Dia

big mac mmmmh sounds more like a safari than lunch lucky there wasnt any seagulls they might have mugged you they seem keen on MCD'S 😎 Janet must love your small suprises what will you think of next

Love Jo;-) x

Hello Chrissie

I think the treatment which is chemo is very agressive and can leave some people really down, ill and depressed once it starts to work you feel a whole lot better but it is a struggle at first as for the shakes i had terrible ones due to kidney damaged cause mainly by to much calcium in the blood they gave me chemicals to get it…[Read more]

Thats alright then you had me worried for a while

Love Jo;-)

Hi Dai

Oh boy sounds such a lot of work. I wish you the very best. I AM WITH TOM!!

Love Jean

hi Jollyroger

Yep, your in shock mode,We have all been there.One minute they are fit next minute seriously ill.I kept telling people he,s so fit!!!!!thats my husband by the way,lovely man than he is:-)

Sorry about your mum,it is very early days,t would be stupid of me to tell you not to worry,one bit of advice I can give you is,start…[Read more]

Dai

What a briliant idea!!! I am a carer and unfortunately I am tone deaf – my boys say when I sing I sound like a "scalded cat"

It would be a lot of work but if it got off the ground I would try and help in any way that I could.

Take care
Love Jean xx

Dia

I see chickens on the horizon lets hope the beast has been kicked into touch all the news sounds positive so fingers crossed
Much love JO;-) xx

hello Gill

so sorry stephen is feeling rough but lets hope with everything crossed that this works then it will be worth it give him all our best wishes we are rooting for him:-)

Love Jo x

gina

so sorry to hear about your mum I hope the hospital sort out her infection pretty quickly It must be frightening for her and so worrying for you keep your chin up
Love Jo xxx

Hello Vicki

I was 61/2 when I was diagnosed had four months of CDT which I managed
very well had a bit of constipation and of cause DEX mood swings which I think most people get I am under Lister hospital in Herts and UCH london
I have been in remission for just over two years I could not have an SCT as MM caused me to have serious kidney…[Read more]

Tom

Are you ok why are you back in ward 18 i hope it is nothing to bad
onwards and upwards;-)
Love Jo:-) x

Hi Min

Hope things are working out for you,
Thinking about Peter and you wishing every thing goes well' eve

Hi Gina

Sorry to hear about your mum,you must be so worried,Low BP is a sign of infection,read my bit on bp.Slims infection was left to long,it seems if they have caught your mums in good time,you must have a good doctor.
I know you are worried,but fluids and antibiotics is the answer,through a drip because it works faster.do not worry if your…[Read more]

Hi Gill

I was thinking about you the other day,Its amazing the way you begin to worry when people do not post.Glad to here things are going well for you,

You never know France might be on the cards yet
wishing you well eve

Hi Vicki

What good advice you have just received,could not give you any more. Dai has a way with words,Bridget is always a comfort,and Tom a never ending soughs of laughter.Just what you need at this moment.:-)

Welcome to the journey,We are all ahead of you on this journey,I am a carer to my husband.Some times I loose the plot,I will not say…[Read more]

Hi Sarah

found your happy happy day

Now thats what I call clever it was on page 11 of off topic.
I do not know how it happened ?

Love to you eve

Lovely 😉

Love Jo x

Ian

the very best of luck for your mini allo i hope all goes very well;-)

Keep Well Jo x

Dia

I think you are allow an eeyore moment now and again the only problem with MM with me at least is every twitch ache and pain is it MM, not usualy but it s the first thing that goes through the mind I am glad you are feeling a bit better today it does sound as if the treatment is staring to work which is very good news 😉 😉 😉
Lots 0f…[Read more]

Hi Marian

The myeloma x1 trials are for patients who have not had chemo.
You do not get choice of branch you go on name fed into computer my husband got ctd side other side is rcd'

1 one or two possible chemo potions

2 one or two consolidation options

3 one or two possible maintenance treatment options.

You can come off the trials…[Read more]