx.

Hi Tom

He's georgous – just like his grand dad (sorry young bride)!!!

Jean 😛

Hello Jean

my funny present was when we were newly weds and he was very informed!!! he bought me a nighty my granny would have loved pink flannelette never again!! what was he thinking of:-)

Love Jo x

HI eve

I love Christmas we have all the family round for just christmas day our young grandson gets really exited so it makes the day if I dont feel well my daughters always offer to cater but Geoff mostly cooks the turkey etc and they always wash up on boxing day we usually go for a walk with friends and a late lunch by the fire

Hope you…[Read more]

Hi Min
The nurses are very good and never seem to stop,I asked about the strike today and the answer was no we cannot strike!!!!!!
I also asked how long they would have to work for there pensions all of them said to 68 years old!!!!!!
I think at the age of 68 working in a job like that they would not survive it without making many errors.

My…[Read more]

Hi Debs
Can't really help here as I've only just restarted the Revlimid again and had so many aches and pains at diagnosis I'm not sure what caused what symptoms. However I've been warned that colds and coughs will linger and often cause more trouble than previously as immune system has been so battered, I'm to contact the hosp or get my GP to…[Read more]

Well Min this is the time to find out!!!!you do not know what you can do until you try.!!!!
Dishwasher!!!! for a present,who was that for,any thing to get out of standing at the sink!!! my my Tom hang your head in shame,It,s nearly as bad as my hair removal gadget,its taken him years to live that one down LOL Eve

Hi Dai
The cost for Slim is topping £3000 as now in 8th month,but if you compare that he was in ITU for 10 days at a cost of £2000 per day its a no brainer.
Slims history is grandmother plus mother died of pulmonary embolism,his mother a year September age 85.
I have had some response to my complaint,went for start of 6 cycle today and H…[Read more]

Hi Everyone

Poor Slim,that,s what I hear all the time Tom,i always seem to come out the baddy,I just reckon he does not know how lucky he is being married to me!!!!!
but there again he can not remember it!!!! LOL.
the other day he asked to see the photo,s so my daughter showed him,and for some reason he thought he was standing up(we got…[Read more]

Thanks Dai

HUMANISE (!!)

ISE next

Jean x

Hi Helen

Slims is a long story,so will keep it short he was on CTD myeloma trials, and three months on,after going to A&E on Easter Saturday and sent home,Emergency admission on Easter Monday 10 ITU with Septic Pneumonia and 22 over all in hospital.
he stared the trials again 2 weeks after leaving hospital,did 6 cycles only to find Myeloma had…[Read more]

Hi Amelia

I know it's difficult not to worry but franks protein went up from 21 to 30 (over months) and now down to 28. David is right, the doctors take a lot more into consideration. Frank hasn't had any treatment since he was diagnosed 5 years ago. Thank God.

Try and take it easy

Love Jean x

Hi Chelle
We all have days like that,because you get desperate for something to work, I must admit to being a pill popper ,mainly to keep my emotions under control,It cannot help your husband to see you so upset,so my advice is go and see your doctor,get some help,because you have to be the strong one at this point in time.
I am sure other…[Read more]

Hi Helen
It does seem worrying at first,but as soon as you mum starts the injections she will improve.
Slim had a mass of blood clots in lungs,no one realised as he did not get out of breath,plus holes from damage with pneumonia.He has been injecting himself for over 6 months now and we expect this to continue for some time.

If you put a word…[Read more]

Hi All

Funny Christmas presents – had a good laugh!! On our first Christmas as newly weds, we lived in South Africa. Frank told me I had to wait in as my Christmas present was being delivered. I was so excited – couldn't wait. At last it arrived – it was a deep freezer!! Talk about disappointed. When Frank arrived in he asked if I liked…[Read more]

Hi Sarah
I live about 40 min from you,and Deal is frost free,on are way to Canterbury this morning you could see frost in the small villages low down of the road,but otherwise this little corner of England tends to have French weather.

I am glad you are going to have all the family,its so important the first year,if your worried about the out…[Read more]

Hi Eve
I laughed out loud when I read this! I was looking at my head last week and wondering if an eyebrow pencil would work to fill in the patchy bits…. Never gave boot polish a thought. Hair does stop growing, you have 'dormant' hair for about 6 months and then it falls out. That's why we have such patchy hair as we lose the growing hair…[Read more]

Hi Only me
Just to try and give you a little bit of support,i cannot help you as Slim has not had SCT,but am posting to say people who have been in your mums position,say it,s worth it in the end so hang in there,this post should take it back to top and more people might see it and reply to you.
Good Luck Eve