hello Dia

Good luck for your next appointment hopefully you might not be at that stage yet:'-( I had a clinic appointment today and saw a nice new registrar He was Italian and we discussussed various things they are more advanced in Italy and have been giving velcade as a first line treatment for ages he said they also have had success with…[Read more]

Joe let us know how you get on.
Jean

Joe I am so sorry to hear of the situation you find yourself in. I can understand
how you feel about worrying your parents especially your dad. I can only give you
my feelings on it as a mum of four sons. I would be very hurt if one of my boys was
going through what you are on their own. Maybe you can tell your mum and let her
decide if your…[Read more]

Thanks Min
Will try 7up,,does not like flavoured water,a little bit better today although still not eating drinking small amounts.

Hospital tomorrow for bloods,the unit will open tomorrow,so I am going to ring first thing,see if doctor will see him,needs fluids inside him.
not so confused today,energy levels zero.
The problem with him,is he…[Read more]

How many ciders?,you enjoy them and have one for me

hi Eve

Men are so bl**dy difficult you must be out of your mind worrying dont they know its for there own good
Hope you have a better day tomorrow

Love Jo 😎

thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]

Hello Dia

Poms Poms and bells we have to fight to live which is what us friends on this site are doing it would be great to meet everyone I think we may all be a bit spead out we need a central point, keep up the fight Dia how about another poem I used to look forward to them

Love Jo8-)

hi Eve

Sorry he has not been to well I know men are difficult mine is he would be terrible if he gets any thing wrong with him my blood pressure did not go low in fact its the reverse mainly due to the kidney failure we cannot win can we hope he feels better soon
Love Jo :-S

Hi Keith and NIgel
I just found your post when I was looking for some info on feeling so bad,my partner is just finishing 3 cycle of ctd and starts 4 on Friday.

The problem is he feels so bad,ended up in hospital yesterday,very dizzy ,turned out,low blood pressure and Dehydration ,although he was drinking well up to feeling lethargic last week…[Read more]

Hi Gill

Yippee wonderful news hope you have a happy easter I expect you will now

Love jO 😎

Hey Jo

I know what you mean about Strangford!! We had a lovely sunny day today but this evening it rained. Robert (from Southampton)arriving tomorrow txt to see if it was hot here!!!!! I can't remember the last time it was hot here, warm yes but hot – no. He must have a short memory. Looking forward to Sunday as we will have all our boys…[Read more]

Gill
That is the best news that I have heard in a long time. (since Shirley's news) I am so very pleased for you both. It's so good that you questioned the ones in the "know", a lot of people would take what the professionals say as "gospel" My very best to you and Stephen and have a BILLIANT weekend.

Love Jean xx

Hi Gill
You must be over the moon,I am so glad for you both,never,never give up hope,we do not know what is round the corner:-)
It does make you think,were would you be,if the conversation about how much stem cells were taken last time?
Enjoy this lovely weather and have a lovely Easter .eve

Thank you all for your kind words and support, and laugh. I don't know what I would do without you lot.

Weather still good here. Hope so where you all are. Have a great weekend.
Love Jean xx

😎 😎 Hello Jean
I would have loved to be a fly on the wall in that clinic good for Frank
I sometimes feel consultants talk at you not to you although he will end up with egg on his face if she is right positive vibes about the treatment at sixty eight at the hospital I attend they would not consider it
Have a lovely weekend with your new…[Read more]

HelIo David and jean

I hope you both have a good easter, Jean I hope the weather holds for you I have stayed on Strangford loch three time a beautiful place but it rained most of the time

lOVE jO 😎