Hi Helen
Thank you I'm booked for 15th if there is a bed free, our unit is very busy at the moment.
I have had a very different course to that of your mum by the sound of it, I had an early diagnosis as I was found to be very anaemic with joint pains and have no obvious bone or kidney problems but the treatment is all a bit arduous and we all…[Read more]

Hi Elizabeth
Thanks for your post, I'm much improved, clearly a few days can be as long as a week!!
Helen

Hi Martin
Know one can answer your question,!!! it would not matter if your dad was young or old,the fact is how much fight has he in him,I would agree with Min,we do not give enough credit to older people.Do not write them off!!!!

Jo is a fine example of having Myeloma,with kidney damage,and she seems to have a good quality of life.
At the…[Read more]

Hi Helen
I've been diagnosed for 5 months now and had 4 courses of revlimid on the myeloma xi trial, it has been an emotional nightmare and I have only just found the energy to even look for, let alone contribute to, the forum. But I'm doing ok and on target for sct next month.
I had no rashes with revlimid but suggest go to hospital for…[Read more]

Hi Gill
Thanks, I'm still not back to normal but slow improvement continues, the trouble is that ' a few days ' to recover is hard to judge and i'm clearly impatient!
Helen

Hi David
So you had a lovely holiday.Did you see any motorhomes on the banks of the river,it should have been me,but must admit if Slim was well we intendered to do Norway and Sweden:-(
Have another lovely holiday with the family,nice to hear someone doing so well best wishes Eve

Hi Peggy
Nice to see you have picked up a bit,its not to bad once you start with the pills,Slim is on myeloma trials ctd side he has to inject himself ever day,remember not to rub the site it will cause bruising!!.
no side effects with steroids!!!(not a little bit high):-P full of energy;-)
Enjoying food:-)well i believe you LOL.
Did you get…[Read more]

Hi Gill
Cannot agree more,at times i do not know how i would have managed our hospital parking,is so so so bad,plenty of spaces for staff,then patients,very little for disabled!!!
I do not use it when Slim uses Sticks because i know how my daughter feels about people using disabled spaces,my grandchild has a large chair and needs lots of…[Read more]

Hi Keith
Will be thinking of you,hope every thing goes your way for 2sct.
Best wishers Eve

Hi Everybody
My little fix it was on prescription,I can only say it has worked,:-S 😛 🙂
just taken one heee that made you laugh.it does help.
I can honestly say normally do not touch tablets,but you cannot keep crying or raging,it worked for me!!!
Love Eve

Hi Jet
I wish you all the luck in the world,it is good to see someone doing so well,
as you know from post some people struggle, when you are in this position it is not very nice!!!!!.
There is an old saying (who wants to live till there 90,the person who is 89) so I do not think it is different what ever your age,I think you are very lucky!!!
Eve

Hi Dai
Improving now, headache gone, just the back pain to settle down to pre gcsf levels, still unbelievably tired. SCT going to be mid August.
Thanks for your help
Helen

Hi Gill
So glad your out of hospital,do not worry about the emotional side .
Just take things slowly and try to do a little bit more each day,if you feel tired give into it your body knows best in this case,you will get on your feet again,just takes sometime.:-)
Make sure your wonderful sister takes a break,she will find it takes a lot out of…[Read more]

HI Sarah
Missed the post on Yorkshire did not show on emails either!!!!
Well at least Gordon tried it is very hard for them to admit they can no longer do things,i think that is why we have these battles with them,but it does show they are fighting this b—d Myeloma .

I take Citalopram 20mg,It does work stops you dissolving in tears,or…[Read more]

Thanks, I've had the collection, it finished yesterday, and they got good numbers too, so was worth the gcsf pain over the weekend. I am unable to move today with muscle pain and exhaustion, just hope it goes soon. H

Hi Min
I could not get in to the link,my brainy laptop will not let me access it.
How are things going with you.?
Eve

Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I…[Read more]

Hi Gillian
Good to see your getting there,take any equipment they offer you,as you will need most things for a short while,and you can send them back,when you do not need them.
Slim did 22 days in hospital and was so so so glad to come home,progress was slow but little by little he is much better,and it does take it,s toll on the carer,it…[Read more]