Hi all

As I am on thought I would let you know what is going on in are lives,hope it’s not to frightening but it does not seem like this to me.

Slim is on palliative care,plus we have two carers coming in 4 times a day,plus district nurse to do driver,I have back up medican and I often have to call the district nurses out any time,they work 24…[Read more]

Tom

It’s all that gallivanting and beer drinking lol!!!?

Go for it Tom,make the most of the time ,this is what every one should be doing,a bit of a rest will do you some good. Love Eve.

G&T for me please.

Hi Dick

I know,I can always remember thinking,I wish I had known that at first,we try to cram all this information in and it is hard,Slims consultant was very good at answering my questions with ” don,t worry about that” hindsight is a wonderful thing! And the best place to come for knowledge is here on this site,there is always someone in front…[Read more]

Hi Bryn and all the other new comers that have joined this post.

We all approach the news of Myeloma differently ,we were just glad we new what it was!!!!
Then you get all these books and you are having to make choices about things you do not know anything about,you spend time reading a book,but it’s hard to understand at first.

As Dick says…[Read more]

Hi David

Not sure about Tom posting on forum (not on much myself) but he’s been posting on Facebook. I know he had bloods taken last week and sees consultant on Thursday. Will post on Facebook that you are asking for him. Hope things are good for you
Jean x

Thank you Mavis and others,

Mark’ s thanksgiving service was yesterday. I am still stunned by all the amazing support. There were over 200 people crammed into our church – standing at the sides and back. We had afternoon tea afterwards, where the buffet I had ordered for 100 seemed to feed 200, with some left over, and people stayed for ages in…[Read more]

Hi David

Yes someone is trying to kill you!?, your body!

When it gets to this stage do you find it’s just something else to add to the list????
Slims was a SNCO Richard so that explains every thing,cannot see him repenting he is to stubborn!!!!

His own doctor came to see him yesterday as his dosage in his driver is very high,plus backup…[Read more]

Hi Rebecca

Frank went through SCT in March 2013. On leaving the hospital he was told he would have to have “the baby” injections, right from the start. Within a couple of days,the consultant sent him an email with a schedule of all the vaccinations he needed – with dates etc. A copy qhad also been sent to his GP – who contacted him when they…[Read more]

Thank you all for your kind words.

I’m working my way through that limbo period before Mark’s funeral and thanksgiving service next Tuesday. Each day is filled with happy memories and the heavy sadness that comes from knowing that the story of our life together has ended – for now.

Mark left me  a gift in having worked out his thanksgiving…[Read more]

Please pass on my condolences to her husband and sons.

I would like him to know that although Eva had not been posting for some time,I always had her in my thoughts,the last time I heard from her was when she was in London having treatment that would go on to her second SCT,staying at a B&B,that takes some courage to be alone in London waiting on…[Read more]

Loopyladye

Hi I do not usually reply without knowing some back ground,as this site is open,!!!

You are obviously going through a very hard time,and had to cope with a lot in a very short stretch of time,this can be very hard as it does take time to get your head in the correct frame of mind,everyone is going to tell you,you must look after…[Read more]

I am so saddened to hear of Eva’s death so soon after her second transplant. I will really miss her.
Helen

Hi David

Love ing it,grandfather in the nick. Lol

I could not dream of going in to my cupboard,would find I am associated with IRA Slim says I have the face and back ground lol.

Live is for living and you are making a good job of it!!!,so that’s what is important.

Best Wishers wishing Dai was around to correct everything,in a nice way!!!? Eve

Oh my that’s awful!!!

I agree my daughter in NZ sold here house 10 percent deposit,done and dusted !!

My youngest daughter has had the chain broken 4 times,moving anyway! Does need up heavily .

Sorry for taking over post Judy,you will find in time you will make cyber friends,!!!?,Eve

Hi Debi

No problem if you are going to Sutton!!!! We travelled every week by car,massive car park pay anyway even disabled!!!! If you use a wheelchair all the time tiger is a little bit of parking before barrier,after barrier there are four lanes of disabled parking,but as I said you pay,most it has cost me is £14 !!!??

I use to find it easier…[Read more]

Ho Carol

You make me laugh!!! Thought that plane to ozz was this month????
Phi Judy2 sorry cannot help you,out of touch with new trials,try going into new trials on here,might be some help!!!!!

I can say this journey is like a roller coaster so many highs and lows,you learn to ride with the flow,you will get lots of help on here and also from…[Read more]

HiDavid

I can remember a few years ago,you getting everything ready just in case,the garden,with crocuses,and easier boarders,plus the old coffin job!!!! And look what you have done since,family tree,holidays!!!!

Just enjoy this month without treatment!! Make the most of the summer,the lump as you know can be anything!!! As for the…[Read more]

Hi Andy

They say opposites attract !!!!!! I took a instant dislike to Slims views in 1981 !!!!!
Still together all these years,he makes me laugh!!! That’s my excuse.
Slim is a very determined character,in a very quiet way,when he says something like do not let them put DNR on my files,he means it,and expects me to honour his wishers no matter…[Read more]

Hello Sarah

My heart goes out to you,yet I will find myself in the same position soon although by a different route.

I have not been on this site very much,mainly some one said this site is about hope and it is,but there’s no hope left for you and me,I have a daughter older than Mark,but I could not imagine what it would be like to loose…[Read more]