Hi Belles and Bridget
I can't remember what day I had platelets I was keeping a diary until day 8 then things went down hill for me, but today I overdid it( cut down tree branches and up ladder mending shed roof for my mum and dad) after having flu and pneumonia vac this morning. I know I should know better but I felt soooooo well this morning!…[Read more]

Hi Abi

I am sorry that you have to join our merry band but a heartful welcome. You will get support, information and even fun (although you wont feel like that now) from the people on this site. I agree with David about the recorder. My husband has MM and Elizabeth (on the forum) mentioned about the recorder. I bought one from Gizoo.co.uk.…[Read more]

Eve so happy for you both. I know the relief that you are feeling. Long may it continue. As Tom says "upwards and onwards".
Love Jean x

Hi Bridget
Hope the sickness is settling for you, well done with the injections.
Helen

Hi Belles
High temp is quite common, I had temp of 40 off and on for 3 days, days 8-11, given ice and antibiotics, eventually settled. Seems to be part of the general horribleness of the whole thing, I hope it settles soon. I know how I felt and it can not have been easy for the people I love to have seen me like that. I felt quite tormented by…[Read more]

Welcome back Min. New photo? Or am I not very observant? Very nice. YAPPING – what my Westie is doing at the moment. ING

Jean x

hi Helen
I'm 12 weeks now and feeling a lot better. Energy is beginning to come back though I flag quickly, I think I can do more than I can – then get grumpy when I'm tired, wonderful for those around me!:-) The first 6 weeks were awful and I have some lingering niggles which I hope will go in time like itchy skin, you need LOTs of moisturiser…[Read more]

Hi Bridget

so glad you are manageing the treatment what sort of dose are you on for the thalidomide I found when on that and dex it was the only way to get a good sleep I say my prayers for you that this works and gives a you a long relief you certainly deserve it

Lots of love Jo x 🙂

Hi Eve

Hope things go great for Slim today. Will cross everything.

Jean xx

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

Hi Helen
Best to check with the hosp what they will allow and if they say yes it will be at your own risk of loss or damage, it is personal so own bugs are ok usually, I was given an iPad for hosp!! It was a godsend, small and light weight and I am getting to know how to use it too!
Wish her well
Helen

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hey where are all these big words coming from. Someone swallowed a DICTIONARY.

ARY next

Jean x

Hi Roz

I just feel for you all that have lost your loved ones to this bl**dy disease. I know how I felt when my lovely mum passed and writing to her was the only thing that helped me. I still read the "letter" and oh boy I said some awful things to her but I know she understood.

I hope you are feeling better and hope your daughter gets in…[Read more]

Hi Bridget
I have purple and blue one,s
Purple as soon as I get up and last thing of a night preventive
Blue to use any time,but if you use it before a walk or before going up hill,or any time before you do any movement it works far better than,when your chest restricts or a coughing fit starts.
If I forget I pay a price.So I am extra…[Read more]

Hi Dai
Inhalers are preventive,use them before you need them!!!!
I did not reply to your post about the conference,sounds silly but I was angry with you for not looking after yourself FIRST,then I felt guilty because I was the one pushing you!!!! I should have realised you only a male and like most male species do not know when to stop .LOL:-P…[Read more]

Hi Pauline
Good for you,I am a great believer,in what ever you want to do,mine just happens to be camper vans,you could not explain to anyone the kick you get out of it.Have had campers for over 18 years,travelled as far as the Sahara Dessert just wish we had done more,but feel ever so lucky,we did not wait until Slim was 65 as MM took over are…[Read more]

Dai

Glad to read you are on the mend. Hope it's not too long until you're back to your chirpy self.

Love Jean x