Hello Sharon

I am sorry to hear about your spine I hope things get better soon could you please let me know what the nice guide lines are forwarn is for armed

Thank you Jo

Hi Bridget

I am so sorry to read that you are having such a rough time. The only thing I know about Dex is what I read here – and it seems to be really unpleasant. Your family and friends know the real you, so will understand that it is the "dreaded Dex". You listen to all our rants, so carry on as much as you like.

Hope you start to…[Read more]

Hello min

My name is Josephine but I only answer to Jo I live in Hatfield in Hertfordshire I retired in December 2008 aged 61 1/2 diagnosed with MM Jan 2009 went into AE after my docter sent me home with paracetamol my husband insisted I went to AE I had double pnuemonia renal failure and as it turned out MM
what a shock five months of CDT…[Read more]

HELLO angie and clara

Welcome to the site it will not halt all your worries but really helps you will find out most things here but you will definatley get support which is so important as most people have not heard of myeloma you can feel very alone David is very right about DEX so bear with it, it does get better and your mum and dad will…[Read more]

My hubby Frank has SMM, diagnosed in Sept 2006 after blood tests for something else. Had MRI and biopsy and were told he had Multiple Myeloma. It was some time before we found out it was SMM – no-one told us. Frank also has chronic back pain but consultant says nothing to do with Myeloma – it is an old injury. I am not allowed to ask…[Read more]

Brightened my day to. Makes you wonder, these highly educated people can be as thick
As two short planks. Long may it continue – even if it's just to give us a laugh.
Love Jean xx

Thanks for the laugh David it cheers up the day
Love Jo 😎

Hello Min

Glad to hear Peter is feeling better now.Good news about your redundancy
when I was first diagnosed in the january Geoff wasa due to retire in the march his company let him go three months early with no loss of income or pension which was marvellous. I have the Myeloma diary it is really usful as you say, got it at the London…[Read more]

So true David do any politicians do their homework or do most just follow the party line like sheep :-/

Regards Jo

HI Min

On the continent the first line of treatment is Velcade plus DEX this means if there is any kidney damage the outcomes are much better
my consultant is Polish and he told me this
Love JO :-/

Hello Min

Glad to hear you are a bit better as for work it sounds as if it will not be for much longer good luck

Love Jo x 😀

Hello Keith

I agree with all you are saying my mp is a tory and for my sins I voted for him in opposition he worked really hard for the community so I thought I would give him a chance but now he is one of Daves boys and since he has become housing minister he tows the party line. My GP was hopeless I went to the surgery hardly able to walk and…[Read more]

Brilliant Min. Will keep every thing crossed. Going to Southampton tomorrow to see our new beautiful grand daughter!!

Love Jean xx

Hello min
sorry peter is having such a hard time at the moment the swelling must be awful.Due to my kidney damage they had to reduce the dosage of aciclover as it was not good for the kidneys it help reduce my ankle swelling although when I stopped taking it I got shingles which was terrible so it's worth taking it.
I hope your sciatica is…[Read more]

Gaye you have missed your vocation. You should have been a TV crtic. Very well written!!!! Poor Harry still didn't get Dr Alexandra. They left it open – so maybe the delightful three will come back to our screens. If not, sign me up for the petition.
(I know I know – I should get a life)
Love Jean XX

Dear Bridget,

HAPPY BIRTHDAY. I hope you have a brilliant birthday and tonight when I have my gin and tonic, I will toast to you and many many many more birthdays. You are an exceptional lady who I have the upmost respect and admiration for. Have a great night.

Lots of love Jean xxx

Hi Gaye

I love Silent Witness and watched it last night and am looking forward to tonights episode. (really sad aren't I). Someone told me this is the last of it. I hope not – they took The Bill off and now this (now I m really SAD).. What next??

Hope you are keeping well.

Love Jean xx

Hi Bridget

I don't know if anyone else is worried but I am about the GP 's holding the money will they be willing to fund second and third treatments or even first expensive ones will we all be fighting the system agsin

Love jO :-S

HAPPY BIRTHDAY BRIDGET 😀 You never moan not even when you are on DEX or as i say dexitude :-/ all you ever do is give kind words and encouragement hears to the next four years and many many more

Lots of love jo x

Hello Bridget

How are you is your treatment going well are you feeeling any relief.
I had to giggle about the shoes at new years we went out I had a smart blue velvet dress so bought a pair of really nice silk blue shoes with two inch heels felt the bee's knees then sciatica struck so I had to go to town and get a cheap pair of flattys £6.99…[Read more]