Hi Everyone
Once more in to the breach,and hoping to clarify and expand this discussion.

The hospital i go to has a specialised haematology dept that is taking part in Myeloma Trials which Slim is on.
When on trials you have to follow the pathway,but you can come off trials any time,and you can be removed of trials if they think you are no…[Read more]

Nettie

That was brilliant. In that one photo you looked so relaxed. Congratulations you. Wish I has your courage.

Love Jean x

well done dia
u
I know you would do it and not give up I will be praying for you to have reaaaaaalllyy!!! long remmission

Big ((((HuGS))))));-)

lOVE jO XX

Hi
Good to know you are ok,hope everything goes well on the last cycle.Let us know how you get on 🙂
My beautiful white carpet did not enjoy Slim being sick on it,have used bleach but still looks iffy,helped make my mind up,so hall and lounge will be replaced with laminated looking like oak.
Could do without this,but when you are stuck in…[Read more]

Nettie can't get the link to work.

Jean

Hi Gill

Daily mail Wednesday Money Mail you look for Page 55
E mail asktony@dailymail.co.uk
daytime phone number postal address and separate not addressed to the .offending organisation:-)
Hope this helps. Eve

Hi Dai
Have done it again haven,t I,Dai i am not talking about your ignorance far from it i look to you for advice support and anything else you can throw my way to help me understand this dreadful MM,and what is available, so very very sorry,its my ignorance of every thing,that,s in front of us.
So accept my apology .Eve

Hi Gill

Just found the post were you ignored me!!!!,how dare you 😛 LOL, some one forgot to tell you scousers are thick skinned but are softies in side 🙂
Seem to be missing post these days,but what I have noticed is that you are taking Stephen,s results very calmly.
Gill you must be worried,I have noticed those early morning post when you…[Read more]

HI Sharon
You have not been on site for a while is ever thing ok i know you do not post much,but you must have finished Velcade now.How are things going:-S?

Slim on 3 cycle and a bit in Limbo as,no results coming through as decided bone marrow to be taken after 4 cycle.

Slim has not got the pain in his chest any more,and except for the odd…[Read more]

hi sandy
Hope your stay in frh was ok, I was there a few weeks ahead of you, I'm still steering clear of crowds and people with overt illness but have been to town and done the shopping regularly since week 5. Went to a few restaurants and pubs when i went away this last weekend. I asked at the hosp last week they said my bloods were all ok now…[Read more]

Well done Nettie. That is a real achievement. Look forward to seeing photos.

Love Jean x

Hi Everyone
I will not bore you with general details except to say,husband started on ctd,now on velcade and looks if he will not be offered sct.

My point on this,is we were told he had Myeloma told about Myeloma trials and felt we had no options,asked if we had any questions,how can you ask questions if you do not know what to…[Read more]

Hi Everyone
How about

HENPECKED
I know I leave you with the same end but Slim tells me i keep doing that:-) :-/ :-S
KED

Love Eve

Hi Shir
Nice to see you keeping your chin up,would drive me mad too,Do not know if your are on face book,but they have scrabble on there ,and now i find myself
in the house more ,I play alot,also Slim plays to keep his mind active,I agree completely would not be without my lap top,use it to skype a lot,shows when friends are on line,so pop in…[Read more]

Hi |Girls
If i may call you that.My kids are terrified when I drive because if they talk to me,I have to take my eyes of the road,even my son-in-laws are scared.LOL.
I wish I could wave a magic wand and take all your pain away,but it,s not going to happen.
Life will go on and each day you will find some thing to smile about,I hope you will all…[Read more]

Hi Everybody
Zometa is known to be very effective on bone damage,usually administered once a month to strengthen bone with Adcal-D3 once a day.This has worked wonders on Slim,who could not even lift a carry bag with one item in.
Now he is on Velcade he has Zometa every three weeks,but Myeloma is 80% in marrow,
I can only say doing research on…[Read more]

Hi David
There is some evidence to suggest that Zometa has an anti cancer effect ( recent oncology weekly) and all myeloma patients should go on it, the jury is still out as to how long you should be on it.
There is also a question as to should you be on it if you are in remission, as technically if you are in remission there should be no…[Read more]

Dai, Just what you needed to hear, here's to long remissions
Helen

Ho Dai I am so pleased for you,I hope tonight you are sitting there with a big grin on your face,must feel like winning the lottery.
Only this is far more important,and more worth while.
May you enjoy the freedom this gives you.Love Eve

Hi Debs
I do feel for you,they treat you like you are thick as two short planks,and wonder why patients loose there respect for doctors.
I had a problem,with a doctor last week,in the end I told him I was standing my ground,as i new when Slim was not well did not go down well:-P but worked.

Same doctor couple of hours later could not have…[Read more]