Liz so glad to hear that it was sorted.

Love Jean. xx

Dai you have done it again. Typing this with tears on my face. You have a fantastic gift. Janet is a very lucky woman. Long long may you be with us.

Love and best wishes
Jean xx

ps Min no matter who wrote it was beautiful and you shared it with us. Thank you. xx

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Hello Kath

just wondering how you are as you havnt posted just lately I hope you are ok 🙂

Love Jo xx

hELLO gAYE

So sorry your RT treament has not worked I hope they can sort you out and give you some relief:-) glad the pomalidomide is holding the MM lets hope it soon starts to get rid of it my thoughts are with you

Love Jo xx

Min I like Eve wish I had your way with words. That was truly beautiful. We are lucky to have you and Dai. You both can write what a lot of us think but can't express. Thank you

Love Jean xx

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

Thanks for the info Dia America is so much more advanced than us it gives me great hope for new treatments
Love Jo x

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

Hi Liz

Sorry to hear that Kev is having such a bad time. I know what you mean about men being stubborn. (sorry all you men out there!). I am sorry that I can't give any help on the problem that Kev is having. Sometimes posts get "way laid" or lost so maybe if you start a new topic under Treatment or Side affects with a heading on the problem -…[Read more]

Dai. Thank you so much. You can put in words what most of us are thinking.
Love Jean. xx

Hi Gina

My husband diagnosed sept 2006. He is not on any treatment. His protein went up to 31 and then dropped to 24 started to rise again and now is 28. Dr said that would not start treatment as other bloods were within range and kidney function was good. She sent him for MRI scan three weeks ago but have heard nothing yet. We also go back in…[Read more]

Oh Dia

such beatiful words you can give a voice to what others think

Love Jo x

Welcome Ali and Guy

SO sorry you had to join this club it has been a great comfort to me as I am sure it will be to you when you are in the darkest places there is always someone with advise and comforting words I now its hared to find anyone in the big wide world that has heard of Myeloma that is why this site is so important

Be strong love jO 🙂

hello annika

I had cdt treatment I was 61 I tolerated it pretty well except the emotional bits with the hated DEX I have had MM for 2.5 years now or that was when it was diagnosed I am sure I had it for quite a bit before that there are people in my clinic about your husbands age who are doing very well on the medication so hopefully he will be…[Read more]

Hi Dai
I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)

dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]

Wonderful news Eve

so glad slim is home you can build him up now you can feed him on all the things he likes, you really do find out true friends in times of trouble dont you, sounds as if you have some really good ones
Keep us posted

Love Jo 😎

Hi Eve

Wonderful news that Slim is now home with you where he belongs. I hope he goes from strength to strength. Glad that you haave such good friends that are able to help you, just make sure you look after yourself.

Love to you both
Jean xx