Hi Jean
I use it all the time,If your unsure of anything there is a good library site,on here.
When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]

HI

My word is

UNFAITHFULL

Leaving ULL

All the best Jean x

Thanks Eve I will look into that.

Love Jean x

ps Eve downloaded the Myeloma your essential guide from the site. A little "light reading " for tonight. Again thanks

Jean

Hi John
Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]

Hi Jean
There is a book called Myeloma your essential guide.
It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]

Hi Ivan
how is your leg doing?????
Eve

Hi
Mine is YOUTH

Leaving UTH

best wishers Eve

Hi All
Sharon what are you on now.
It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]

Thanks Gill I never thought of that. Will do it right away

Love Jean xx

Hi Sharon
Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

I think the answer lies treating it why it is still contained in the marrow.
They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

Hi Sally
Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
I think you will have to…[Read more]

Hey Eve I liked that one. Well done Slim. Before I give my word – for those who have an iPhone – got one for Christmas – there is a free app called wordsfree – scrabble – I'm cr.p at it but it allows me to play with my sons in England and late at night when I can't sleep – it picks someone for me to play with. So far I have won 2 games!! I…[Read more]

Hi
Just asked the brains
SEXILY
Now you can tell it was Slim who thought of that one!!!!!

ILY

Dear Min

I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
He asked me to personally say how sorry he was for your loss,

I hope you keeping well and you are in our…[Read more]

Next

SHADOWY

how about
YESTERDAY
never a truer word sung by Matt Monro

DAY

Hi all

This is good. Hope I have the rules right. My word is HIERARCHY
Love Jean x

Ted you should know – you look just like him. Surely you have been told before! Grand kids are great – aren't they?
Love Jean x

Hi Amelie
It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

I hope both of you have a long wish list and you make every day count.
When my husband was first diagnosed my thoughts were we are so lucky,we have done…[Read more]