jmsmyth replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment 13 years, 12 months ago
Jo that is brilliant news!! I am so happy for you. Long may it continue.
Love Jean. xx
Helen replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment 13 years, 12 months ago
That's amazing Jo, what a lovely surprise. Enjoy it.
Love Helen
BADGER started the topic REPRIEVE AT THE ELEVENTH HOUR. in the forum Treatment 13 years, 12 months ago
Hello everyone
I was due to go for my first chemo today it had been delayed as my consultant had forgot to put in the referal form nice chap not good at paper work unless you chase him, BUT I had a phone call at 6.45 pm last night from UCH TO SAY DO NOT GO AHEAD!!!!:-) Bone marrow result has just come back showing less than 5% myeloma cells in…[Read more]
Helen replied to the topic Calling Elizabeth in the forum General 13 years, 12 months ago
Hi Elizabeth
Love the hat, hope Sam is ok now
Helen
Helen replied to the topic Where Are You ? in the forum Off topic 13 years, 12 months ago
I'm Helen and I'm in Newcastle, i was rejected from blood bank in october 2010 as I was anaemic and diagnosed myeloma in February 11, I've had the RCD arm of the myeloma xi trial, stem cell transplant in august and am in the revlimid maintenance arm from now, and I'm happy to say that I feel better now than I have for years, not back at work yet…[Read more]
Helen replied to the topic relative of myeloma sufferer in the forum Newcomers 13 years, 12 months ago
Hello Roisin
Welcome to the site. You have a problem and a half with pa in law and everything else. Will he talk to a Macmillan nurse? You could suggest it with an eye to future needs and general health rather than 'care', they are good at getting things sorted out.
Good luck with this
Love Helen
jmsmyth replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years ago
DETERMINED up next NED
Jean x
BADGER replied to the topic Where Are You ? in the forum Off topic 14 years ago
Hello Tom
I live in Hatfield Herfordshire I attend Lister hospital and uch London
I am 64 will you still love me!!! no tune like an old tune
Love Jo x
eve replied to the topic Where Are You ? in the forum Off topic 14 years ago
Hi Sarah
Did not know you lived so close,Slim and I live in Deal in Kent.
I am a young 63 years going on 21 and a bit,Came from Liverpool to Kent 40 years ago.Love the south but miss the northern sense of humour. Eve
jmsmyth replied to the topic Got appointment in the forum End of Life and Grief 14 years ago
Roz I am sorry that you are having such a terrible time. Rachael has to see a counsellor because SHE wants to. She can't be forced to go. It takes courage but I had got to the end of tether. At one of our sesions, Declan ( consellor) started a discussion on a certain subject and I kept thinking to myself "Why is he talking about that, it has…[Read more]
Helen replied to the topic Keeping up appearances in the forum General 14 years ago
Well I now have 3 mm of hair and it seems darker as it grows, does this mean grey hair grows faster than coloured hair?
Have now been randomised to revlimid arm for maintenance on myeloma xi trial, so hoping for very few side effects.
Helen
Helen replied to the topic Plasmacytoma in the forum Related conditions 14 years ago
Hi David
Mm is a very complex thing isn't it. I've probably had it for about 5 years but knew nothing about it except for a gradual decline in my haemoglobin. When blood bank expelled me last year for being anaemic I never thought it would be something as scary as this. Did you go on the sct route I know it must be on here somewhere but I can't…[Read more]
jmsmyth replied to the topic Got appointment in the forum End of Life and Grief 14 years ago
Hi Roz
Is Rachael having counselling? At least she knows what the problem is and can get help. My sister had a similar problem when our mum died. She got it sorted.
Don't be scared of going to the counsellor. I think the most important thing is that you like your counsellor. First time I went I didn't like her and they changed me to…[Read more]
Helen replied to the topic Plasmacytoma in the forum Related conditions 14 years ago
Hi David
Tumour just means 'lump', plasmacytoma is a lump with malignant plasma cells in it, peculiar to the myelomas, usually sited over central bones, spine, rib, hip, skull,sometimes in soft tissue too. Sometimes they are the start of mm, sometimes they come after and some people just get one, have it treated and never get another.
Hope…[Read more]
Helen replied to the topic bad news 🙁 in the forum General 14 years ago
You look so lovely Gina take care of yourself ( and mum)
Helen
jmsmyth replied to the topic Got appointment in the forum End of Life and Grief 14 years ago
Roz I'm so glad that you have at last got an appointment. First appointment feels a bit weird but it does get better. I hope at long last you get sorted.
Keep strong
Love jean xx
jmsmyth replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years ago
What about GRINNED leaving NED
Love Billy No Mates x
jmsmyth replied to the topic Calling Elizabeth in the forum General 14 years ago
Hi Elizabeth
Good to hear from you. Was wondering where you were. You are not boring!!! So sorry to hear about your husband and hope it is not long to he feels better and gets home.
Yes my two new friends have ordered recorders but one now has to learn to use computer. Her son is going to show her what to do. I find it invaluable.…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years ago
Hi Chrissie
Concerning the AL,you have to help you husband to get up in the middle of the night,and at his age needs to go more frequently ,you do not have much choice because he cannot afford to fall,if he brakes his hip you will not be able to manage him at home,if you do not get the full amount appeal.it will be back dated and his position…[Read more]
jmsmyth replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years ago
I know what you mean Gill, I cone on the site about once every hour when I'm home. So I'm also a Billy no mates!!
LENIENT
ENT next
Jean xx