hi Bridget

Hats glorious hats I can recommend your hats they are pretty and stylish
Glad you are feeling a bit better hope the RT is kicking in and reducing your pain PS I wore my hats alot last winter

Lots of love Jo xx;-)

Hi Everybody

NOTIFY

My word for today IFY Eve

Hi Paul
My husband is on the MX1 trials,he got CDT side,6 cycles intensive pathway,some advice I can give you,is high dose DEX does disguise any infections,low blood pressure was the start of Slims,not even picked up in A&E,so do take care.Septic pneumonia has cost him the chance of going for SCT.
Now on Velcade as no bench markers to judge how…[Read more]

Debs That is an impressive amount of fundraising, well done. I'm going to have to keep the wig on then! It was a bit un nerving yesterday when I went out in the wind and I was trying not to hold on to it and terrified it would blow away.
Bit soul destroying for you if sister thought you'd shaved head again.
I'm much better this week thought it…[Read more]

Hi Eve

Hope you both can make it the parking is just out side the venue which is next to London Zoo last year there was loads of parking if you needed it
Love Jo

Dai

What a wonderful post. I loved it. Thank you.
Jean x

Hi Jo
Thanks for the information,will ring and find out how late I can book it,and check about parking.If problems with parking Slim will not be able to come,as he cannot walk or stand for any length of time.
Also not sure how he will be,1 week of 4 cycle,has hospital on Friday,I might go on my own,It is easier to go by train then tube,but there…[Read more]

Hi Dai
4.21 am,and your creative demons,are all around you,to be able to express living and death in such a powerful way is a wonderful gift ,I think you have expressed my thoughts on life ,but put it in a nicer way than I can:-)
May be they are not demons but angels,your not ready to jump on the cloud yet.

When I read this my thoughts turned…[Read more]

Gill

wish Stephen all the luck for his op lets hope it all goes smoothly We have been called into our surgery for the flu jobs so our lot are on the ball
Regards to stephen ps i CANNOT SPELL FOR TOFFEE
Love JO

Hello Scott

just to mention there is a really interesting article on the web look up Sodium bicarbonate and cancer treatment it a good read
Regards Jo

Hello Ali

my renal Doc seems to want to keep me on the high dose of sodium bicarb
so I will have to keep rattling for now as for the bone food they put me on a low dose of premidrinate just 30mgs once a month I dont seem to have any problems withit. We had a good holiday in Scotland with only two days rain in two weeks8-)glad you had a good…[Read more]

Hi Gina

glad you enjoyed the info day I have found them so informative and my husband who is my carer got a lot out of the day we are going to the London one in October
Hope Mum is ok:-)
Love Jo

Hi Eve

Hope Slim is doing ok just to let you know the next info day In London is this October if you could make it

Love to Slim
Regards Jo

Welcome Alexis and John
glad you have found time to post you are very welcome please tell us about your and Johns journey we will all be interested:-)
Love Jo

Hello Aileen

sorry you have had to join this group but welcome you will find all the support and help on this site you amy find it a relief to talk to other sufferes as not many people in the big wide world have heard of it.
Dont forget the Myeloma uk help line they are brilliant:-)

Keep well love Jo

Funny how it's so different for everyone my mouth was ok, very dry and my lips constantly peeling but no ulcers but the gut problems are still bothersome though gradually settling
H

Min I love that you share this with us, and that Peter clearly loved you so much, I love that you spent a little time with me when I felt so low,
And I hate that this illness makes us be so horrible to the people we love most, I'd have done anything to have spared my family from taking this journey with me
And I love that my beautiful daughter…[Read more]

Hi I was on revlimid for 4 cycles and the tiredness was terrific. I kept working and sometimes could not come home as I felt to exhausted to drive, ended up having to get lifts from people. Light headedness and trembling muscles so I couldn't do anything til I'd had a sleep happened on some days but I couldn't predict which would be my worst days,…[Read more]

Debs are you wearing anything on your head? My problem is that I haven't told a lot of people what is happening to me so I feel obliged to maintain the pretence, my daughter chose my wig so she likes it and my 2 are much older than yours and don't seem bothered either way. Did you have your sct at the end of July? We will have a hair growing…[Read more]

Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve