Hi Terry

so sorry you have had to join this group I cannot help you with velcade as that will be the next drug i am put on when i need it I like you will be looking for advise I have been lucky so far no tumers but I have had chronic renal failure due to myeloma
Love Jo

Hi Roz
I have only just seen this post,and as you know I am not in your position,so in truth cannot begin to understand,loosing my partner through death,although i do know that this will happen in the future.:-( I always thought it was that I would go first.because Slim until now was the healthy one with good genes,just shows how wrong one can…[Read more]

Hi min
Who,s ears?if big Slims if small mine,having trouble reducing size of photo,tried putting one of Slim and me on,so thats the ears and fence LOL,my dog is better looking.Love Eve

Hi Terry
First may i give you a welcome to this site,I am a carer to my husband but you will find lots of different people on here who can give you advice and boost you up when you need it.
I can only tell you about Velcade but others on here have been on a journey with similar problems,
may I say Velcade is not the last resort,My husband was…[Read more]

Hi Shirl
Just seen your post ,do not know how I missed it.
Well stuck in hospital with the weather so lovely out side,no fun and tired up to oxygen ,you don,t have one of those massive tanks do you,or can you get about with a portable one?
I take it the info day was at your own hospital?
anyway at least your home now,this weather is going to…[Read more]

Next word

LIABILITY

Over to ITY

Love Jean x

My word is

QUESTIONABLY

Leaving BLY

To me this is what life is about at the moment:-) Eve

Hi Min
Lovely to hear you are posting again,so worried for you at one time,knowing daughter lived away and son at sea.
I have thought about starting a support group,but it would not be practical for me personally.For a start no way would Slim go!!:-P,Have been trying to get him to go to London,but no go!!!!!
He is a very self contained…[Read more]

Hi Peter
Thanks for replying,its just interesting the different ways Velcade is given,and with different drug combinations,and how effective it is on different MM,:-S
You are the first person I have heard from who was on Velcade and 3 years on is alive and kicking,half the problem is I am 80 miles away from a support group and this is a life…[Read more]

Hi Ellen
I have been posting on here since February this year,and found some thing I believed did not exist(cyber friends),so yes I mourn their loss,it also brings it home,this is going to happen to me.:-(
I would have loved my husband to have sailed through this horribly treatment,and come out the other side,like Jet,who only wants positive…[Read more]

Hi Wendy
No idea either but how are you feeling now? hope you are less tired and down.
I had the ' you are in complete remission' blood tests back this week so, despite still feeling pretty sick it was a big boost.
Helen

Hi Jo

Benn thinking about you for the past few days. Hope you don't mind me asking , how did you get on on Wednesday?

Love Jean x

Hi Nettie

Just wanted to wish you good luck for tomorrow. Will be thinking of you at 10.00am. You're a better women than me Ghunga Din!!!!!!

Love Jean xx

Great news David and long may it stay that way you are doing so well at the momement;-)
Keep Well
Love Jo x

Dear Gill

I have been following your posts on Stephen and was devastated to read about Stephen's appointment results. I cannot offer any advice as I know nothing about the medications that can be perscribed. I can offer my very best wishes and prayers and hope that the revlimid works.

My very best to you both.
Love Jean xx

Brilliant news David! Long may it continue.. Enjoy.

Love Jean xx

HI Min
So glad you are coming back to us,and so glad you have taken that first step,from reading your mail,I think you are a very strong person,and for awhile you worried me wondering if you could get through that black tunnel and see some light at the end:-),Grand kids,are a tonic,just what you need.

As for cars cannot help you,me personally…[Read more]

Hi Ted

My husband was also diagnosed 5 years ago and still,thank God is not on any treatment. Frank goes to see consultant every two months. He appears to take the whole thing in his stride (or maybe it is for my benefit) but I get so uptight I'm fit to be tied. I think "we have got away with it for x amount of years, this is the time we…[Read more]

Hello Peter
Welcome to the site I hope you enjoy your your journey here,finding out new information and any help you need or can give:-)
How do you rate Velcade,how long were you on it,and did you have any side effects?????
Where you on trials? and what dosage did you have.It sounds so interesting.
I would be grateful for any info as my…[Read more]