Hi Roz

You hav not heard from me before,so when you posted again I thought if I replied you might think{who is eve]:-)
I came on this sight in February husband has mm.but do not think you are forgotten I read all your posting because i had to know what the future held,I have thought many times how you were getting on,so many people come on…[Read more]

Hi Wendy
Sorry to here you are in hospital,Raging diarrhoea not nice,but you are in the right place,if it was a infection they would most probably not like to have admitted you! fluids is the big one with diarrhoea,and being an impatient any test will be done earlier.It must be very hard to cope with living on your own,
Hope your well soon love eve

Hi Claire

It is all confusing but hopefully this site will help you ,your mum is doing well if she was diagnosed in 2009 give her our best wishes
Love Jo

HELLO Bridget

I am so sorry your pain is so much worse I cannot really comment on pain killers as I can only take paracetamols or have accupuncture.
Could you have some more RT treatment is that possible as it helped a bit for you last time
Much love Jo x

Hi Gill
Hope Stephen picks up soon,think about a good holiday in France when this over,that must take some of the pain away.When we go to Dover and watch the motor homes going on the ferries,I have pangs of jealousy knowing it is going to be some time before we manage France.

wishing you well Eve

Hi Angelina
I would not know how to advise you,but just had to let you know,my thoughts are with you,I think I would cling on to the fact he would not sign that form,I can see why it is important,to get your life in order,I can remember when Slim was in ITU i left him sleeping,came back 4 hours later he was so upset,he thought because i did not…[Read more]

Hi Bridget

Slims on Oxycontin 30m twice a day morning and evening,also liquid Oxycontin allowed as needed,but if he starts using it all the time doctor will up the pills.but not needed at the moment.

As you know Bridget Slims had a bit of a rough time and can take a lot of pain,the Oxcontin was given in hospital as before Slim was on…[Read more]

Hi

I agree with Dia sorry your post got lost dont be a stranger you will find this site so valuable Try the myeloma uk help line they will be able to talk through a lot of your problems
Love Jo

Hi Min
I have acid reflux it can be awful i take a small dose of omisaprol daily which seem to hold it in check if i do get it srange as it will seem all i want to eat when i get it is heinz tomato soup i seem to be able to tolerate that.
As for hair loss my husband lost his naturally he hated at first but now he is ok with it his brother who is…[Read more]

Hi Min

He will not let me stick anything up his bottom LOL he must be getting better his dignity is coming back,!!!!;-)
Seriously Min its a bit of a fight with Slim,he takes so much,just does not want to try any more,looks if its starting to work,should do drinks it out of bottle>:-(
As for weight gained some then had v&d and lost it.Sorry…[Read more]

Hi Pat and Jane
Min and jo ,s advice is good,just want to add it is important to drink a lot of fluid as you need to clear kidneys,to be honest your mum seems to be doing ever so well,it must be hard living on her own,if i am correct the nurse on this site can put your mum in touch with some one with same condition,ask Ellain ?

Might be worth…[Read more]

Dai
I have thought about it Dai,do you remember my old post[can I have a moan]that other eve ranted and raved,had high blood pressure,needed a g&t to calm down,everything was so inefficient,time wasted,and do not get me wrong Dai it still is,but it has become the norm,and I have got use to it,we still wait hours for tablets,we have appointments…[Read more]

Hello Min

How you can think to write so much in one go is marvellous I am glad to see it looks like the thalid is starting to work for Peter lets hope he gets a good long term result this time 🙂
Love Jo x

Hello Eve

How is slim doing now is he feeling any better and putting on weigh and back on the treatment it a shame we have had such bad weather because a drop of sunshine would probably do him good
Love Jo x

Hello Jane

I took thalidomide as part of the CDT regime I found that if I took it last thing at night and the steriods first thing in the morning I managed to sleep most nights I am afraid constipation seems to be a common theme with any of the treatments I found prunes and figs helped but some times had to resort to movicol which can be given…[Read more]

Angelinax

Nice to hear from you I am glad John is feeling much better perhaps you will be able to get him home soon and back on track

Lots of love Jo 🙂 😉

Thank you Dia and Eve

for my birthday wishes. Dia i Will look forward to a happy birthday song

Love from Jo xxx

Dai I know exactly what Eve means. I have not quite reached that point and after reading your post, I hope not to. Once again your words have hit home.

Thanks
Love Jea xx

Dai

Love the song ,it,s lovely,glad to here your feeling better after your poo problems:-) ,Its nice to wake up in the morning and read your post brings a smile to my face
Angelina.have been wondering what was happening with you and John,not a good time for you,glad things are improving,Slim and I laugh about him seeing long legs in riding…[Read more]