Hi Peggy
just noticed your unfinished post,not that i can help you with side effect as Slim has very little,but can offer you some sympathy as its not very nice when these things are happening,
hope thing are a little bit better Eve

Hello Mal and Bruce

Sorry Bruce is not feeling so good I hope he picks up soon he must be feeling rotten I think fever goes with the STC so lets hope you can go home soon
Love Jo x

Hello Dia

so sorry you are not well why is it that the hospitals do not expect you to get ill over the weekend they must know as well as any body you get sick at any time of the week day or night We were supposed to go to the London info day but Geoff has a really bad stomach bug I didnt want to leave him as he is quite poorly:-(
Love Jo

Hi Dai
It all ways seem to start at the weekend,horrible,feel you cannot trouble people,and know you are going to end up in A&E fighting your corner,Slim had bloods taken as par usual,but from getting up knows he is not himself,hospital says he is ok,but cancelled any plans for weekend.doubling fluid intake,ankles BIG,and just not himself.cannot…[Read more]

Hi Everyone
David how about Nosology,meaning the branch of medicine that deals with
classification of diseases

How about for OIL

OLIGARCH

love Eve

Hi Dai and Everyone else
I was not sure were to put this post ,and as this topic is included I thought you might like some % of are problems with meds.

As you know Slim did CDt 6 cycles now Velcade on 4 Cycle.=10 Cycles altogether to date.
Out of 10 cycles we have only had the tablets ON TIME twice making that 20% of the time,on the bad days…[Read more]

Hi Debs
We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog…[Read more]

Hi Elaine
Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
Also what treatments are…[Read more]

Hi Deedee
Its all a bit mind blowing at the moment for you,but things will settle down,Its hard when they have been so fit,and now they seem so ill.
Thing will get better,and you will find that inner strength that you need.

I find it helps to find out all I can about MM it works for me,when things seem to be heading in the wrong direction,I…[Read more]

Hi Caz
Just to say welcome,envy your trip to nz,we should have being going this year have a daughter in Mapua.We will get there again was my husband gets remission.8-)

Once you know how much damage to bones there is,you will soon learn to adjust your strength will come back just takes a long time,some people sail through treatment other people…[Read more]

Bridget

You are marvellous I am sure no one will worry about hats so long as you start to feel better get all the sleep you can for I expect when you start your new treatment next week I guess DEX will be involved so no sleep there then, I am at UCH next week on thursday what day are you there
tRY and keep well
Love and big ((((hugs))))

Jo:-)

So well done Nettie you are so brave where did you find the courage
I like Tom said my prayers for you to come though safely
HURRAH FOR NETTIE

lOVE jO XXX

Hi Caz
Is your family from New Zealand?
Helen

Hi Elaine

glad you have found us you will find this site so supportive full of kind words and advise you are not alone we all care here. When I had CDT they gave me an anti B which gave me a rash so they had to stop it the rash looked like German measles it was called ciprofloxin perhaps it is something like that causing your rash
Keep in…[Read more]

Hi Mal and Bruce
HAPPY ANNIVERSERY TO YOU BOTH AND MANY MORE TO COME

LOVE Jo

Hello Caz

welcome to the group sorry you have had to join but you will find so many new friends here ready to give you help and advise and dont forget Myeloma uk's help line they are so good. The eating bit is difficult I ate only what I fancied that way I at least ate something as a child when not well it was always lemonade and Hienz tomato…[Read more]

Hi Caz
Welcome
Re diet- as good as possible seems the best, if you feel like eating, some do some don't. On the dexamethasone days you may find you can't stop eating! You don't say if you are heading for SCT! If you are you need to keep as fit as possible as it can be a bit of an ordeal and you may need all your reserves.
I found myself…[Read more]

Hi Debs
Like the new photo, very cool, and glad to hear hair is starting to grow, still don't know how to load pics on here and the family tech is proving difficult to pin down….
I'm losing eyelashes now but have still got eyebrows and no hair on head but wait in hope! How did table top sale go?
Helen

Hello Mal and Bruce

Just caught up with your post I wish you all the best Bruce with the transplant you are braver than me as I had renal failure but just missed dialysis by a fraction didnt want to do even more damage to my kidneys
I bet you miss your guitar bruce I am sure you will be up and playing again soon
God bless Love Jo

hi Debs

Geoff and I will be there we will look out for you
Love Jo:-)